Results 21 to 30 of about 121,119 (257)
Cartographies of Resistance: Counter-Data Mapping as the New Frontier of Digital Media Activism
Media and Communication, 2023 In the first datafied pandemic, the production of interactive Covid-19 data maps was intensified by state institutions and corporate media. Maps have been used by states and citizens to understand the advance and retreat of the contagion and monitor ...
Sandra Jeppesen, Paola Sartoretto
doaj +1 more source
Just data? Solidarity and justice in data-driven medicine [PDF]
Life Sciences, Society and Policy, 2020 AbstractThis paper argues that data-driven medicine gives rise to a particular normative challenge. Against the backdrop of a distinction between the good and the right, harnessing personal health data towards the development and refinement of data-driven medicine is to be welcomed from the perspective of the good.
Patrik Hummel, Matthias Braun
openaire +2 more sources
International Journal of Communication, 2023 To understand civic participation in the datafied society and the possibilities for social change, we must foreground social and political injustices and understand how citizens are frozen out of society and “democratic” processes in general.
Natalie Fenton
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The Chilean constitutional-making process
Technology and RegulationThe Chilean constitution making-process appears to be one of the most interesting democratic exercises of recent times within the context of a connected society and the increased interest in constitutionalism as a way of shaping and countering digital ...
Verónica Mery
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International Journal of Population Data ScienceIntroduction When a child has suffered, or is at risk of suffering, significant harm from parents or caregivers, the local authority may issue Section 31 (s.31) Care and Supervision proceedings under the Children Act (1989). Objectives We compared the
Ian Farr +11 more
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Studies in Communication Sciences, 2020 This article engages with the interplay between data-driven surveillance and contemporary social imaginaries, using research based on the aftermath of the Snowden leaks. Drawing on Mark Fisher’s use of the term “realism” in relation to capitalist realism,
Lina Dencik
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Pediatric Blood &Cancer, EarlyView.ABSTRACT Purpose Patient activation—encompassing knowledge, confidence, and skills in managing individual's health—is a cornerstone of person‐centered care. However, its significance among childhood, adolescent, and young adult cancer survivors (CAYACS) remains unexplored. This article examines the application of the 13‐item Patient Activation Measure (
Charlotte Demoor‐Goldschmidt +12 more
wiley +1 more source
International Journal of Communication, 2023 We argue here that data literacies and capabilities are an integral part of data justice. Based on focus group data collected as part of a 3-year empirical project research project, we find that citizens remain unaware of key aspects of the digital ...
Elinor Carmi, Simeon Yates
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Data Management Plan Implementation, Assessments, and Evaluations: Implications and Recommendations
Data Science Journal, 2023 Data management plans (DMPs) have become nearly a worldwide requirement for research funding. To meet these new funding agency expectations, information professionals across domains and the world have worked to create resources and services to ...
Bradley Wade Bishop +7 more
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Pediatric Blood &Cancer, EarlyView.ABSTRACT Introduction Adolescent siblings of children with cancer are at elevated risk for psychosocial problems. Unfortunately, various barriers such as limited family time and resources, conflicting schedules, and psychosocial staffing constraints at cancer centers hinder sibling access to support.
Christina M. Amaro +10 more
wiley +1 more source