Results 21 to 30 of about 525,062 (261)

Towards a standardised cross-sectoral data access agreement template for research: a core set of principles for data access within trusted research environments

International Journal of Population Data Science, 2023
Introduction Trusted Research Environments (TREs) are secure computing environments that provide access to data for approved researchers to use in studies that can save and improve lives.
Rachel Brophy, Ester Bellavia, Maeve Groot Bluemink, Katharine Evans, Munisa Hashimi, Yemi Macaulay, Edel McNamara, Allison Noble, Paola Quattroni, Amanda Rudczenko, Andrew D Morris, Cassie Smith, Andy Boyd   +12 more
doaj   +1 more source

Vasectomy reversal and prostate cancer risk: A multi-centre collaborative demonstration project of the Intentional Population Data Linkage Network

International Journal of Population Data Science, 2018
This first collaborative demonstration project of the International Population Data Linkage Network (IPDLN) has recently been completed. This project collated data from five data linkage centres across Australia, the United Kingdom and Canada to ...
James Boyd, Sean Randall, Emma Fuller
doaj   +1 more source

A proposed approach for standardized reporting of data linkage processes and results.

International Journal of Population Data Science, 2022
Objectives Population Data BC (PopData) is an agency in British Columbia, Canada, that routinely performs linkages of various administrative and researcher-collected data to a population spine.
Yinshan Zhao, Mike Jarrett, Kimberlyn McGail, Brent Hills   +3 more
doaj   +1 more source

Linking Pathology Datasets – Trials and Triumphs

International Journal of Population Data Science, 2019
Background with rationale The burden of chronic kidney disease (CKD) has increased rapidly in Australia over recent years. The financial cost of treating people with end-stage kidney failure by conventional models of dialysis or transplantation ...
Brian Stokes, Matthew Jose, Nadine Wiggins, Tim Albion   +3 more
doaj   +1 more source

Improving Responsiveness: Our Journey from Manual Yearly Updates to Automated Linkage for Near Real-Time Understanding of Outcomes and Modelling Future Service Demand

International Journal of Population Data Science
Objective Demand for real-time data during the COVID-19 pandemic revealed a need to increase efficiencies in manual linkage processes to respond to events in near real-time.
Philip Witowski, Mark Sipthorp, Adam Ismail, Windra Sulaiman, Beverley Phillips, Sharon Williams   +5 more
doaj   +1 more source

Improving Cardiac Insights: Harnessing Privacy-Preserving Record Linkage (PPRL) to Obtain, Link, and Enhance Data for a Healthier Australia

International Journal of Population Data Science
Objective General Practices (GPs) collect vital information on health and disease in Australia, however much of this sensitive data is difficult to share for linkage purposes due to confidentiality and privacy concerns. PPRL techniques have presented an
Philip Witowski, Windra Sulaiman, Mark Sipthorp, Adam Ismail, Beverley Phillips, Sharon Williams   +5 more
doaj   +1 more source

Unleashing The Power of Your Master Linkage Map – Is There A Role For Business Intelligence Tools In Supporting Data Linkage?

International Journal of Population Data Science, 2019
Background with rationale Business Intelligence (BI) software applications collect and process large amounts of data from one or more sources, and for a variety of purposes. These can include generating operational or sales reports, developing dashboards
Brian Stokes
doaj   +1 more source

Leveraging Machine Learning to Combat Missingness and Error in Data

International Journal of Population Data Science
Objective Poor quality data confounds efforts to link clients across datasets. To combat this, we have trialed an approach which seeks to identify linkage candidates using associations with related services.  We utilised a machine learning (ML) approach
Beverley Phillips, Philip Witowski, Windra Sulaiman, Adam Ismail, Mark Sipthorp, Sharon Williams   +5 more
doaj   +1 more source

The effect of cross-jurisdictional linked hospital and death data on estimating risk-adjusted grouped hospital standardised mortality ratios in Australia

International Journal of Population Data Science, 2017
Objectives The Population Health Research Network (PHRN) was established to increase data linkage capacity in Australia. A proof of concept study investigating cross border hospital use and hospital mortality was undertaken to demonstrate the ...
Katrina Spilsbury, Anna Ferrante, Diana Rosman, Janine Alan, James Boyd, James Semmens   +5 more
doaj   +1 more source

Family Matters: Enhancing Insight in Linked Administrative Data Through Familial Linkage

International Journal of Population Data Science
Objective Familial relationships can provide researchers with important insight into genetic, environmental, and social influences across many domains of research.
Beverley Phillips, Philip Witowski, Adam Ismail, Windra Sulaiman, Mark Sipthorp, Sharon Williams   +5 more
doaj   +1 more source