Results 31 to 40 of about 322,912 (227)

Stressful Events Reported by Childhood Cancer Survivors and Community Controls From the St. Jude Lifetime (SJLIFE) Cohort: A Mixed Method Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Characterizing stressful events reported by childhood cancer survivors experienced throughout the lifespan may help improve trauma‐informed care relevant to the survivor experience. Methods Participants included 2552 survivors (54% female; 34 years of age) and 469 community controls (62% female; 33 years of age) from the St.
Megan E. Ware   +13 more
wiley   +1 more source

Implementing Informatics Tools with Data Management Plans for Disease Area Research

open access: yesData Science Journal, 2023
Data Management Plans (DMPs) are essential to a research data life cycle. The DMPs should be developed as part of the research programs to be effective.
Vivek Navale, Matthew McAuliffe
doaj   +1 more source

Unheard and Under‐Supported: Health‐Related Quality of Life in Children, Adolescents, and Young Adults With Sickle Cell Disease

open access: yesPediatric Blood &Cancer, EarlyView.
Abstract Background Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy affecting millions of individuals worldwide. The clinical expression and psychosocial burden of SCD vary widely across geographical, cultural, and healthcare system contexts, underscoring the need for setting‐specific approaches to assessment.
Desiré Fantasia   +7 more
wiley   +1 more source

Using Data Management Plans to Explore Variability in Research Data Management Practices Across Domains

open access: yesInternational Journal of Digital Curation, 2016
This paper describes an investigation into how researchers in different fields are interpreting and responding to the U.S. National Science Foundation’s data management plan (DMP) requirement.
Susan Wells Parham   +4 more
doaj   +1 more source

Uncommon Commons? Creative Commons Licencing in Horizon 2020 Data Management Plans

open access: yesInternational Journal of Digital Curation, 2022
As policies, good practices and mandates on research data management evolve, more emphasis has been put on the licencing of data, which allows potential re-users to quickly identify what they can do with the data in question.
Daniel Spichtinger
doaj   +1 more source

Imaging of High‐Risk Neuroblastoma: Recommendations From SIOPEN Radiology and Nuclear Medicine Specialty Committees

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Neuroblastoma is the most common extracranial solid tumor in early childhood. Its clinical behavior is highly variable, ranging from spontaneous regression to fatal outcome despite intensive treatment. The International Society of Pediatric Oncology Europe Neuroblastoma Group (SIOPEN) Radiology and Nuclear Medicine Specialty Committees ...
Annemieke Littooij   +11 more
wiley   +1 more source

Effects of Cancer Treatment on Somatosensory and Nociceptive Processing in Children and Adolescents: A Systematic Review

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Chemotherapy‐induced peripheral neuropathy remains a major complication in pediatric cancer, with disrupted somatosensory and nociceptive processing being a key aspect. This review synthesizes empirical studies on alterations in somatosensory and nociceptive processing in children and adolescents with cancer.
Julia Schweiger   +4 more
wiley   +1 more source

An Analysis of Data Management Plans in University of Illinois National Science Foundation Grant Proposals

open access: yesJournal of eScience Librarianship, 2014
The University of Illinois at Urbana-Champaign (UIUC) Library conducted an analysis of 1,260 Data Management Plans (DMPs) submitted in National Science Foundation (NSF) proposals from July 2011 through November 2013.
William H. Mischo   +2 more
doaj   +1 more source

Towards a Toolbox for Automated Assessment of Machine-Actionable Data Management Plans

open access: yesData Science Journal, 2023
Most research funders require Data Management Plans (DMPs). The review process can be time consuming, since reviewers read text documents submitted by researchers and provide their feedback.
Tomasz Miksa   +8 more
doaj   +1 more source

JCOMM Data Management Plan.

open access: yes, 2014
Data management plan JCOMM was established by the World Meteorological Organization (WMO) and UNESCO's Intergovernmental Oceanographic Commission (IOC) in 1999 to be their major advisory body on all technical aspects of operational marine meteorology and oceanography.
openaire   +2 more sources

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