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Living an ordinary life – yet not: the everyday life of children and adolescents living with a parent with deafblindness [PDF]
International Journal of Qualitative Studies on Health and Well-being, 2022 Introduction The family life of people living with one family member with deafblindness has been sparsely described. Purpose The aim of the study was to explore how children experience their everyday family life when having a parent with deafblindness ...
Karina Huus +2 more
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Definitions of deafblindness and congenital deafblindness
Research in Developmental Disabilities, 2014 In order to compile knowledge on deafblindness (DB) and congenital deafblindness (CDB), one important factor is comparison of results between different scientific studies. In an attempt to do a systematic review of the literature on cognitive assessment and CDB, considerable difficulties in determining eligibility of the studies were encountered due to
Saskia Damen
exaly +5 more sources
Journal of Intellectual Disability Research, 2009 AbstractBackground In persons with deafblindness, it is hard to distinguish autism spectrum disorders from several deafblind specific behaviours caused by the dual sensory impairments, especially when these persons are also intellectually disabled. As a result, there is an over‐diagnosis of autism in persons who are deafblind leading to unsuitable ...
Harry Et Knoors, Mathijs P J Vervloed
exaly +4 more sources
, 2021 As a complex impairment with many different causes (Bodsworth, Clare, Simblett, & Deafblind, 2011), the term deafblindness has legal, clinical, and functional definitions. Many terms are used to describe the phenomenon, including dual sensory impairment, deafblindness, and combined hearing and vision loss (Wittich, Southall, Sikora, Watanabe, & Gagne ...
Simcock, Peter, Manthorpe, Jill
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Deafblind and Neglected or Deafblindness Neglected? Revisiting the Case of Beverley Lewis [PDF]
British Journal of Social Work, 2013 Deafblindness is a particularly complex impairment and deafblind people are considered to be some of the most vulnerable members of society; this includes vulnerability to abuse and harm. This paper explores this unique impairment in the illustrative case of Beverley Lewis, by reviewing archived published and audio material about the life and ...
Simcock, Peter, Manthorpe, Jill
openaire +3 more sources
Communication and Deafblindness, Special Needs Education, and New Perspectives on Deafblindness
Journal of Deafblind Studies on Communication, 2022 Introduction: In this valedictory lecture, the author presented new perspectives on deafblindness, by looking back at the studies performed in the field of Communication and Deafblindness from an educational perspective at the University of Groningen since her appointment as professor in 2008, preceded by her personal life story.
openaire +1 more source
Deafblind Tactile Signers: The Dynamics of Communication and Space
Sign Language Studies, 2023 Abstract: The focus of this article is on deaf blind people who are or have been involved with deaf signing communities and, when vision changes, transition to tactile reception of sign language. This brings about a disconnection with the signing community, exploration of (other) possibilities, and seeking or creating deaf blind spaces.
openaire +2 more sources
Interventions for children with deafblindness—An integrative review
Child: Care, Health and Development, 2022 AbstractBackgroundDeafblindness is a rare condition, and its prevalence has been reported to be approximately 1 in 27 000 new‐borns worldwide. For individuals with deafblindness, lifelong interventions and support are needed to be able to develop communication, be active and preserve a good quality of life.
Ann‐Sofie Sundqvist +3 more
openaire +2 more sources
The International Classification of Functioning, Disability and Health Core Set for deafblindness. Part I: a systematic review of outcome measures. [PDF]
Eur J Phys Rehabil Med, 2023 Paramasivam A +18 more
europepmc +1 more source
Evaluation of a Less Invasive Cochlear Implant Surgery in OPA1 Mutations Provoking Deafblindness. [PDF]
Genes (Basel), 2023 Tekin AM +7 more
europepmc +1 more source