What does it mean to live with epilepsy? Burden of illness from the patient perspective
Our web based survey explored the real world experiences of patients with epilepsy (PwE) taking antiseizure medications (ASMs) who continue to have at least one seizure per month. The graphical abstract summarizes the study population, survey methodology, and key outcomes.
Joanne M. Wagner +6 more
wiley +1 more source
Exploring death anxiety among women with preterm births in Oman. [PDF]
Abu Baker R, Qutishat M, Al Dameery K.
europepmc +1 more source
Abstract Objective Sialidosis type I (ST‐1) is an autosomal‐recessive, very rare, progressive lysosomal storage disorder caused by pathogenic variants in NEU1. It is clinically characterized by progressive ataxia, myoclonic seizures (MS), bilateral tonic–clonic seizures (BTCS), and distinctive ophthalmological findings.
Janina Gburek‐Augustat +15 more
wiley +1 more source
Reduction of death anxiety in patients with advanced cancer in short-term psychotherapy. [PDF]
Oberth P +3 more
europepmc +1 more source
ABSTRACT Objective Anorexia nervosa (AN) is a severe psychiatric disorder displaying an altered gut microbiome. Faecal microbiome transplantation (FMT) has emerged as a powerful research tool and potential treatment option in AN due to the microbiome‐gut‐brain axis. Current studies are limited and reveal variable FMT protocols.
Anna C. Thelen +6 more
wiley +1 more source
The Mediating Role of Depression in the Association Between Death Anxiety and Quality of Life in Elderly Prostate Cancer Patients. [PDF]
Song H, He F, Zhang X.
europepmc +1 more source
When Rare Is Not Small: Amyotrophic Lateral Sclerosis Initiatives and Therapy
In the precision‐medicine era, rare diseases must not be sidelined in translational infrastructure. The Mr. Cai Lei—led “Ice‐Breaking Team” turns an amyotrophic lateral sclerosis patient community into a sustainable ecosystem, realigning philanthropy, data, and research and development to reshape rare‐disease pipelines and guide precision therapies ...
Yang Liu +6 more
wiley +1 more source
The association between death anxiety and nutrition awareness in elderly hospitalized patients: a dual-perspective analysis from person-centered and variable-centered approaches based on future time perspective. [PDF]
Li L, Wu D, He Q, Chen J.
europepmc +1 more source
Caught in the fire: An accidental ethnography of discomfort in researching sex work
Abstract Drawing on fifteen years of engagement with researching Israel's sex industry, this article uses accidental ethnography to propose discomfort‐as‐method for feminist anthropology. I argue that discomfort is not a by‐product of fieldwork but a constitutive condition that disciplines researchers and shapes what can be known.
Yeela Lahav‐Raz
wiley +1 more source
How loneliness impacts depression among Chinese college students throughout COVID-19: mediators of death anxiety and negative affect. [PDF]
Lv F, Feng R, Tan J, Li J, Liu Y, Gao D.
europepmc +1 more source

