Results 21 to 30 of about 354,100 (264)

Development of a decision support intervention for family members of adults who lack capacity to consent to trials

BMC Medical Informatics and Decision Making, 2021
Background Informed consent is required for participation in clinical trials, however trials involving adults who lack capacity to consent require different enrolment processes.
Victoria Shepherd, Fiona Wood, Richard Griffith, Mark Sheehan, Kerenza Hood   +4 more
doaj   +1 more source

The development of a decision aid for tinnitus [PDF]

International Journal of Audiology, 2018
To develop a decision aid for tinnitus care that would meet international consensus for decision aid quality.A mixed methods design that included qualitative in-depth interviews, literature review, focus groups, user testing and readability checking.Patients and clinicians who have clinical experience of tinnitus.A decision aid for tinnitus care was ...
Helen Pryce, Marie-Anne Durand, Amanda Hall, Rachel Shaw, Beth-Anne Culhane, Sarah Swift, Jean Straus, Elizabeth Marks, Melanie Ward, Katie Chilvers   +9 more
openaire   +3 more sources

Carcinomas and Carcinoid Tumors of the Lungs and Bronchi in Children and Adolescents: The EXPeRT Recommendations

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Primary lung carcinomas and bronchial carcinoid tumors (BC) are very rare malignancies in childhood. While typical BC and mucoepidermoid carcinomas are mostly low‐grade, localized tumors with a more favorable prognosis than in adults, necessitating avoidance of overtreatment, adenocarcinomas of the lung are often diagnosed at advanced disease ...
Michael Abele, Calogero Virgone, Michaela Kuhlen, Sabine Irtan, Yves Reguerre, Malgorzata Krawczyk, Ewa Bien, Tal Ben‐Ami, Maja Cesen, Ricardo Lopez‐Almaraz, Andrea Ferrari, Gianni Bisogno, Dominik T. Schneider, Abbas Agaimy, Constantin Lapa, Hubert Ducou le Pointe, Rainer Claus, Catherine Daniel, Ines B. Brecht, Daniel Orbach   +19 more
wiley   +1 more source

The impact of adding cost information to a conversation aid to support shared decision making about low‐risk prostate cancer treatment: Results of a stepped‐wedge cluster randomised trial

Health Expectations, 2023
Background Decision aids help patients consider the benefits and drawbacks of care options but rarely include cost information. We assessed the impact of a conversation‐based decision aid containing information about low‐risk prostate cancer management ...
Mary C. Politi, Rachel C. Forcino, Katelyn Parrish, Marie‐Anne Durand, A. James O'Malley, Rachel Moses, Krista Cooksey, Glyn Elwyn   +7 more
doaj   +1 more source

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Amsterdam wrist rules: A clinical decision aid

BMC Musculoskeletal Disorders, 2011
Background Acute trauma of the wrist is one of the most frequent reasons for visiting the Emergency Department. These patients are routinely referred for radiological examination. Most X-rays however, do not reveal any fractures. A clinical decision rule
Bentohami Abdelali, Walenkamp Monique MJ, Slaar Annelie, Beerekamp M Suzan H, de Groot Joris AH, Verhoog Eva M, Jager L Cara, Maas Mario, Bijlsma Taco S, van Dijkman Bart A, Schep Niels WL, Goslings Carel J   +11 more
doaj   +1 more source

Problem with patient decision aids

BMJ Evidence-Based Medicine, 2020
Patient decision aids are evidence-based tools designed to help patients make specific and deliberated choices among healthcare options. Research shows that patient decision aids increase knowledge, accuracy of risk perceptions, alignment of care with patient values and preferences, and patient involvement in decision making. Some patient decision aids
Joshua R Zadro, Adrian C Traeger, Simon Décary, Mary O'Keeffe   +3 more
openaire   +2 more sources

Shared Decision Making and the Use of Decision Aids [PDF]

Deutsches Ärzteblatt international, 2015
In shared decision making (SDM), the patient and the physician reach decisions in partnership. We conducted a trial of SDM training for physicians who treat patients with cancer.Physicians who treat patients with cancer were invited to participate in a cluster-randomized trial and carry out SDM together with breast or colon cancer patients who faced ...
Martin, Härter, Angela, Buchholz, Jennifer, Nicolai, Katrin, Reuter, Fely, Komarahadi, Levente, Kriston, Birgit, Kallinowski, Wolfgang, Eich, Christiane, Bieber   +8 more
openaire   +2 more sources

Clinical and Biological Features of Response in Resistant Neuroblastoma to 131I‐Metaiodobenzylguanidine Radiotherapy in the Anti‐GD2 Immunotherapy Era

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background 131I‐metaiodobenzylguanidine (131I‐MIBG) radiotherapy is a key treatment for relapsed and refractory (R/R) neuroblastoma (NB). Patients with R/R disease treated in the modern era are increasingly exposed to anti‐GD2 immunotherapy, which exerts selective pressure and may modify both tumor cell state and microenvironment.
Benjamin J. Lerman, Katherine K. Matthay, Fabienne Hollinger, Catriona Black, Ann A. Lazar, Miguel Pampaloni, Steven G. DuBois, Kieuhoa T. Vo   +7 more
wiley   +1 more source