Results 51 to 60 of about 433,654 (311)

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook, Veerain Gupta, Nicholas J. Clark, Vijay Rings, Lauren E. Corona, Douglass B. Clayton, Daniel J. Benedetti   +6 more
wiley   +1 more source

Making shared decision-making (SDM) a reality: protocol of a large-scale long-term SDM implementation programme at a Northern German University Hospital

BMJ Open, 2020
Introduction Shared decision-making (SDM) is not yet widely used when making decisions in German hospitals. Making SDM a reality is a complex task. It involves training healthcare professionals in SDM communication and enabling patients to actively ...
Leonie Sundmacher, Anna Novelli, Marion Danner, Friedemann Geiger, Kai Wehkamp, Jens Ulrich Rueffer, Christine Kuch, Tove Skjelbakken, Anne Rummer, Marie Debrouwere, Fueloep Scheibler   +10 more
doaj   +1 more source

Heterogeneity in the Global Practice of Central Nervous System Staging in Pediatric Acute Lymphoblastic Leukemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Central nervous system (CNS) involvement in childhood acute lymphoblastic leukemia (ALL) is assessed by cell counting and cytomorphology from cerebrospinal fluid (CSF) and is used for treatment stratification worldwide. The ratio of “CNS2” patients in clinical trials ranges from 3% to 40%, with unclear prognostic significance ...
Laura Almási, Bernadett Borbála Huszti, Gábor Barna, Marko Kavcic, Janez Jazbec, Lennart Lenk, Vera Münch, Sophia Polychronopoulou, Ágnes Márk, Maria Thastrup, Lüder H. Meyer, Kjeld Schmiegelow, Cornelia Eckert, Christina Halsey, Dániel J. Erdélyi   +14 more
wiley   +1 more source

Shared decision making between registrars and patients : web based decision aids [PDF]

, 2007
BACKGROUND: Current evidence suggests that doctors do not always involve patients in decisions; this may be due to lack of training. This study explores the feasibility of using web based decision aids (DAs) to improve the skills of general practice ...
Heal, C., Nan Tie, Rod, Evans, R., Evans, Rebecca, Heal, Clare, Tie, R. N., Thistlethwaite, Jill, Thistlethwaite, J.   +7 more
core  

Patient Expectancy of Shared Decision Making according to Ego States in Primary Care [PDF]

Objective: Shared decision-making (SDM) is a clinical approach that involves presenting options to the patient, providing comprehensive information about these options, and actively engaging in the decisionmaking process.
Genco Görgü, Vildan Mevsim
core   +1 more source

Towards generic online multicriteria decision support in patient-centred health care. [PDF]

, 2013
OBJECTIVE: To introduce a new online generic decision support system based on multicriteria decision analysis (MCDA), implemented in practical and user-friendly software (Annalisa©). BACKGROUND: All parties in health care lack a simple and generic way to
Salkeld, Glenn, Jack Dowie, Kaltoft, Mette Kjer, Kjer Kaltoft, Mette, Dowie, Jack, Michelle Cunich, Mette Kjer Kaltoft, Cunich, Michelle, Glenn Salkeld   +8 more
core   +1 more source

Patient participation in shared decision‐making in palliative care – an integrative review [PDF]

, 2021
Background Shared decision-making is a process where the decisions regarding patients' care are done in collaboration with the patient, the patient's family and a healthcare professional or an interdisciplinary team.
Kuosmanen, Lotta, Lotta Kuosmanen, Elina Haavisto, Satu Ahtiluoto, Hupli, Maija, Ahtiluoto, Satu, Maija Hupli, Haavisto, Elina   +7 more
core   +1 more source

The Role of Hematopoietic Cell Transplantation in Ataxia‐Telangiectasia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Ataxia‐telangiectasia (A‐T) is a DNA repair disorder characterized by neurodegeneration, immunodeficiency, and cancer predisposition. Hematopoietic cell transplantation (HCT) is an established therapy in related disorders such as Fanconi anemia (FA) and Nijmegen breakage syndrome (NBS), but its role in A‐T is unclear.
Laila Alkhouli, Seth Rotz, Masatoshi Takagi, Richa Sharma   +3 more
wiley   +1 more source

Shared decision making in head neck cancer

Oral Oncology Reports, 2023
Shared decision making (SDM) has been presented as an ethical framework for cancer care decision making. It is, however, difficult to apply and lacks practicality.
Shrikant B. Mali
doaj   +1 more source

Increased Risk of Sarcomas in Children With Congenital Anomalies: Findings From the Genetic Overlap Between Anomalies and Cancer in Kids (GOBACK) Registry Linkage Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric sarcomas are a heterogeneous group of tumors that contribute disproportionately to cancer mortality in children. Although congenital anomalies are among the strongest known risk factors for childhood cancer, the risk of specific sarcoma subtypes among affected individuals has not yet been thoroughly evaluated. Procedure We
Russ Wolters, Ji Yun Tark, Tiffany M. Chambers, Tania A. Desrosiers, Michael E. Scheurer, Charles Shumate, Wendy N. Nembhard, Mahsa M. Yazdy, Eirini Nestoridi, Amanda E. Janitz, Jean Paul Tanner, Russell S. Kirby, Jason L. Salemi, Yao Yu, Chad D. Huff, Sharon E. Plon, Philip J. Lupo, Jeremy M. Schraw   +17 more
wiley   +1 more source