Task description of external ethics advisor
Task description of external ethics ...
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Descriptive Research is a Necessity for Ethics
Faced with evermore advancing medical technologies, bioethicists are being asked to provide more insights. The difficulty faced by bioethicists is that there is a wide gap between ethics, which tends to appreciate universal values more as a discipline, and the real situation, in whichvalues appear to be in a constant flux.
openaire
Remote Monitoring in Myasthenia Gravis: Exploring Symptom Variability
ABSTRACT Background Myasthenia gravis (MG) is a rare, autoimmune disorder characterized by fluctuating muscle weakness and potential life‐threatening crises. While continuous specialized care is essential, access barriers often delay timely interventions. To address this, we developed MyaLink, a telemedical platform for MG patients.
Maike Stein +13 more
wiley +1 more source
Public Perceptions of Ethical and Professional Practice in Jordanian Community Pharmacies: A Cross-Sectional Study. [PDF]
Jarad OF +4 more
europepmc +1 more source
Predicting Loss of Ambulation in Limb Girdle Muscular Dystrophy R9
ABSTRACT Background Limb girdle muscular dystrophy type R9 (LGMDR9) results from biallelic variants in FKRP. There is limited data to predict loss of ambulation (LOA) among those with LGMDR9. Methods Participants in an ongoing dystroglycanopathy natural history study (NCT00313677) with FKRP variants who had achieved ambulation and were more than 3 ...
Chandra L. Miller +6 more
wiley +1 more source
Consumer Perceptions of Oxidation-Related Effects on Facial Skin Aging and Skincare Product Features. [PDF]
Chua K, Shi S, Lua BL.
europepmc +1 more source
Real‐World Performance of CSF Kappa Free Light Chains in the 2024 McDonald Criteria
ABSTRACT Objective Kappa free light chains (KFLCs) in the cerebrospinal fluid (CSF) have a similar performance to CSF‐restricted oligoclonal bands (OCB) for multiple sclerosis (MS) diagnosis. To help with implementation, we set out to resolve several remaining uncertainties: (1) performance in a real‐world cohort and the 2024 McDonald criteria; (2 ...
Maya M. Leibowitz +11 more
wiley +1 more source
The evidence base of supplementary feeding programmes and SBCC interventions on nutritional and behavioural outcomes globally: a scoping review protocol. [PDF]
Gupta N +12 more
europepmc +1 more source
Applying an Ethical Lens to the Treatment of People With Multiple Sclerosis
ABSTRACT The practice of neurology requires an understanding of clinical ethics for decision‐making. In multiple sclerosis (MS) care, there are a wide range of ethical considerations that may arise. These involve shared decision‐making around selection of a disease‐modifying therapy (DMT), risks and benefits of well‐studied medications in comparison to
Methma Udawatta, Farrah J. Mateen
wiley +1 more source
Ethical Challenges and Considerations in Dysphagia Management: A Scoping Review. [PDF]
Naudé A, Kanji A.
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