Results 121 to 130 of about 1,262,540 (239)

Parent/Caregiver Perspectives on the Healthcare Decision‐Making Involvement of Young People With Intellectual Disability: A Qualitative Study

open access: yesJournal of Intellectual Disability Research, EarlyView.
ABSTRACT Background Young people with intellectual disability often have complex healthcare needs. Parent/caregivers can enhance their child's involvement in healthcare decision‐making to improve treatment adherence and health outcomes. Healthcare decision‐making is embedded within health literacy skillsets, and for people with intellectual disability ...
Jessica Keeley   +9 more
wiley   +1 more source

A Case of Kaposi-Juliusberg Syndrome Complicating DRESS Syndrome

open access: yes
Kaposi-Juliusberg syndrome (eczema herpeticum) and DRESS (Drug Reaction with Eosinophilia and Systemic Symptoms) syndrome are two severe dermatological emergencies. Their rare, if not exceptional, co-occurrence carries high morbidity and requires urgent,
H. Hassan   +4 more
core   +1 more source

Parents’ and Caregivers’ Experiences of Procedural Holding and Restraint: ‘We Want To Be Their Safe Place and Not Associated With Medical Trauma’: A Qualitative Descriptive Study

open access: yesJournal of Clinical Nursing, EarlyView.
ABSTRACT Aim To explore parent/caregivers’ perceptions of procedures in which their child was held still and the reported impact of these experiences on both the child and parent. Design Qualitative descriptive study using an online survey. Methods Three research teams (United Kingdom (UK), New Zealand (NZ), and Australia) administered a qualitative ...
Lucy Bray   +7 more
wiley   +1 more source

Guises of Despair

open access: yes
European Journal of Philosophy, EarlyView.
Béatrice Han‐Pile
wiley   +1 more source

Development of Multidisciplinary Consensus‐Informed Guidance for the Management of Paediatric Stevens–Johnson Syndrome and Toxic Epidermal Necrolysis Among Clinicians From Australasian Tertiary Referral Hospitals

open access: yesJournal of Paediatrics and Child Health, EarlyView.
ABSTRACT Background Paediatric Stevens–Johnson syndrome/toxic epidermal necrolysis (SJS/TEN) is a rare, severe mucocutaneous reaction requiring coordinated multidisciplinary care. Existing guidelines provide evidence‐based recommendations, but implementation across tertiary paediatric hospitals requires practical consensus on local resources.
Patrick David Mahar   +32 more
wiley   +1 more source

CHARGE Syndrome: A Narrative Review and Update on Diagnosis, Assessment and Management

open access: yesJournal of Paediatrics and Child Health, EarlyView.
ABSTRACT Background CHARGE syndrome (CS) is a rare multisystemic genetic condition caused by a pathogenic variant in the DNA‐binding protein‐7 CHD7 gene. The condition affects the development of neural crest cells, which give rise to craniofacial structures, cranial nerves, ears, eyes and the heart, resulting in diverse and complex clinical features ...
Eleni M. van Gelder   +7 more
wiley   +1 more source

Clinical outcomes of lateral ear canal resection performed in routine clinical practice for chronic otitis externa in dogs: a retrospective descriptive study of 58 ears (2016‐2025)

open access: yesJournal of Small Animal Practice, EarlyView.
Objectives To retrospectively evaluate the long‐term clinical outcomes of lateral ear canal resection performed as part of routine clinical practice for chronic otitis externa in dogs, and to re‐evaluate the practical utility of lateral ear canal resection from the perspective of contemporary treatment goals emphasising long‐term maintenance of a ...
K. Kiriki, A. Yabuzoe, K. Iyori
wiley   +1 more source

"Sweet girl graduate" dress

open access: yes, 1920
Fashionable Dress Pattern Company pattern 7482 to make a "sweet girl graduate" dress with paneled short skirt and bertha collar, including illustrations of the finished pieces and information about sizing and construction on the ...
Fashionable Dress Pattern Company
core  

The (trans)national Russian religious imagination in exile: Iulia de Beausobre (1893‐1977)

open access: yesModern Theology, EarlyView.
Abstract The article offers a case study of how Russian Orthodox who migrated from the Soviet Union after the Bolshevik Revolution of 1917 reimagined their religious identity and their church in a transnational setting. Iulia de Beausobre (1893‐1977) was a Russian aristocrat who fell victim to the Stalinist purges but survived the Soviet prison system ...
Ruth Coates
wiley   +1 more source

The Lived Experience of Children and Adults with Overweight or Obesity Engaging in Weight Management Treatments: An Umbrella Scoping Review with Narrative Synthesis

open access: yesObesity Reviews, EarlyView.
ABSTRACT Introduction Understanding the lived experience of people with overweight or obesity is essential to ensure that interventions are free from weight stigma, avoid adverse consequences including eating disorder pathology, increase engagement, and promote culturally sensitive approaches to care. We aimed to synthesize published review evidence of
Cecelia MacFarling Meure   +14 more
wiley   +1 more source

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