Results 91 to 100 of about 881,254 (308)
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu +8 more
wiley +1 more source
Rivista Italiana di Informatica e DirittoThe paper analyses the efficacy of digital platforms for deliberative and participatory democracy in enhancing democracy. After examining the concepts of deliberative and participatory democracy (§IA), particularly their meaning from a legal standpoint ...
Teresa Balduzzi, Livia Siclari
doaj +1 more source
Relevance of E-Participation in the state health campaign in Spain: #EstoNoEsUnJuego / #ThisIsNotAGame. [PDF]
Technol Soc, 2022 Santoveña-Casal S, Pérez MDF.
europepmc +1 more source
Evaluation of E-Participation Efficiency with Biodiversity Measures - the Case of the Digital Agenda Vienna [PDF]
, 2015 We introduce the Effective Number of Issues measure for e-participation efficiency. This novel index is based on the Shannon entropy measure of biodiversity and summarizes the amount of information gained through an e-participation project in one number.
Leo, Hannes, May, John, Taudes, Alfred
core
Rewarding the Factory Workers: How to Select the Right Measures for an Effective Pay-for-Performance System [PDF]
, 2017 Aims: A Performance related pay (PRP) plan rewards employees with a financial payment, either consolidated or non consolidated, following an assessment of their performance and, typically, the achievement of objectives.
Biazzo S. +2 more
core +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee +9 more
wiley +1 more source
Relating Social Media Diffusion, Education Level and Cybersecurity Protection Mechanisms to E-Participation Initiatives: Insights from a Cross-Country Analysis. [PDF]
Inf Syst Front, 2023 Ahangama S.
europepmc +1 more source
Limitations of the e-Participation
Central and Eastern European eDem and eGov Days, 2018 e-Participation was considered to be proper solution for the long term decline of political participation at different levels. However, recent events show that there is very limited space for the political participation, which is considered to be functional. The paper explores the changes in citizens' participation after the introduction of different e-
openaire +2 more sources
A co-original approach towards law-making in the internet age [PDF]
, 2012 There is an increasing interest in incorporating significant citizen participation into the law-making process by developing the use of the internet in the public sphere. However, no well-accepted e-participation model has prevailed.
Chen, Chi Shing
core
Defining Roles in Pediatric Palliative Care: Perspectives From Oncology and Palliative Care Teams
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Early integration of pediatric palliative care (PPC) is associated with improved symptom management, quality of life, and healthcare utilization for children with cancer. Despite this, variation persists in how PPC is understood, operationalized, and integrated within pediatric oncology programs. In particular, ambiguity surrounding
Leeat Granek +13 more
wiley +1 more source