Results 81 to 90 of about 888,701 (261)

Tracking Health Related Quality of Life From Diagnosis to Follow‐Up Among Australian Children With Acute Lymphoblastic Leukaemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Acute lymphoblastic leukaemia (ALL) is one of the most treatable forms of paediatric cancer; however, there is a substantial burden of treatment‐related toxicities (TRTs). In addition, the long‐term changes in children's health‐related quality of life (HRQoL) due to toxic treatments are not well understood.
Clare Ghows, Clarissa E. Schilstra, Karen McCleary, Nancy E. Briggs, Rishi S. Kotecha, Richard De Abreu Lourenco, Shanti Ramachandran, Ruelleyn Cockcroft, Rachel Conyers, Siobhan Cross, Luciano Dalla‐Pozza, Peter Downie, Tamas Revesz, Michael Osborn, Frank Alvaro, Claire E. Wakefield, Glenn M. Marshall, Toby Trahair, Marion K. Mateos, Joanna E. Fardell   +19 more
wiley   +1 more source

Do Trees Really Make a Difference to Our Perceptions of Streets? An Immersive Virtual Environment E-Participation Streetscape Study

Land
Urban streets, constituting the majority of public space, are often designed to prioritise vehicular movement over the pedestrian experience, leading to environments that can feel unsafe and unwelcoming.
Marcus White, Nano Langenheim, Tianyi Yang, Hussein Dia, Ian Woodcock, Jeni Paay   +5 more
doaj   +1 more source

Clinical, Histopathological, and Molecular Characterization of Pediatric MN1::ZNF341‐Associated Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT A lethal round‐cell malignancy with an MN1::ZNF341 fusion has recently been reported in three infants. Here, we describe four further tumors, three in newborns (including monozygotic twins), and one in an adolescent. Detailed clinical, radiological, and histopathological data differentiate these tumors from their main mimics, neuroblastoma and
Thomas R. W. Oliver, Dyanne Rampling, Barbara Walkowiak, Nathaniel D. Anderson, Manas Dave, Henry Lee‐Six, Sadie Baskind, Pooja Balasubramanian, Glenn Anderson, Conor Parks, Toochi Ogbonnah, Emilia R. Robertson, Simon Hannam, Rohan Verma, John C. Achermann, Liina Palm, Neil Sebire, Thomas Jacques, Tom Watson, Carryl Dryden, Karin Straathof, Mette Jorgensen, Olga Slater, Sam Behjati, Sarita Depani, J. Ciaran Hutchinson   +25 more
wiley   +1 more source

Epistemology of e-democracy and e-governance through scientific mapping

Tourism & Management Studies
This paper aims to address the current limitations in knowledge about e-democracy by establishing the conceptual, intellectual, and social structure of scientific literature.
Esther García-Río , Pedro Baena-Luna
doaj  

Conceptual Framework for Enhancing Government-Citizen Engagement Amid Digital Transformation in Contemporary Russia

RUDN Journal of Political Science
Optimizing government-citizen engagement amid Russia’s digital transformation requires a comprehensive approach that extends beyond technological solutions.
Svetlana S. Morozova
doaj   +1 more source

A Metamodel for the E-Participation Reference Framework

, 2016
E-participation projects are complex socio-technical constructs integrating different concepts such as participation techniques, stakeholders, objectives, information artefacts, and technical facilities. To conceptualise comprehensive solutions of e-participation projects in a holistic way – i.e.
Sabrina Scherer, Maria A. Wimmer
openaire   +2 more sources

Solid Pseudopapillary Neoplasm of the Pancreas in Children and Adolescents: Expert Recommendations

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Solid pseudopapillary neoplasm of the pancreas (SPN) is a rare low‐grade malignant exocrine pancreatic tumor, mostly discovered during the second decade of life in females, with a very good prognosis, provided microscopically complete surgical excision is achieved.
Sabine Irtan, Michael Abele, Calogero Virgone, Michaela Kuhlen, Ricardo Lopez‐Almarez, Tal Ben‐Ami, Ewa Bien, Maja Cesen, Malgorzata A. Krawczyk, Andrea Ferrari, Gianni Bisogno, Yves Reguerre, Dominik T. Schneider, Louise Galmiche, Jorg Fuchs, Sarah Braungart, Bilgehan Yalcin, Ines B. Brecht, Daniel Orbach   +18 more
wiley   +1 more source

E-Participation for the Net-Zero Transition: Designing for Youth Engagement in E-Participation Systems

, 2023
Klimaendringene har stadig mer omfattende globale konsekvenser, og det kreves umiddelbar handling for å oppnå målene fastsatt i Parisavtalen. For å begrense global oppvarming til 1,5 °C, må utslippene reduseres med 45% innen 2030 og nå netto null innen 2050.
Slorer, Isabel Sørheim, Hansen, Benedicte Kaltoft   +1 more
openaire   +2 more sources

Bridging the Gap in Neuroblastoma Care: Consensus‐Based Statements With Recommendations for Improved Patient and Caregiver Experiences

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Neuroblastoma's complex, heterogeneous biology poses significant diagnostic and therapeutic challenges, often requiring caregivers to absorb complex information and participate in time‐sensitive decisions. However, caregivers often feel unprepared to evaluate options.
Vickie Buenger, Joseph Bauer, Jennifer Diamond, Maggie Fader, Shae Hansen, Jacqueline M. Kraveka, Johanna Schoen, Amber Shearer, Dena Sherwood   +8 more
wiley   +1 more source

E-Participation in the Shadow of the Digital Divide in Rural South African Municipalities

Jejaring Administrasi Publik
Digital transformation, spatial planning and service delivery in the Global South remains a key focus of public administration scholarship. Yet, much of the literature examines governance challenges in a fragmented manner, overlooking interconnected ...
John Mamokhere
doaj   +1 more source