Results 81 to 90 of about 330 (144)

Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future collaborations. [PDF]

BMJ Open, 2020
Roennow A, Sauvé M, Welling J, Riggs RJ, Kennedy AT, Galetti I, Brown E, Leite C, Gonzalez A, Portales Guiraud AP, Houÿez F, Camp R, Gilbert A, Gahlemann M, Moros L, Luna Flores JL, Schmidt F, Sauter W, Finnern H.   +18 more
europepmc   +1 more source

Pain and Self-Efficacy Among Patients With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study. [PDF]

Nurs Res, 2021
Wojeck RK, Silva SG, Bailey DE, Knisely MR, Kwakkenbos L, Carrier ME, Nielson WR, Bartlett SJ, Pope J, Thombs BD.   +9 more
europepmc   +1 more source

Association between rheumatology patients' beliefs about medicines and treatment adherence. [PDF]

Rev Esc Enferm USP
Kin ÖK, Tolasa AG.
europepmc   +1 more source

Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study. [PDF]

J Psychosom Res, 2021
Wu Y, Kwakkenbos L, Henry RS, Carrier ME, Gagarine M, Harb S, Bourgeault A, Tao L, Carboni-Jiménez A, Negeri Z, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD, SPIN Patient Advisors, SPIN Investigators.   +17 more
europepmc   +1 more source

Síndrome de Evans Fisher asociado con esclerodermia

Revista Cubana de Hematología, Inmunología y Hemoterapia
El síndrome de Evans Fisher, descrito por primera vez en 1951, es un desorden autoinmune caracterizado por la presencia simultánea o secuencial de anemia hemolítica, trombocitopenia inmune y, en ocasiones, neutropenia inmune; con una prueba de ...
Adrián Romero-González, Mildrey Gil-Agramonte, Alfredo Ortiz-Labrada, Madeleyne Tamayo-Rodríguez, Vladimir Felinciano Álvarez, Julio César Suárez-Castillo, Julio H Gutiérrez-Lago   +6 more
doaj  

Fundamentals of Acute Pericarditis: State of the Art. [PDF]

Arq Bras Cardiol
Mangas GM, Rodriguez JGV, Santos JARBD, Souza FNB, Silva LFLD, Azevedo Junior GL, Chivaca A, Jessen NPJ, Oliveira Â, Mesquita ET.   +9 more
europepmc   +1 more source

An integrated approach for rare disease detection and classification in Spanish pediatric medical reports. [PDF]

Sci Rep
Duque A, Araujo L, Martinez-Romo J, Esteban-Vasallo MD, Domínguez-Berjón MF, Malillos Perez D.   +5 more
europepmc   +1 more source

Complement activation in atypical hemolytic uremic syndrome and scleroderma renal crisis: a critical analysis of pathophysiology. [PDF]

J Bras Nefrol, 2018
Zuckerman R, Asif A, Costanzo EJ, Vachharajani T.   +3 more
europepmc   +1 more source

Spontaneous Recurrent Pneumoperitoneum in Systemic Sclerosis. [PDF]

GE Port J Gastroenterol, 2017
Barbeiro S, Atalaia-Martins C, Gonçalves C.   +2 more
europepmc   +1 more source

[Usefulness of Mean Nocturnal Basal Impedance in Patients with Suspected Non-Erosive Gastroesophageal Reflux Disease Refractory to Proton Pump Inhibitors]. [PDF]

Acta Gastroenterol Latinoam, 2022
Manresa M, Uehara T, Hashimoto H, Montero J, González Ballerga E, Tevez A.   +5 more
europepmc   +1 more source