Results 41 to 50 of about 1,306,145 (264)

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

The Bari Manifesto: An interoperability framework for essential biodiversity variables [PDF]

Ecological Informatics, 2019
Essential Biodiversity Variables (EBV) are fundamental variables that can be used for assessing biodiversity change over time, for determining adherence to biodiversity policy, for monitoring progress towards sustainable development goals, and for tracking biodiversity responses to disturbances and management interventions.
Alex R. Hardisty, William K. Michener, Donat Agosti, Enrique Alonso García, Lucy Bastin, Lee Belbin, Anne Bowser, Pier Luigi Buttigieg, Dora A.L. Canhos, Willi Egloff, Renato De Giovanni, Rui Figueira, Quentin Groom, Robert P. Guralnick, Donald Hobern, Wim Hugo, Dimitris Koureas, Liqiang Ji, Wouter Los, Jeffrey Manuel, David Manset, Jorrit Poelen, Hannu Saarenmaa, Dmitry Schigel, Paul F. Uhlir, W. Daniel Kissling   +25 more
openaire   +8 more sources

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Clinical and Biological Features of Response in Resistant Neuroblastoma to 131I‐Metaiodobenzylguanidine Radiotherapy in the Anti‐GD2 Immunotherapy Era

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background 131I‐metaiodobenzylguanidine (131I‐MIBG) radiotherapy is a key treatment for relapsed and refractory (R/R) neuroblastoma (NB). Patients with R/R disease treated in the modern era are increasingly exposed to anti‐GD2 immunotherapy, which exerts selective pressure and may modify both tumor cell state and microenvironment.
Benjamin J. Lerman, Katherine K. Matthay, Fabienne Hollinger, Catriona Black, Ann A. Lazar, Miguel Pampaloni, Steven G. DuBois, Kieuhoa T. Vo   +7 more
wiley   +1 more source

Taking stock of nature: Essential biodiversity variables explained [PDF]

Biological Conservation, 2017
In 2013, the Group on Earth Observations Biodiversity Observation Network (GEO BON) developed the framework of Essential Biodiversity Variables (EBVs), inspired by the Essential Climate Variables (ECVs). The EBV framework was developed to distill the complexity of biodiversity into a manageable list of priorities and to bring a more coordinated ...
Brummitt, N., E. Regan, L.V. Weatherdon, C. Martin, I.R. Geijzendorffer, D. Rocchini, Y. Gavish, P. Haase, C.J. Marsh, D.S. Schmeller   +10 more
openaire   +5 more sources

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

Web of interactions among diversity approaches to identify ecosystem essential variables: Negev Highlands case study

Ecosphere, 2019
The concept of ecosystem diversity essential variables (EEVs) offers a foundation for ecosystem studies. Identification of EEVs continues to be a challenge in the field of ecology, due to the lack of a conceptual and applied framework.
Shayli Dor‐Haim, Daniel E. Orenstein, Moshe Shachak   +2 more
doaj   +1 more source

Integrated Observations and Informatics Improve Understanding of Changing Marine Ecosystems

Frontiers in Marine Science, 2018
Marine ecosystems have numerous benefits for human societies around the world and many policy initiatives now seek to maintain the health of these ecosystems.
Abigail Benson, Cassandra M. Brooks, Gabrielle Canonico, Emmett Duffy, Frank Muller-Karger, Heidi M. Sosik, Patricia Miloslavich, Patricia Miloslavich, Eduardo Klein   +8 more
doaj   +1 more source

Evidence-based alignment of conservation policies with remote sensing-enabled essential biodiversity variables

Ecological Indicators, 2021
Nature conservation policies require up-to-date and accurate biodiversity monitoring. Innovative synoptic information products such as Remote Sensing-enabled Essential Biodiversity Variables (RS-enabled EBVs) could complement field observations in ...
M.C. Lock, A.K. Skidmore, I. van Duren, C.A. Mücher   +3 more
doaj   +1 more source

Venous Thromboembolism in Pediatric Bone Sarcoma Patients: A 10‐Year, Single‐Institution Experience Encompassing the COVID‐19 Pandemic

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Osteosarcoma (OS) and Ewing sarcoma (EWS) are the most common primary bone cancers in children, but acute thrombosis is poorly characterized in this population. Our study evaluated the rates of venous thromboembolism (VTE) and associated risk factors in pediatric patients with bone sarcomas treated over a 10‐year period encompassing
Sarah Kappa, Shou Xu, Mark Zobeck, Sarah E. Sartain, Nino Rainusso, Lisa Wang, Nicole Montgomery, Paige Wheaton, Sarah Whittle   +8 more
wiley   +1 more source