Results 91 to 100 of about 2,911,636 (265)

Sharing EHR data of patients with rare diseases for research - The role of quality assessments in a national federated research data infrastructure

BMC Medical Informatics and Decision Making
Background To obtain sufficient data for clinical research on Rare Diseases (RDs), the project “Collaboration on Rare Diseases” (CORD-MI) has connected 24 University Medical Centers (UMCs) in Germany.
Kais Tahar, Raphael Verbuecheln, Tamara Martin, Holm Graessner, Stephanie Biergans, Dagmar Krefting   +5 more
doaj   +1 more source

Evaluation of FAIR Principles in Indigenous Water-Climate-Environment (WCE) Data Repositories

Data Science Journal
Data-driven research on water resource planning and management of US reservation lands faces substantial challenges owing to a lack of accessible, updated, and integrated scientific data.
Parisa Sarzaeim, Grace Bulltail
doaj   +1 more source

Patients improve, patterns persist: longitudinal stability of RA joint involvement patterns

Arthritis Care &Research, Accepted Article.
Objective Rheumatoid arthritis is a heterogeneous disease. Data‐driven approaches, from synovial histology to joint involvement patterns (JIPs), have sought to define clinically meaningful subgroups. Whether these subgroups represent stable phenotypes or transient disease states remains unclear.
Tjardo Maarseveen, Yasuo Nagafuchi, Kristina Lend, Seyam Alemyar, Herman Kasper Glas, Gerdur Gröndal, Bjorn Gudbjornsson, Espen A. Haavardsholm, Kim Hørslev Petersen, Jon Lampa, Merete Lund Hetland, Dan Nordström, Mike Nurmohamed, Mikkel Østergaard, Anna Rudin, Marte Schrumpf Heiberg, Tuulikki Sokka‐Isler, Till Uhlig, Josien Veris‐van Dieren, Ronald van Vollenhoven, Tom Huizinga, Marcel JT Reinders, Sytske Anne Bergstra, Erik van den Akker, Rachel Knevel   +24 more
wiley   +1 more source

FAIR Principles: Interpretations and Implementation Considerations [PDF]

, 2019
The FAIR principles have been widely cited, endorsed and adopted by a broad range of stakeholders since their publication in 2016. By intention, the 15 FAIR guiding principles do not dictate specific technological implementations, but provide guidance ...
Guizzardi, G., Mons, Barend, Kryger-Hansen, Karsten, Jacobsen, A., Magagna, Barbara, Hansen, Karsten Kryger; id_orcid, Kuhn, T., Evelo, C.T., Labastida i Juan, Ignasi, 1970-, Kirkpatrick, Christine R., Bonino da Silva Santos, Luiz Olavo, Hasnain, A., Thompson, M., Hansen, Karsten Kryger, Thompson, Mark, Kersloot, Martijn G., Crosas, M., Coles, Simon J., Reisen, M.E.H. van, Schneider, Juliane, Goble, C., Evelo, Chris T. A., Wittenburg, Peter, Jeffery, K.G., Pergl, Robert, Strawn, George, Imming, Melanie, Santos, Luiz Olavo Bonino da Silva, Labastida, I., Kersloot, Martijn, Crosas, Mercè, Dumontier, Michel, Dumontier, M., Hooft, R.W.W., Wilkinson, Mark D., Wittenburg, P., Jacobsen, Annika, Schultes, Erik, Olavo Bonino da Silva Santos, L., Cornet, R., Heringa, Jaap, Hooft, Rob W.w., Hooft, Rob W. W., Juty, Nick, Miranda Azevedo, Ricardo de, Kersloot, M.G., Guizzardi, Giancarlo, Strawn, G., Schultes, E., Mons, B., Jeffery, Keith, Roos, Marco, McQuilton, P., Willighagen, Egon, Kirkpatrick, C.R., Magagna, B., Jeffery, Keith G., Kaliyaperumal, R., Miranda Azevedo, R. de, Batista, D., Weigel, Tobias, Dumontier, Michel; id_orcid, Hansen, Karsten, Montesanti, Annalisa, Coles, Simon, Wilkinson, M.D., Azevedo, Ricardo de Miranda, Roos, M., Guizzardi, Giancarolo, Kuhn, Tobias, Waagmeester, Andra, Sansone, S., De Miranda Azevedo, Ricardo; id_orcid, Willighagen, Egon L., Juty, N., Pergl, R., Cornet, Ronald, Evelo Chris, T., Hettne, Kristina, van-Reisen, Mirjam, Hasnain, Ali, Waagmeester, A., Evelo, Chris T.; id_orcid, Hettne, K., Meyers, Natalie, Kryger Hansen, K., Coles, S., Meyers, N., Weigel, T., Reisen, Mirjam van, Sansone, Susanna Assunta, De Miranda Azevedo, Ricardo, Imming, M., Montesanti, A., Evelo, Chris T., Rocca-Serra, P., Batista, Dominique, Labastida, Ignasi, Courtot, Mélanie, Kaliyaperumal, Rajaram, Schneider, J., Da Silva Santos, Luiz Olavo Bonino, Heringa, J., Courtot, M., Waagmeester, Andra S., Goble, Carole, Willighagen, E., Kryger Hansen, Karsten, Rocca-serra, Philippe, Sansone, Susanna-assunta, Mcquilton, Peter, Van Reisen, Mirjam   +111 more
core   +1 more source

Generative Artificial Intelligence in Clinical Practice: How Should Rheumatologists Evaluate and Monitor Emerging Tools?

Arthritis Care &Research, EarlyView.
Generative artificial intelligence (AI) is increasingly being used in rheumatology practice, to assist with tasks such as documentation, record summarization, and clinical decision support. Rheumatologists need a practical approach to determining what evidence and oversight each application requires.
Koushan Kouranloo, Mrinalini Dey, Jinoos Yazdany   +2 more
wiley   +1 more source

Business and Human Rights: An Oxfam perspective on the UN Guiding Principles [PDF]

, 2013
This briefing outlines the responsibility of businesses to respect human rights under the UN Guiding Principles on Business and Human Rights (UNGPs), also known as the Ruggie Framework. It provides an overview of the UNGPs and gives an Oxfam perspective,
Wilshaw, Rachel, Niven, Sophie, Timms, Bryony   +2 more
core  

FAIR Data Workflow Implementation and Assessment for Ion-Exchange Chromatography in Plasma Science

Data Science Journal
This publication focuses on the implementation of a FAIR (findable, accessible, interoperable, and reusable) data workflow for the analytical method ion-exchange chromatography and its impact on the FAIR compliance of the resulting measurement data.
Robert Wagner, Ron Henkel, Kristina Yordanova, Dagmar Waltemath, Markus M. Becker   +4 more
doaj   +1 more source

Characterization of Defect Distribution in an Additively Manufactured AlSi10Mg as a Function of Processing Parameters and Correlations with Extreme Value Statistics

Advanced Engineering Materials, EarlyView.
Predicting extreme defects in additive manufacturing remains a key challenge limiting its structural reliability. This study proposes a statistical framework that integrates Extreme Value Theory with advanced process indicators to explore defect–process relationships and improve the estimation of critical defect sizes. The approach provides a basis for
Muhammad Muteeb Butt, Varma Kvvssn, Hossein Laieghi, Zia Uddin, Peyman Ansari, E. Kıvanç Sadak, Can Barış Toprak, Hüseyin Kızıl, Enrico Salvati   +8 more
wiley   +1 more source

Principles for Responsible Contracts: PRC 1 Preparation and Planning

, 2023
This chapter is a commentary on Principle 1 of the Principles for Responsible Contracts (PRC). The PRC were endorsed by the United Nations Human Rights Council in 2011 alongside the United Nations Guiding Principles on Business and Human Rights.
MacLeod, Sorcha, Davitti, Daria, Davitti, Daria,, Lund University., MacLeod, Sorcha,, Daria Davitti, Sorcha MacLeod   +6 more
core   +1 more source

A Workflow to Accelerate Microstructure‐Sensitive Fatigue Life Predictions

Advanced Engineering Materials, EarlyView.
This study introduces a workflow to accelerate predictions of microstructure‐sensitive fatigue life. Results from frameworks with varying levels of simplification are benchmarked against published reference results. The analysis reveals a trade‐off between accuracy and model complexity, offering researchers a practical guide for selecting the optimal ...
Luca Loiodice, Krzysztof S. Stopka, Michael D. Sangid   +2 more
wiley   +1 more source