Results 81 to 90 of about 2,911,636 (265)

Achieving FAIR data with Figshare - Webinar

open access: yes, 2019
Born out of a 2014 workshop in The Netherlands, the Data FAIRport initiative was formed to set up ‘Guiding Principles’ for FAIR data management, focusing on principles for the Findability, Accessibility, Interoperability and Reusability of research data ...
Mark Hahnel (96371)
core   +1 more source

Evaluation of Digital Technologies for Home‐Based Assessment in People With Amyotrophic Lateral Sclerosis

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Digital technologies hold promise for transforming healthcare by enhancing personalized treatments and offer valuable opportunities to improve patient care. Here, we evaluated several novel, self‐administered, home‐based, digital endpoints for their association with corresponding conventional standard clinical measures (primary) in ...
Arne Mueller   +14 more
wiley   +1 more source

Usage of persistent identifiers to implement the FAIR guiding principles in medical research data management systems

open access: yes, 2018
Introduction: Within the scope of medical research projects, the awareness of impactful and long-term data management has been steadily growing in recent years [ref:1]. Due to the increasing expansion of multi-center research projects, the requirements for data management regarding collaboration,[for full text, please go to the a.m. URL]
Knopp, Cornelius   +3 more
openaire   +2 more sources

White Matter Microstructural Abnormalities in Neonatal Onset Genetic Epilepsy

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Recent evidence indicates that epilepsy is associated with abnormal white matter. If seizures alter white matter, then the impact upon network function, epileptogenesis, and cognition could be pronounced in neonates undergoing rapid developmental myelination. Neonates with epilepsy due to nonstructural genetic causes provide a unique
Amanda G. Sandoval Karamian   +8 more
wiley   +1 more source

FAIR Digital Objects for Science: From Data Pieces to Actionable Knowledge Units

open access: yesPublications, 2020
Data science is facing the following major challenges: (1) developing scalable cross-disciplinary capabilities, (2) dealing with the increasing data volumes and their inherent complexity, (3) building tools that help to build trust, (4) creating ...
Koenraad De Smedt   +2 more
doaj   +1 more source

Characterizing Cutaneous α‐Synuclein Deposition and Seeding Activity in Parkinson's Disease Subtypes

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Cutaneous phosphorylated α‐synuclein (p‐syn) and α‐synuclein seeding activity are promising biomarkers for Parkinson's disease (PD), but their clinical value remains uncertain due to disease heterogeneity. This study evaluates these two biomarkers in PD patients to inform phenotype‐specific diagnosis and disease severity assessment ...
Yuting Jin   +8 more
wiley   +1 more source

Guiding Principle 12: Minimum Human Rights Standards for Pillar II

open access: yes, 2023
This chapter is a commentary on Principle 12 of the United Nations Guiding Principles on Business and Human Rights (UNGPs). The UNGPs, endorsed by the United Nations Human Rights Council in 2011, are the first universally accepted framework for ...
Joseph, Sarah, Sarah Joseph
core   +1 more source

Balancing FAIR Data Principles with GDPR Compliance: A Guide for Researchers

open access: yes
All research data should be FAIR—Findable, Accessible, Interoperable, and Reusable — and as open as possible. However, much research data contains personal data that falls under the General Data Protection Regulation (GDPR). Many researchers expressed concerns that the GDPR could conflict with the FAIR principles, especially with regard to the sharing,
Vipavc Brvar, Irena, Gogl, Simon
openaire   +2 more sources

Temporal Interference Stimulation of Centromedian‐Parafascicular Complex in Disorders of Consciousness: A Pilot Study

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Treatment of disorders of consciousness (DoC) remains a major clinical challenge, and noninvasive, targeted modulation of deep brain structures has emerged as a promising therapeutic strategy. We aimed to evaluate the feasibility/safety and preliminary effects of thalamic temporal interference stimulation (TIS) targeting centromedian‐
Gengyao Hu   +7 more
wiley   +1 more source

Guiding Principles in Physics [PDF]

open access: yes
Guiding principles are central to theory development in physics, especially when there is only limited empirical input available. Here I propose an approach to such principles looking at their heuristic role.
Fischer, Enno
core   +1 more source

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