Results 111 to 120 of about 250,105 (310)

The Meaning of Family's Adaptation Experiences Among Schizophrenia Caregivers in the Tidal Flood Areas in Indonesia: A Phenomenology Study

SAGE Open Nursing
Introduction Caring for patients who have schizophrenia in tidal floods requires more effort than patients who have schizophrenia in non-tidal flood areas.
Eka Budiarto M.Kep., Sp.Kep.J, Mustikasari SKp., MARS   +1 more
doaj   +1 more source

Essential, Yet Precarious, Mistreated, Sick and Medicalized: A Sequential Explanatory Mixed‐Methods Study on Homecare Aides in Spain

American Journal of Industrial Medicine, EarlyView.
ABSTRACT Background Homecare aides (HCAs) are professional non‐family caregivers, who support dependent individuals to live at home with dignity; yet in Spain they remain understudied and vulnerable, often facing precarious working conditions. We aimed to characterize HCAs’ employment, living conditions, health, and exposure to workplace violence and ...
Albert Navarro‐Giné, Pedro Ferrer‐Rosende, Maria Feijoo‐Cid, Sergio Salas‐Nicás, Laura Esteve‐Matalí, Valeria Stuardo‐Ávila, María Isabel Fernández‐Cano   +6 more
wiley   +1 more source

Long-term clinical and cost-effectiveness of psychological intervention for family carers of people with dementia: a single-blind, randomised, controlled trial [PDF]

, 2014
Background Two-thirds of people with dementia live at home supported mainly by family carers. These carers frequently develop clinical depression or anxiety, which predicts care breakdown.
Cooper, Claudia, Livingston, D., Barber, Julie, Walker, Zuzana, Griffin, Mark, Rapaport, P, King, D., Walker, Z., Rapaport, Penny, Livingston, G, Livingston, Debbie, Knapp, M, Knapp, Martin, Knapp, M., Romeo, Renee, Mummery, C, Livingston, Gill, Livingston, D, Walker, Z, Hoe, J, Barber, J, Griffin, M, King, D, Mummery, Cath, Livingston, G., Rapaport, P., Cooper, C., Hoe, Juanita, Barber, J., Griffin, M., Romeo, R, Cooper, C, Romeo, R., King, Derek, Hoe, J., Mummery, C.   +35 more
core   +1 more source

High‐Resolution Genomic Characterization of WAGR Spectrum Disorder: Insights From a Novel Cohort and Literature Synthesis, and Validation of Patient‐Reported Data

American Journal of Medical Genetics Part A, EarlyView.
ABSTRACT WAGR spectrum disorder (WAGRSD) is an ultra‐rare congenital disorder caused by heterozygous deletion of chromosome 11p13. While classically associated with Wilms tumor, Aniridia, Genitourinary anomalies, and a Range of developmental delays, accurate delineation of the deletion is critical for prognosis because the phenotypic spectrum extends ...
Andrew M. George, Bamelak T. Duki, Zoe S. Katz, Aravind Viswanathan, Suzanne P. MacFarland, Evan R. Hathaway, Caitlin Monahan, John Morris, Kelly L. Trout, Shari M. Krantz, Arupa Ganguly, Jennifer M. Kalish   +11 more
wiley   +1 more source

CARING FOR CAREGIVERS Family caregivers of patients with chronic illness [PDF]

, 2019
Caring for caregivers, family caregivers of patients with chronic illness; this research is aimed to those nursing students and professionals, who are interested in getting to know standards of care, as well as those who are responsible of patients ...
Chaparro-Díaz, Lorena, Sanchez Herrera, Clara Beatriz del Pilar, Barrera Ortíz, Lucy, Pinto Afanador, Natividad, Carrillo-González, Gloria Mabel   +4 more
core  

Family Functioning and Perceived Social Support among Family Caregivers of Persons with Schizophrenia: A Cross-sectional Study in a Selected Tertiary Care Hospital, Bangalore

Indian Journal of Psychiatric Nursing
Background: Families play a pivotal role as caregivers, it is a demanding and distressing role affecting their quality of life. Caregiving for persons with schizophrenia may be impacted by family functioning and the caregiver’s perceived social support ...
Keneisanuo Kechu, Sudipta Debnath, Luke Joshua Salazar   +2 more
doaj   +1 more source

Melatonin Levels in 89 Individuals With Smith Magenis Syndrome

American Journal of Medical Genetics Part A, EarlyView.
ABSTRACT In patients with Smith–Magenis syndrome (SMS), an inverted circadian rhythm of melatonin (MT) contributes to the sleep disturbance. Standard treatment of sleep disturbance with MT often leads to extremely high daytime MT levels, resulting in even more sleep disorders. We therefore retrospectively evaluated the MT data of 89 SMS patients.
Wiebe Braam, Ann C. M. Smith
wiley   +1 more source

Caregiver Health Related Quality of Life and Burden When Caring for Children with Traumatic Brain Injury

, 2012
Often family members take on the responsibility of caregiver when another family member sustains a traumatic brain injury (TBI). The caregiving role is a stressful task which may impact negatively upon caregivers’ psychological and physical health ...
Rose, Wallis
core  

Streamlining Diagnosis of Bardet–Biedl Syndrome: New Diagnostic Algorithm With Updated Criteria

American Journal of Medical Genetics Part A, EarlyView.
ABSTRACT Considerable advances have been made in our understanding of Bardet–Biedl syndrome (BBS), particularly in its core clinical features and molecular genetics, warranting an update to the existing diagnostic criteria framework. Using a rigorous, evidence‐based, and consensus‐driven process, a multidisciplinary group of international experts and ...
Jeremy J. Pomeroy, Jesse Richards, Brooke R. Sweeney, Seema Kumar, Katie E. Queen, Joshua Zaritsky, Carl H. Cramer, Elias I. Traboulsi, Brittni A. Scruggs, Erica E. Davis, Ekaterina Keifer, Emma McGibbon, Timothy Ogden, Bendert De Graaf, Tonia Hymers, Elizabeth Forsythe, Philip Beales   +16 more
wiley   +1 more source

Conceptualising quality early childhood education: Learning from young children in Brazil and South Africa through creative and play‐based methods

British Educational Research Journal, EarlyView., 2023
Abstract Early childhood has increasingly been acknowledged as a vital time for all children. Inclusive and quality education is part of the United Nations Sustainable Development Goals, with the further specification that all children have access to quality pre‐primary education.
Laura H. V. Wright, Irene Rizzini, Malibongwe Gwele, Lynn McNair, Cristina Laclette Porto, Marsha Orgill, E. Kay M. Tisdall, Malcolm Bush, Linda Biersteker   +8 more
wiley   +1 more source