Engaging Family, Friend, and Neighbor Informal Caregivers [PDF]
The David and Lucile Packard Foundation's Children, Families and Communities program is investing in exploratory projects to learn more about informal care settings.
core
Frontotemporal dementia: the impact of patient behavioral symptoms on the physical and mental health of family caregivers. [PDF]
BackgroundProviding informal support to someone with frontotemporal dementia (FTD) could be very stressful. Clarifying the relationship between patient behavioral problems and caregiver health could spur future research on effective symptom management ...
Wallhagen, Margaret I, Wong, Cindy C
core +3 more sources
MOGAD Is the Most Common Cause of Isolated Optic Neuritis in Children
ABSTRACT Objectives The study aimed to characterize the clinical features, etiologies, and outcomes of isolated, first‐time pediatric ON in the post‐MOG‐IgG era. Methods This was a single‐center retrospective cohort study at Texas Children's Hospital of patients diagnosed with first‐time ON between 2018–2024, with follow‐up data collected through 2025.
Chaitanya Aduru +13 more
wiley +1 more source
Review: Burden on Family Caregivers Caring for Patients with Schizophrenia and Its Related Factors [PDF]
Background: Family caregiver is the most important person who cares for patient with schizophrenia. However when care is provided for long time, he/she may experiences the burden.Purpose: The purpose was to review concept and factors related to burden on
Rafiyah, I. (Imas)
core +1 more source
Objective We evaluated the ability of the Renal Activity Index for Lupus (RAIL) to discriminate active lupus nephritis (LN) in adult patients with active systemic lupus erythematosus (SLE) and differentiate LN treatment response. Methods Urine samples from adults with biopsy‐proven active class III and IV LN from TULIP‐LN (active LN group ...
Hermine I. Brunner +12 more
wiley +1 more source
BURDEN AMONG FAMILY CAREGIVERS OF ADVANCED-CANCER PATIENTS IN INDONESIA
Background: There have been various studies into the family caregivers’ experiences in taking care of advanced-cancer patients. But, a study exploring the burden among family caregivers has not yet been conducted in Indonesia, a country which has strong ...
Ike Wuri Winahyu Sari +2 more
doaj
Cognitive Behavioral Therapy for Youth With Childhood‐Onset Lupus: A Randomized Clinical Trial
Objective Our objective was to determine the feasibility and acceptability of the Treatment and Education Approach for Childhood‐Onset Lupus (TEACH), a six‐session cognitive behavioral intervention addressing depressive, fatigue, and pain symptoms, delivered remotely to individual youth with lupus by a trained interventionist.
Natoshia R. Cunningham +29 more
wiley +1 more source
Caregiving in Asia: Priority areas for research, policy, and practice to support family caregivers
Population aging presents a growing societal challenge and imposes a heavy burden on the healthcare system in many Asian countries. Given the limited availability of formal long‐term care (LTC) facilities and personnel, family caregivers play a vital ...
Nan Jiang, Bei Wu, Yan Li
doaj +1 more source
Psychometric evaluation of the German version of a social support scale of FAFHES (family functioning, family health and social support) [PDF]
This is the peer reviewed version which has been published in final form at https://doi.org/10.1111/scs.12700. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.BACKGROUND:
Bloom DE +11 more
core +1 more source
Introduction Rheumatic and musculoskeletal diseases(RMDs) are leading causes of physical disability, necessitating support with activities of daily living(ADLs). This study describes social care received by patients with RMDs in two disperate regions of England: Salford(urban) and Norfolk(rural).
Mehreen Somro +6 more
wiley +1 more source

