Results 71 to 80 of about 3,909,432 (309)

Barriers to Family Caregivers’ Coping With Patients With Severe Mental Illness in Iran [PDF]

, 2018
The broad spectrum of problems caused by caring for a patient with mental illness imposes a high burden on family caregivers. This can affect how they cope with their mentally ill family members. Identifying caregivers’ experiences of barriers to coping
Hossein Namdar Areshtanab, Fatemeh Ranjbar, Namdar Areshtanab, Hossein, Farnaz Rahmani, Hossein Ebrahimi, Bill Whitehead, Seyedfatemi, Naeimeh, Ranjbar, Fatemeh, Whitehead, Bill, Ebrahimi, Hossein, Naeimeh Seyedfatemi, Graham Thornicroft, Thornicroft, Graham, Rahmani, Farnaz   +13 more
core   +1 more source

Exploring the needs and coping strategies of family caregivers taking care of dying patients at home: a field study

BMC Palliative Care, 2023
Background Most Chinese patients chose to die at home, therefore there is a reliance on the family caregivers to be involved in their palliative care.
Xiaotian Zhang, Tianmeng Xu, Yuan Qin, Minghui Wang, Zhaoyu Li, Jingyu Song, Qianqian Tang, Zidan Wang, Lijie Xu, Lingling Wu, Peng Yue   +10 more
doaj   +1 more source

From patient advocacy to patient‐driven research: Building active partnerships beginning at the bench to reach the bedside

FEBS Open Bio, EarlyView.
Research is strongest when conducted alongside patients, not just about them. Patient research organizations help integrate patient perspectives into research priorities, study design, and scientific meetings, leading to meaningful patient outcomes and development of relevant therapies.
Jenica H. Kakadia, Rachel Heilmann, Maximiliano Barrientos, Laura MacNeill, Ingrid Vallee, Sarah K. Schultz, Patrick O'Donoghue, Angelica A. Moresco, Victoria M. Siu, Ilka U. Heinemann   +9 more
wiley   +1 more source

MOGAD Is the Most Common Cause of Isolated Optic Neuritis in Children

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objectives The study aimed to characterize the clinical features, etiologies, and outcomes of isolated, first‐time pediatric ON in the post‐MOG‐IgG era. Methods This was a single‐center retrospective cohort study at Texas Children's Hospital of patients diagnosed with first‐time ON between 2018–2024, with follow‐up data collected through 2025.
Chaitanya Aduru, Akansha Chandrasekar, Kyla Blasingame, Jonathan Rosen, Jesse M. Levine, Karla Salazar, Madhuri Chilakapati, Rod Foroozan, Victoria Hardwick, Jonathan M. Yarimi, Nikita Shukla, Timothy E. Lotze, Kristen S. Fisher, Alexander J. Sandweiss   +13 more
wiley   +1 more source

'You only have one chance to get it right': A qualitative study of relatives' experiences of caring at home for a family member with terminal cancer. [PDF]

, 2015
BACKGROUND: Relatives looking after a terminally ill family member at home face numerous challenges. Studies into relatives’ experiences of home caregiving have been criticised for their descriptive nature and lack of theoretical underpinnings.
Jonathan Martin (433491), Martin, J, Smith, S, Jonathan Totman (16670103), Susan Smith (377252), Totman, J, Susan Hennessey (16670106), Hennessey, S, Pistrang, N, Nancy Pistrang (42843)   +9 more
core  

End-of-Life Healthcare Decision-Making: The Intermediary Role of the Ethicist in Supporting Family Caregivers and Health Professionals

, 2011
Family support in end-of-life decision-making is critical, yet this issue receives little attention. The purpose of this research is to provide insight into how the clinical ethicist can effectively support family caregivers when making end-of-life ...
Weeks, Lori E, McInnis-Perry, Gloria, MacDonald, Rosemary C   +2 more
core   +1 more source

Evaluation of Digital Technologies for Home‐Based Assessment in People With Amyotrophic Lateral Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Digital technologies hold promise for transforming healthcare by enhancing personalized treatments and offer valuable opportunities to improve patient care. Here, we evaluated several novel, self‐administered, home‐based, digital endpoints for their association with corresponding conventional standard clinical measures (primary) in ...
Arne Mueller, Vanessa Vallejo, Mónica Povedano Panadés, Orla Hardiman, Véronique Danel‐Brunaud, Senda Ajroud‐Driss, Philippe Couratier, Jeremy Shefner, Anna Gokey, Mike DiCesare, Erin Lennox, Jens Praestgaard, Lucie Brujin, Peggy Allred, Ram Miller   +14 more
wiley   +1 more source

Differences in COPD patient care by primary family caregivers: an age-based study. [PDF]

PLoS ONE, 2014
BACKGROUND: Because Taiwan has the fastest aging rate among developed countries, care for the elderly is becoming more prominent in the country. Primary family caregivers play an important role in patient health and health promotion behavior.
Peng-Ching Hsiao, Chi-Ming Chu, Pei-Yi Sung, Wann-Cherng Perng, Kwua-Yun Wang   +4 more
doaj   +1 more source

Unraveling 4‐Phenylbutyrate's Therapeutic Role in SLC6A1 Disorders: Pharmacochaperoning Over HDAC Inhibition

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Variants in SLC6A1, encoding the GABA transporter 1 (GAT‐1), cause epilepsy, autism spectrum disorder, and developmental delay via loss of GABA uptake, impaired trafficking, and ER retention. We previously found that 4‐Phenylbutyrate (PBA), an FDA‐approved drug, restores GABA uptake and reduces seizures in SLC6A1‐related disorders ...
Melissa B. DeLeeuw, Karishma Randhave, Ekta Anand, Ziang (Debbie) Song, Wangzhen Shen, Jing‐Qiong Kang   +5 more
wiley   +1 more source

The Effects of Familism and Cultural Justification on the Mental and Physical Health of Family Caregivers

, 2010
Objectives: We aimed to examine the effects of 2 factors of familism (Familial Obligations and Expected Support from the Family) and Cultural Justification on caregivers’ mental and physical health as mediated by coping style.
Sayegh, Philip, B. G. Knight, Knight, Bob G., P. Sayegh   +3 more
core   +1 more source