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Newborn screening and biobanking for preventable genetic disorders in Mongolia: A developing country perspective. [PDF]

Regen Ther
Batchuluun K, Batjargal K, Tsevgee A, Enkhtur A, Stipan N, Unurbat E, Chimeddorj B, Nyamdavaa K, Boldbaatar D, Ganbaatar E, Umezawa A.   +10 more
europepmc   +1 more source

Recreational Genetic Databases, Artificial Intelligence, and Forensic Genetics: Technical Advances, Legal Challenges, and Bioethical Perspectives. [PDF]

Genes (Basel)
Sauvagère S, Bougerie M, Hermitte F, Hubac S, Manivet P, Kheris S, Duby V, Boissonneau N, Siatka C.   +8 more
europepmc   +1 more source

Biological Foundation Models for Complex Disease Research and Clinical Translation. [PDF]

Biology (Basel)
Noll-Walker T, Chen Y.
europepmc   +1 more source

Advancing Clinical Research

Advanced Science, EarlyView.
wiley   +1 more source

Privacy of Genetic Information

Privacy of Genetic Information
openaire   +1 more source

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Privacy and Policy for Genetic Research

Ethics and Information Technology, 2004
I begin with a discussion of the value of privacy and what we lose without it. I then turn to the difficulties of preserving privacy for genetic information and other medical records in the face of advanced information technology. I suggest three alternative public policy approaches to the problem of protecting individual privacy and also preserving ...
Judith Wagner Decew
exaly   +3 more sources

Genetic Privacy

, 2012
© 2013 by Imperial College Press. All rights reserved. Privacy is an unwieldy concept that has eluded an essentialised definition despite its centrality and importance in the body of bioethics.
Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho   +1 more
openaire   +2 more sources

Genetics and Privacy

American Journal of Law & Medicine, 2002
The science of genetics holds great promise. Ideally, the more scientists learn about the human genome and the functions of specific genes, the better they will understand what causes disease, what can prevent disease and what can cure it. But the hoped for advances in medicine that genetics may bring about will never happen if people are afraid to ...
Joanne L, Hustead, Janlori, Goldman
openaire   +2 more sources