Results 241 to 250 of about 2,407,465 (287)
Some of the next articles are maybe not open access.
Nature Reviews Genetics, 2001
This article outlines the arguments for and against new rules to protect genetic privacy. We explain why genetic information is different to other sensitive medical information, why researchers and biotechnology companies have opposed new rules to protect genetic privacy (and favour anti-discrimination laws instead), and discuss what can be done to ...
P A, Roche, G J, Annas
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This article outlines the arguments for and against new rules to protect genetic privacy. We explain why genetic information is different to other sensitive medical information, why researchers and biotechnology companies have opposed new rules to protect genetic privacy (and favour anti-discrimination laws instead), and discuss what can be done to ...
P A, Roche, G J, Annas
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Science, 1999
Rapid advances in genetics research and the emerging applications to medical practice have heightened public awareness and public concerns about who will have access to this information and how it will be used. In addition to concerns about the privacy of genetic information maintained in medical records, however, is the concern about the privacy of ...
Fuller, Barbara +16 more
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Rapid advances in genetics research and the emerging applications to medical practice have heightened public awareness and public concerns about who will have access to this information and how it will be used. In addition to concerns about the privacy of genetic information maintained in medical records, however, is the concern about the privacy of ...
Fuller, Barbara +16 more
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Journal of Law, Medicine & Ethics, 1995
Human genomic information is invested with enormous power in a scientifically motivated society. Genomic information has the capacity to produce a great deal of good for society. It can help identify and understand the etiology and pathophysiology of disease.
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Human genomic information is invested with enormous power in a scientifically motivated society. Genomic information has the capacity to produce a great deal of good for society. It can help identify and understand the etiology and pathophysiology of disease.
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Annual Review of Medicine, 2003
During the past 10 years, the number of genetic tests performed more than tripled, and public concern about genetic privacy emerged. The majority of states and the U.S. government have passed regulations protecting genetic information. However, research has shown that concerns about genetic privacy are disproportionate to known instances of information
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During the past 10 years, the number of genetic tests performed more than tripled, and public concern about genetic privacy emerged. The majority of states and the U.S. government have passed regulations protecting genetic information. However, research has shown that concerns about genetic privacy are disproportionate to known instances of information
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Privacy and genetic genealogy data
Science, 2018This letter enumerates three major factors that make trawling DNA databases designed for genealogical research to identify individuals who may have left DNA traces at crime-scenes less invasive of legitimate privacy interests than one might assume.
Ellen M, Greytak +4 more
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Genetic testing, genetic screening and privacy
1999For moral philosophers and lawyers one of the most embarrassing characteristics of genetics is that it touches intergenerational problems. It follows from the intergenerational nature of genetics that it is difficult to draw the line between medical and non-medical information produced by genetic testing or screening.
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2015
This chapter analyzes the European Union framing of the protection of genetic privacy in the context of the European Commission's 2012 proposal to amend the 95/46/EC Data Protection Directive. This market-driven proposal, fitting a wider European movement with regard to health-related legal framework, takes into account the challenges to privacy ...
Elsa Supiot, Margo Bernelin
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This chapter analyzes the European Union framing of the protection of genetic privacy in the context of the European Commission's 2012 proposal to amend the 95/46/EC Data Protection Directive. This market-driven proposal, fitting a wider European movement with regard to health-related legal framework, takes into account the challenges to privacy ...
Elsa Supiot, Margo Bernelin
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2002
The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state.
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The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state.
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Privacy and the Genetic Community
The American Journal of Bioethics, 2022Marisa A, Leib-Neri, Anya E R, Prince
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2011
Privacy is a right with many aspects. Although, a uniform approach on privacy is quite often sought, a consensus is growing that there are not only one but many privacy rights. This chapter explores whether there is in fact a right to protect our genetic privacy, since this is a right quite unique in its characteristics and is certainly not identified ...
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Privacy is a right with many aspects. Although, a uniform approach on privacy is quite often sought, a consensus is growing that there are not only one but many privacy rights. This chapter explores whether there is in fact a right to protect our genetic privacy, since this is a right quite unique in its characteristics and is certainly not identified ...
openaire +1 more source