Results 121 to 130 of about 32,062 (289)

A tortuous route to a capable fatherhood: the experience of being a father to a child with severe haemophilia

, 2015
Introduction: Haemophilia is a chronic illness that affects the whole family as the child’s reactions to the illness occur in interaction with the parents.
C. Wallengren, Myrin-Westesson, Linda,, Sparud Lundin, Carina,, F. Baghaei, Wallengren Gustafsson, Catarina,, L. Myrin Westesson, Baghaei, Fariba,, C. Sparud‐Lundin   +7 more
core   +1 more source

The XX Factor in Hemophilia: Diagnostic, Therapeutic, and Research Gaps for Women and Girls

Haemophilia, EarlyView.
ABSTRACT Introduction Hemophilia has traditionally been viewed as an X‐linked disorder affecting men and boys, with women and girls labeled as “carriers”, presumed to be clinically unaffected. This paradigm has contributed to under‐recognition, delayed diagnosis, and undertreatment of females with hemophilia‐associated genotypes despite an increasingly
Kelsey Uminski, Ellen Cusano
wiley   +1 more source

Long-term prophylaxis in severe haemophilia seems to preserve bone mineral density

, 2009
It has been previously shown that patients with severe haemophilia and not receiving any prophylactic treatment render a high risk of reduced bone mineral density.
Åkesson, Kristina,, Berntorp, Erik,, Lund University., Khawaji, Mohammed,   +3 more
core   +1 more source

Haemophilia [PDF]

BMJ, 1952
openaire   +2 more sources

Publishing in Haemophilia [PDF]

Haemophilia, 2019
Mike Makris, Craig Kessler
openaire   +2 more sources

Understanding the Experiences of Young People Living With Haemophilia—A UK Social Media Study

Haemophilia, EarlyView.
ABSTRACT Introduction Haemophilia is a rare congenital bleeding disorder that presents significant physical and psychological challenges, especially for young people, with limited real‐world evidence about their experiences in the UK. Aim This study sought to understand the perspectives and challenges of young people living with haemophilia in the UK ...
Emma Gayton, Ranjit Nagra, Bekki Millward, Erin Plummer, Laura Galimam, Alex Dowsett, Nikki Curry   +6 more
wiley   +1 more source

Clinical Outcomes of Efanesoctocog Alfa Prophylaxis in Children With Severe Haemophilia A: Interim Data From XTEND‐ed

Haemophilia, EarlyView.
Lynn Malec, Beatrice Nolan, Anthony K C Chan, Manuela Albisetti, Sheng‐Chieh Chou, Bulent Zulfikar, Mindy Simpson, Liqi Feng, Helena Palmborg, Graham Neill, Lydia Abad‐Franch, Sriya Gunawardena, Karin Fijnvandraat   +12 more
wiley   +1 more source

Healthcare Professional Identified Priorities for a New Musculoskeletal Examination Scoring System for People With Hemophilia—an International Consensus

Haemophilia, EarlyView.
ABSTRACT Introduction The accurate physical examination of musculoskeletal (MSK) health is an essential part of proactive best practice care of people with hemophilia and must be consistently monitored in clinic. In response to current MSK tool limitations, the Musculoskeletal Health Expert Working Group (MSKH EWG) of the International Prophylaxis ...
Lizabeth Teshler, Audrey Abad, Magnus Aspdahl, Laura Avila, Melanie Bladen, Sharon Funk, Pamela Hilliard, Judy Ann John, Marilyn Manco‐Johnson, Janjaap van der Net, David Stephensen, Jean St‐Louis, Merel Timmer, Beth Boulden Warren, F. Virginia Wright, Nichan Zourikian, Brian M. Feldman   +16 more
wiley   +1 more source

Journeying Towards Excellence in the Care of Patients with Haemophilia and Other Inherited Bleeding Disorders From a Developing World: Insights From Tanzania

Journal of Blood Medicine
Stella Samson Rwezaula,1– 3 Samson D Mtoba,2 Rashid A Gosse,2 Rebecca W Mwakichako,2 Abdallah Raphael Makalla,1 Martha Loiseyeki Bruckman,1 Luhongedzo Gerson Matandala,1 Linda Alphey Shao,1 Hedwiga Francis Swai,1 Michelle Sholzberg,4 Jerome Teitel,4 Amos
Rwezaula SS, Mtoba SD, Gosse RA, Mwakichako RW, Makalla AR, Bruckman ML, Matandala LG, Shao LA, Swai HF, Sholzberg M, Teitel J, Mwakigonja AR, Akinloye O   +12 more
doaj  

Differences between developed and developing countries in paediatric care in haemophilia

, 2012
. The aim of this article is to provide an up-to-date overview on paediatric haemophilia care in the world, with emphasis on medical treatment, rehabilitation, and orthopaedic surgery. The reason these specific professions caregivers are included is that
A. ILIESCU, T. ODENT, G. PASTA, Hilliard, P., E. BERNTORP, Odent, T., Srivastava, A., Pasta, G., Berntorp, Erik,, S. MOHANTY, Berntorp, Erik, P. HILLIARD, Mohanty, S., A. SRIVASTAVA, Iliescu, A., De Kleijn, P., P. DE KLEIJN, Lund University.   +17 more
core   +1 more source