Results 151 to 160 of about 22,562,840 (346)

Real‐World Unmet Needs of Patients With Haemophilia A and Haemophilia B With or Without Inhibitors: End‐of‐Study Results From the explorer6 Non‐Interventional Study

open access: yesHaemophilia, EarlyView.
ABSTRACT Introduction Haemophilia is associated with high disease and treatment burdens. Prospective evaluation of data from patients with haemophilia helps understand and define unmet needs, optimise treatment and improve healthcare outcomes. Aim To present end‐of‐study data from explorer6 (NCT03741881), a prospective, non‐interventional study across ...
Allison P. Wheeler   +14 more
wiley   +1 more source

European Principles of Nursing Care for Persons With Inherited Bleeding Disorders

open access: yesHaemophilia, EarlyView.
ABSTRACT Introduction A nurse is one of the core members of the multidisciplinary haemophilia team. However, what people with inherited bleeding disorders (PwBD) can expect from them has not yet been formally defined. Aim This project, initiated by the EAHAD Nurses Committee, aimed to establish Principles of Nursing Care (PoNC) for PwBD to promote high‐
Nanda Uitslager   +4 more
wiley   +1 more source

Queen Victoria and The Royal Disease [PDF]

open access: yes, 2018
Queen Victoria, Queen of England and Ireland and Empress of India, is the second longest ruling monarch of England, she sat on the throne for sixty –three years and was so crucial to the formation of England that there is a whole era names after her, The
Mullen, Madeline
core   +1 more source

Enhancing Engagement to Support Shared Decision Making Within Haemophilia: Development of Materials for People With Haemophilia, Caregivers and Healthcare Professionals

open access: yesHaemophilia, EarlyView.
ABSTRACT Introduction Treatment decision making can be complex and challenging for people with haemophilia (PwH) and their caregivers. A shared decision‐making (SDM) approach can ensure that decisions about treatment and care incorporate patients’ beliefs, values, and preferences.
Laura Meade   +6 more
wiley   +1 more source

Systemic lupus erythematosus caused acquired hemophilia B without evidence of factor IX inhibitors

open access: yes
Rheumatology &Autoimmunity, EarlyView.
Lifang Wang   +3 more
wiley   +1 more source

Developing a Two‐Sided Decision Box to Facilitate Shared Decision‐Making for Switching From Conventional to Pharmacokinetic‐Tailored Prophylaxis in Haemophilia

open access: yesHaemophilia, EarlyView.
ABSTRACT Introduction Decision‐making in haemophilia is challenging due to the small evidence base, disease heterogeneity, and inter‐patient variability. Shared decision‐making (SDM) supports patient‐clinician decisions. Aim Creation of a two‐sided decision box facilitating SDM for haemophilia patients switching from conventional (weight‐based) to ...
Arun Keepanasseril   +4 more
wiley   +1 more source

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