Results 21 to 30 of about 22,562,840 (346)

Optimizing the management of patients with haemophilia A and inhibitors in the era of emicizumab: Recommendations from a German expert panel

Haemophilia, 2020
Standard treatment of haemophilia A is based on replacing the missing coagulation factor VIII (FVIII) to treat and prevent bleeding episodes. The most challenging complication of FVIII therapy is the development of neutralizing antibodies (inhibitors ...
C. Escuriola-Ettingshausen, G. Auerswald, C. Königs, K. Kurnik, U. Scholz, R. Klamroth, J. Oldenburg   +6 more
semanticscholar   +1 more source

Adherence to prophylaxis in adolescents and young adults with severe haemophilia, A qualitative study with patients [PDF]

, 2018
© 2018 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.Abstract Introduction: Reported levels of adherence to prophylaxis among young people with haemophilia (YPH) vary widely and are predominately based on estimations ...
Khair K., Nilsson I. M., Reid K., Smith J. A., Smith J. A., Smith J. A., Yardley L.   +6 more
core   +3 more sources

A review of evidence about behavioural and psychological aspects of chronic joint pain among people with haemophilia [PDF]

, 2014
Joint pain related to haemophilia affects large numbers of people and has a significant impact on their quality of life. This article reviews evidence about behavioural and psychological aspects of joint pain in haemophilia, and considers that evidence ...
Acharya, Barlow, Barry, Buhrman, Buzzard, Cour, Eckman, Elander, Elander, Elander, Elander, Elander, Ersek, Fischer, Fischer, Fishbain, Galen, Genderen, Gil, Hermans, Hilberg, Holstein, Humphries, Ingerslev, Jensen, Jensen, Karimi, Korff, Laforest, LeFort, Lorig, Lorig, Lorig, Lusher, Mackensen, McCracken, McCracken, McCracken, McCracken, Moore, Moore, Mulvany, Neufeld, Niscola, O'Mahony, Penica, Poon, Riley, Risdon, Rodriguez-Merchan, Royal, Santavirta, Santavirta, Schramm, Schulz, Sherry, Solomon, Solovieva, Spitzer, Stover, Swirsky-Sacchetti, Szende, Thorn, Turk, Turk, Varni, Varni, Varni, Varni, Wallny, Wilson, Witkop, Witkop, Wright, Zawilska, Zhou   +75 more
core   +2 more sources

Treatment of a patient with severe haemophilia A presenting with left extra pleural haematoma and diagnosed with inhibitors – case report

The Journal of Haemophilia Practice, 2022
Haemophilia is an inherited X-linked bleeding disorder characterised by a deficiency or absence of clotting factor VIII (haemophilia A) or IX (haemophilia B), which can cause musculoskeletal bleeding. The standard treatment for haemophilia is with factor
Das Arijit, Dutta Anupam, BBV Ramanan, Sreeraj Sanchu TK   +3 more
doaj   +1 more source

Impact of Functional Disability on Quality of Life in Patients with Haemophilia: An Observational Study [PDF]

Journal of Clinical and Diagnostic Research, 2021
Introduction: Haemophilia is a disease characterised by multiple episodes of spontaneous as well as traumatic bleeding leading to joint pains, joint damage.
Ashish Kavi, Mrinal Joshi, Surbhi Mittal, Poonam Banthi   +3 more
doaj   +1 more source

Haemophilia A: pharmacoeconomic review of prophylaxis treatment versus on-demand [PDF]

, 2015
Objectives. Haemophilia A is a congenital disorder of coagulation that mainly affects males and causes a considerable use of resources, especially when hemophilic patients are treated with prophylaxis.
BOCCIA, Antonio, LA TORRE, Giuseppe, Ricciardi, Walter, UNIM, BRIGID ANDOUNIMYE, Veneziano, Maria Assunta   +4 more
core   +2 more sources

Utilization evaluation of factor concentration and frequencyof bleeds among patients with haemophilia "A" and haemophilia "B" in northwest Iran [PDF]

Journal of Analytical Research in Clinical Medicine, 2013
Background Haemophilia A and B are X-linked bleeding disorders which result in decreased blood levels of coagulants. According to some studies, Hemophilia Severity Score (HSS) is higher in severe Haemophilia A(HA) than in severe Haemophilia B(HB ...
Roya Dolatkhah, Morteza Ghojazadeh, Iraj Asvadi Kermani, Zohreh Sanaat, Nasrin Tavassoli, Mehri Gholchin   +5 more
doaj   +1 more source

Disease burden and remaining unmet need in patients with haemophilia A treated with primary prophylaxis

Haemophilia, 2020
There is evidence that people with haemophilia A still experience morbidity and functional limitation due to joint damage despite prophylaxis. This study aimed to compare their quality of life and work‐related function with that of the general population
Sonia O’Hara, F. Castro, James M. Black, S. Chaplin, L. Ruiz, R. Hampton, C. S. Sima, J. O’Hara   +7 more
semanticscholar   +1 more source

A brief haemophilia pain coping questionnaire [PDF]

, 2008
Development and psychometric assessment of a questionnaire measuring pain coping for people with haemophiliaPain coping strategies are important influences on outcomes among people with painful chronic conditions. The pain coping strategies questionnaire
Anie, Barry, Dozois, Elander, Gil, Hastie, Hays, Hays, Hill, Jensen, Kerns, Lawson, McCracken, Riley, Riley, Robinson, Rosenstiel, Santavirta, Swartzman, Tan, Tuttle   +20 more
core   +2 more sources

Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report

The Journal of Haemophilia Practice, 2022
Haemophilia knowledge and care are largely missing in much of sub-Saharan Africa and there is a need for concerted efforts to ensure access to care services by affected persons. Haemophilia Foundation Uganda, supported by the global haemophilia community
Kasirye Philip, Kisakye Agnes, Nakalyango Annette, Barnabas Atwiine   +3 more
doaj   +1 more source