Results 81 to 90 of about 16,675,604 (301)

Mapping the patient journey of adult patients with Spinal Muscular Atrophy in Greece: key challenges and priorities for action

Orphanet Journal of Rare Diseases
Background Spinal Muscular Atrophy (SMA) carries a heavy burden for patients and caregivers, which, in Greece, is exacerbated by resource constraints and limited care integration.
Christina Golna, Chara Tzavara, Christiana Vasileiadi, Pavlos Golnas, Kornilia Binou, Antigone Karras, Kyriakos Souliotis   +6 more
doaj   +1 more source

Are There Long-term Academic Benefits of Full-Day Kindergarten? A Population-Based Analysis

International Journal of Population Data Science, 2017
Objective Despite the implementation of full-day kindergarten (FDK) in several Canadian provinces, there is little evidence on the long-term outcomes associated with this program.
Marni Brownell, Nathan Nickel, Dan Chateau, Carole Taylor, Leah Crockett, Alan Katz, Joykrishna Sarkar, Elaine Burland   +7 more
doaj   +1 more source

Neurochemical Endpoints to Inform Early‐Stage Trials of Spinocerebellar Ataxia 2 and 3 in a Multisite Setting

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Neurochemical levels measured by brain MR spectroscopy (MRS) have been proposed as endpoints for clinical trials in early‐stage spinocerebellar ataxia (SCA) trials. We tested their trial‐readiness by quantifying neurochemicals in three affected brain regions in early‐stage cohorts of SCA2 and SCA3, examining their reproducibility in ...
James M. Joers, Yaqiao Wei, Dinesh K. Deelchand, Adam Berrington, Young Woo Park, Guita Banan, Michal Povazan, Jens T. Rosenberg, André J. W. van der Kouwe, Tetsuo Ashizawa, Khalaf O. Bushara, Chiadi U. Onyike, Sub H. Subramony, Jeremy D. Schmahmann, Brian J. Soher, Peter B. Barker, Thomas H. Mareci, Eva‐Maria Ratai, Lynn E. Eberly, Gülin Öz   +19 more
wiley   +1 more source

Other title: Written Testimony on Requested Topics

, 2007
application/pdf; "December 13, 2007."; Written testimony before the Kansas Legislature, Joint Committee on Health Policy Oversight, by staff of the Kansas Health Policy Authority.Written testimony providing updates on the State Employee Health ...
Kansas Health Policy Authority.
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Advantages of the net benefit regression framework for trial-based economic evaluations of cancer treatments: an example from the Canadian Cancer Trials Group CO.17 trial

BMC Cancer, 2019
Background Economic evaluations commonly accompany trials of new treatments or interventions; however, regression methods and their corresponding advantages for the analysis of cost-effectiveness data are not widely appreciated.
Jeffrey S. Hoch, Annette Hay, Wanrudee Isaranuwatchai, Kednapa Thavorn, Natasha B. Leighl, Dongsheng Tu, Logan Trenaman, Carolyn S. Dewa, Chris O’Callaghan, Joseph Pater, Derek Jonker, Bingshu E. Chen, Nicole Mittmann   +12 more
doaj   +1 more source

Digital Cognitive Testing in Mitochondrial Disease: Validity and Challenges for Clinical Trial Use

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Primary mitochondrial disease is a group of genetic disorders caused by pathogenic variants in nuclear or mitochondrial DNA, often resulting in progressive neurodegeneration and cognitive decline. Current management is primarily supportive, though recent research offers hope for disease‐modifying treatments in the future.
Oksana Pogoryelova, Jan Smeitink, Herma Renkema, Rosabeth White, Frankie Barton, Rachel Lyon, Jane Newman, Aye Moe, Yi Shiau Ng, Grainne Siobhan Gorman   +9 more
wiley   +1 more source

The Kenya National Oral Health Policy 2022–2030 [PDF]

, 2022
The The Kenya National Oral Health Policy (2022 – 2030) highlights the importance of oral health as an integral part of overall health and well-being throughout one's life.

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Society for Maternal‐Fetal Special Statement: Transforming the maternity care team model

Pregnancy
In the last decade, the healthcare system has changed due to circumstances such as a codification of accountable care organizations and a pivot to telemedicine during the COVID‐19 pandemic.
Society for Maternal‐Fetal Medicine (SMFM), Priyanka Gaur, Alison N. Goulding, Catherine Y. Spong, Erika F. Werner, SMFM Health Policy and Advocacy Committee   +5 more
doaj   +1 more source

Factors Associated With the Rising Trend in Self‐Reported Cognitive Disability Among U.S. Adults Aged 18–39 From 2013–2024

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Building on our prior Behavioral Risk Factor Surveillance System analysis identifying adults aged 18–39 as the primary driver of the national increase in self‐reported cognitive disability, we examined factors associated with this rise using 2013–2024 U.S. BRFSS data. Methods We analyzed U.S.
Adam de Havenon, Ka‐Ho Wong, Mirriam Mananah, Christopher D. Anderson, Ada Fenick, Amy Arnsten, Arman Fesharaki‐Zadeh, James C. McPartland, Mary L. Adams, Kevin N. Sheth   +9 more
wiley   +1 more source

Sri Lanka’s COVID-19 response and maintaining health services: implications for future pandemics

BMJ Global Health, 2023
Sarath Samarage, Ravindra Prasan Rannan-Eliya, Nilmini Wijemunige, Azrah Ghaffoor, Sarasi Amarasinghe, Manage Dhanusha Nirmani, Sanjay Perera, KCS Dalpatadu, Niroshani Wisidagama, Sachini Fonseka, Nalin Kumara, Ahthiga Selvaratnam, Thimani Dananjana   +12 more
doaj   +1 more source