Results 111 to 120 of about 12,392,515 (266)
Haemophilia, EarlyView.ABSTRACT Introduction Patients with inherited bleeding and haemoglobin disorders face barriers to accessing timely dental care, increasing the risk of untreated oral disease and complications related to invasive procedures. Aim To evaluate the agreement between smartphone‐based asynchronous teledentistry and face‐to‐face examination for oral conditions,
Victor Cordeiro da Silva +7 more
wiley +1 more source
Symptoms, Diagnosis, and Treatment for Women and Girls With Hemophilia: A Narrative Review
Haemophilia, EarlyView.ABSTRACT Introduction Hemophilia is an X‐linked bleeding disorder previously thought to present only in men. This sentiment is rapidly changing as the information around women and girls’ experiences of bleeding symptoms has evolved, sparking intense discussion among researchers, clinicians, patients, and patient advocates regarding appropriate ...
Sam Hirniak +6 more
wiley +1 more source
Haemophilia, EarlyView.ABSTRACT Objectives To examine the association between patient‐reported outcome measures (PROMs) and objective measures of clinical performance in children, adolescents, and adults with haemophilia, highlighting their implications for person‐centered care.
Tatyane Oliveira Rebouças Brito +6 more
wiley +1 more source
Evaluation of the Clinical Status of Patients with Inherited Bleeding Disorders in Diyala-Iraq
Diyala Journal of Medicine, 2019 Background: Inherited bleeding disorders are rare diseases that are both complicated and expensive to manage, they are classified into: coagulation factor disorders, vessel wall defect and platelet disorders.
Imad Ahmed Lateef
doaj +2 more sources
Current State of Moderate Congenital Haemophilia A and the Need for Preventive Treatment
Haemophilia, EarlyView.ABSTRACT Introduction The severity of haemophilia A is classified by the degree of factor VIII (FVIII) deficiency, rather than by clinical manifestations. However, FVIII activity alone does not necessarily accurately reflect clinical severity such as bleeding tendency, and patients with mild‐to‐moderate haemophilia A can experience significant disease ...
Masahiro Takeyama +6 more
wiley +1 more source
The XX Factor in Hemophilia: Diagnostic, Therapeutic, and Research Gaps for Women and Girls
Haemophilia, EarlyView.ABSTRACT Introduction Hemophilia has traditionally been viewed as an X‐linked disorder affecting men and boys, with women and girls labeled as “carriers”, presumed to be clinically unaffected. This paradigm has contributed to under‐recognition, delayed diagnosis, and undertreatment of females with hemophilia‐associated genotypes despite an increasingly
Kelsey Uminski, Ellen Cusano
wiley +1 more source
, 2012 Summary. Background: The increased life expectancy of the hemophilia population, primarily as a result of advances in factor replacement therapy, has enabled hemophiliacs to reach an older age.
Macchi S +25 more
core +1 more source
Understanding the Experiences of Young People Living With Haemophilia—A UK Social Media Study
Haemophilia, EarlyView.ABSTRACT Introduction Haemophilia is a rare congenital bleeding disorder that presents significant physical and psychological challenges, especially for young people, with limited real‐world evidence about their experiences in the UK. Aim This study sought to understand the perspectives and challenges of young people living with haemophilia in the UK ...
Emma Gayton +6 more
wiley +1 more source
Health Technology Assessment for Rare Diseases: Evaluation of Preferences toward treatments for Patients with Haemophilia [PDF]
, 2008 Rationale Despite the success of recent investments in health technology for the treatment in hemophilic patients, today, inhibitor development is a major complication of hemophilia treatment, as inhibitors increase the risk of uncontrollable bleeding ...
Scalone, Luciana
core +1 more source