Results 121 to 130 of about 12,392,515 (266)

Healthcare Professional Identified Priorities for a New Musculoskeletal Examination Scoring System for People With Hemophilia—an International Consensus

Haemophilia, EarlyView.
ABSTRACT Introduction The accurate physical examination of musculoskeletal (MSK) health is an essential part of proactive best practice care of people with hemophilia and must be consistently monitored in clinic. In response to current MSK tool limitations, the Musculoskeletal Health Expert Working Group (MSKH EWG) of the International Prophylaxis ...
Lizabeth Teshler, Audrey Abad, Magnus Aspdahl, Laura Avila, Melanie Bladen, Sharon Funk, Pamela Hilliard, Judy Ann John, Marilyn Manco‐Johnson, Janjaap van der Net, David Stephensen, Jean St‐Louis, Merel Timmer, Beth Boulden Warren, F. Virginia Wright, Nichan Zourikian, Brian M. Feldman   +16 more
wiley   +1 more source

Evidence-based dental management strategies for individuals with congenital hemophilia: a systematic review

BMC Oral Health
Background People with hemophilia commonly present with a range of bleeding symptoms, from minor oral cavity bleeds to life-threatening events such as intracranial hemorrhage.
Mathangi Kumar, Sulochana Badagabettu, Keerthilatha M Pai, Linu Sara George   +3 more
doaj   +1 more source

From Bleeding Control to Health: Implementing Multidimensional and Multidisciplinary Hemophilia Care Into the Era of Therapeutic Innovation

Haemophilia, EarlyView.
ABSTRACT Introduction Over the past decade, hemophilia management has been transformed by modern prophylactic strategies, achieving dramatic reductions in annualized bleeding rates (ABR), often approaching zero. However, the conceptual evolution of hemophilia care toward multidimensional health assessment and comprehensive multidisciplinary management ...
Nicolas Giraud, Yesim Dargaud
wiley   +1 more source

Treatment adherence in hemophilia

, 2017
Courtney D Thornburg,1 Natalie A Duncan2 1Hemophilia and Thrombosis Treatment Center, Rady Children’s Hospital, San Diego, CA, 2Indiana Hemophilia and Thrombosis Center, Indianapolis, IN, USA Abstract: Prophylactic clotting-factor regimens reduce
Thornburg CD, Duncan NA
core  

The Burden of Prior Authorizations in Bleeding Disorder Specialty Drugs

Haemophilia, EarlyView.
ABSTRACT Introduction Prior authorizations (PAs) are widely used to control healthcare costs and ensure appropriate use of high‐cost therapies, but they often create undue administrative burdens. In haemophilia care, timely access to specialty medications is critical, yet Haemophilia Treatment Centres (HTCs) must frequently navigate payer‐driven PA ...
Lisa Littner, Jami Jones, Trudie Milner, Elinor Borgert   +3 more
wiley   +1 more source

Treatment of hemophilia B: focus on recombinant factor IX

Biologics: Targets & Therapy, 2013
Massimo Franchini, Francesco Frattini, Silvia Crestani, Cinzia Sissa, Carlo BonfantiDepartment of Transfusion Medicine and Hematology, Carlo Poma Hospital, Mantua, ItalyAbstract: Hemophilia B is a recessive X-linked bleeding disorder characterized by ...
Franchini M, Frattini F, Crestani S, Sissa C, Bonfanti C   +4 more
doaj  

Persons with high Hemophilia Joint Health Scores have reduced functional range of motion during simulated sports activities

Research and Practice in Thrombosis and Haemostasis
Background: Joint bleeds for persons with hemophilia are characteristic and can lead to hemophilic arthropathy, primarily in the ankles, knees, and elbows.
Danielle N. Siegel, Caden Robertson, Joanna Roybal, Joseph Mah, Laura Singer-Fox, Dianne Thornhill, Niamh Mah, Sharon Funk, Marilyn Manco-Johnson, James Carollo, Brecca M.M. Gaffney, Beth B. Warren   +11 more
doaj   +1 more source

Recent Advances in the Treatment of Hemophilia: A Review

, 2021
Emanuela Marchesini,1 Massimo Morfini,2 Leonard Valentino3,4 1Hemophilia Centre, SC Vascular and Emergency Department, University of Perugia, Perugia, Italy; 2Italian Association of Haemophilia Centres (AICE), Naples, Italy; 3National Hemophilia ...
Marchesini E, Valentino L, Morfini M
core  

The Haemophilia Health Journey: Experiences and Unmet Care Needs of Caregivers and Their Young Children

Haemophilia, EarlyView.
ABSTRACT Introduction Understanding patients’ and caregivers’ experiences, values and needs is essential to implement patient‐centred care. However, specific insights into how young children with haemophilia and their caregivers experience the entire care trajectory, from diagnosis onwards, remain limited.
Caroline M. A. Mussert, Eva K. Kempers, Evelien S. van Hoorn, Ekin Kerimoğlu, Marijke Melles, Mathieu A. Gielen, Armaĝan Albayrak, Kees T. B. Ahaus, Simone H. Reitsma, Samantha C. Gouw, Marjon H. Cnossen, the PARTITURA study group and SYMPHONY consortium   +11 more
wiley   +1 more source

DDAVP Challenges in 170 Children With von Willebrand Disease: Response Classification Varies According to Criteria Used

Haemophilia, EarlyView.
ABSTRACT Introduction Individuals diagnosed with types 1/1C/2A/2M von Willebrand disease (VWD) typically undergo a desmopressin (DDAVP) challenge to assess therapeutic benefit. This involves measuring von Willebrand factor antigen (VWF:Ag), activity (VWF:Act; VWF:RCo/VWF:GPIbM/VWF:Ab), and coagulant factor VIII (FVIII:C) levels 0 (pre), 1, and 4‐h post‐
Michael Shu, Caroline Malcolmson, Amanda Fregonas, Tristan E. Knight, Margaret L. Rand, Cindy Wakefield, Vanessa Bouskill, Manuel Carcao   +7 more
wiley   +1 more source