Results 21 to 30 of about 31,395 (217)

Irish Hospice Foundation Annual Report 2020

, 2021
Every death matters – and we only have one chance to get it right. Many of the experiences of dying, death and bereavement during 2020 fell very far short of the expressed wishes of the Irish people in relation to what they want for themselves or their ...
Irish Hospice Foundation
core  

Quality Improvement Initiative to Improve Uptake of an Alternative Call Management Strategy for Home-Based Hospice Care

Palliative Medicine Reports
Background: In home-based hospice care, frontline nurses frequently need to take unscheduled incoming calls while out in the field. This interrupts critical tasks and disrupts patient rapport, potentially lowering care quality for patients.
Winnie Choo, Zhi Zheng Yeo, Xiang Yi Chen, Lily Li, Lan Miao, Xiao Juan Lyu, Poh Heng Chong   +6 more
doaj   +1 more source

Communicating with young children who have a parent dying of a life-limiting illness: a qualitative systematic review of the experiences and impact on healthcare, social and spiritual care professionals

BMC Palliative Care, 2022
Background Healthcare professionals play a key role in interacting with children who have a parent with a life-limiting illness. While playing such a role can be challenging, not much is known about how such interactions impact these professionals and ...
Lasitha M. Wickramasinghe, Zhi Zheng Yeo, Poh Heng Chong, Bridget Johnston   +3 more
doaj   +1 more source

Time to relect- Irish Hospice Foundation survey about death, dying and bereavement during the COVID-19 pandemic

, 2023
The Time to Reflect survey was commissioned by Irish Hospice Foundation to explore the impact of COVID-19 on the experiences and perceptions of the Irish population in relation to dying, death, and bereavement during this time.
Irish Hospice Foundation
core  

Irish Hospice Foundation Annual Report 2021

, 2022
he pandemic created a very challenging environment for IHF to achieve its vision of an Ireland where people experiencing dying, death and bereavement are provided with the care and support they need and where every death matters.
Irish Hospice Foundation
core  

Sertraline Treatment Can Mimic Niemann‐Pick Type C Biomarker Profile: A Diagnostic Pitfall

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Oxysterols (cholestane‐3β,5α,6β‐triol and 7‐ketocholesterol) and N‐palmitoyl‐O‐phosphocholineserine (PPCS) are sensitive biomarkers for Niemann‐Pick disease type C (NPC) screening. However, false‐positive results occur, with a biomarker profile suggestive of NPC despite the absence of pathogenic variants in genes involved in NPC or ...
Maria Makrygianni, Cecile Pagan, Antony Citterio‐Quentin, Isabelle Rouvet, Giulia Dingeo, Cyril Hanin, Claudine Laurent‐Levinson, Samia Pichard, Bénédicte Héron, Clément Gourguechon, Daniele Mandia, Jerome Guitton, Carole Lacout, Nicolas Schleinitz, Florient Potier, Olivier Flabeau, Elsa Besse‐Pinot, Foudil Lamari, Magali Pettazzoni, Yann Nadjar   +19 more
wiley   +1 more source

A novel method using the level of mobility to predict mortality in patients admitted for decompensated cirrhosis: A prospective study

, 2022
Liver Transplantation, EarlyView.
Andrew J. Groff, Marina Serper, Sunny Y. Tao, Pamela M. Bloomer, Michael A. Dunn, Andres Duarte‐Rojo   +5 more
wiley   +1 more source

Anti‐CD20 Discontinuation Versus Continuation in People Aged Over 50 With Non‐Active Multiple Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To determine whether discontinuing anti‐CD20 therapy in people with relapsing‐onset MS aged over 50 is associated with an increased risk of relapse, inflammatory activity, confirmed disability accrual, and serious infection compared with continuing therapy.
Alexia Moukhine, Fabien Rollot, Romain Casey, Nicolas Collongues, Sandra Vukusic, Guillaume Mathey, Anne Laure Dubessy, Jonathan Ciron, Jérôme De Seze, Aurélie Ruet, Pierre Labauge, Arnaud Kwiatkowski, Hélène Zephir, Caroline Papeix, Gilles Defer, Christine Lebrun‐Frenay, David Axel Laplaud, Eric Berger, Eric Thouvenot, Jean Pelletier, Abdullatif Al Khedr, Olivier Casez, Bertrand Bourre, Abir Wahab, Laurent Magy, Jean‐Philippe Camdessanché, Ines Doghri, Solène Moulin, Mariana Sarov Rivière, Karolina Hankiewicz, Amélie Dos Santos, Corinne Pottier, Eric Manchon, Jennifer Aboab, Maia Tchikviladze, Thomas David, Gilles Edan, Emmanuelle Le Page, Laure Michel, Anne Kerbrat, OFSEP Investigators   +40 more
wiley   +1 more source

Counselling the terminally ill — Can we prepare for death?

South African Family Practice, 2006
The family medical practitioner is a key player when care of the patient becomes palliative. The practitioner's ability to be present to the psychological, spiritual and social needs—in addition to the physical -gives reassurance and affirmation of life ...
S. Nieuwmeyer, M. Hosking
doaj   +1 more source

Development of a Disease Activity Index for the Assessment of VEXAS Syndrome (VEXAS‐DAI)

Arthritis Care &Research, EarlyView.
Objective Vacuoles, E1 enzyme, X‐linked, autoinflammatory, somatic syndrome (VEXAS) syndrome is characterized by a complex spectrum of inflammatory and hematologic manifestations. Clinical research to identify effective therapies is urgently needed but is hindered by the lack of validated outcome measures.
Kevin Byram, Heřman Mann, Danielle Hammond, Onima Chowdhury, Sinisa Savic, Yohei Kirino, Carmelo Gurnari, Maël Heiblig, Thibault Comont, Arsène Mekinian, Mrinal M. Patnaik, Lachelle D. Weeks, Gary Ho, Adam Al‐Hakim, Scott Goldberg, Marcela A. Ferrada, Sophie Georgin‐Lavialle, Peter C. Grayson, Emma M. Groarke, Bhavisha Patel, Megan Sullivan, Sarah A. Buckley, Bryan G. Harder, Raman Garcha, David B. Beck, Matthew J. Koster   +25 more
wiley   +1 more source