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A Caregiver's Perspective: Identifying “Zebras”—Listening to Patients is a Clinical Necessity
This caregiver perspective article shares a decades-long experience of a family navigating the health system to obtain an accurate diagnosis for their nonbinary child, ultimately identified with Hypermobile Ehlers-Danlos Syndrome (hEDS) with Median ...
Gil Bashe
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Autistic individuals with hypermobile Ehlers-Danlos syndrome (hEDS) often face unique challenges navigating healthcare systems due to lack of clinician awareness, diagnostic delays, misdiagnoses, and systemic barriers.
Sarah Clark
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Kiley C Whalen, Wilson Crone Center for Physician Assistant Studies, Albany Medical College, Albany, NY, USACorrespondence: Wilson Crone, Center for Physician Assistant Studies, Albany Medical College, MC-4, 47 New Scotland Avenue, Albany, NY, 12208, USA,
Whalen KC, Crone W
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In-vivo force-length relationship of the medial gastrocnemius muscle in Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders [PDF]
This article was originally published as: Golden, D.W., Oliemans, J.P., Ladell, A.J.M., Walls, K.D., Bennett, E.C., Skaper, S.J., Asmussen, M.J., Manocha, R.H.K., & Fletcher, J.R. (2026).
Manocha, Ranita H.K. +8 more
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To what extent do the muscles and tendons influence metabolic cost and exercise tolerance in the hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders? [PDF]
This article was originally published as: Sheehan, D.S., Oliemans, J.P., Golden, D.W., Walls, K.D., Bennett, E.C., Skaper, S.J., Asmussen, M.J., Manocha, R.H.K., & Fletcher, J.R. (2025).
Manocha, Ranita H.K. +8 more
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IntroductionHypermobile Type Ehlers-Danlos Syndrome (hEDS) accounts for 80%–90% of all Ehlers-Danlos cases. hEDS pathophysiology is uncertain. There is no diagnostic test.
Kevin J. Flynn +2 more
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Summary: • Ehlers Danlos Syndrome (EDS) o Inherited collagen disorder o Different collagen mutations produce the various types o Type I - Gravis form o Type II - Mitis form o Type III - Hypermobile form > Patient have hypermobility of their joints o Type
Andrew G. Lee, MD; Chelsea Livingston
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Long COVID and hypermobility spectrum disorders have shared pathophysiology
Hypermobility spectrum disorders (HSD) and hypermobile Ehlers–Danlos syndrome (hEDS) are the most common joint hypermobility conditions encountered by physicians, with hypermobile and classical EDS accounting for >90% of all cases.
Ravindra Ganesh, Bala Munipalli
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Objective Hypermobile Ehlers-Danlos Syndrome (hEDS) is a hereditary connective tissue disorder characterised by joint hypermobility, chronic musculoskeletal pain, and skin abnormalities and easy bruising. Morphological and functional microvascular status
M. Cutolo +11 more
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The Physical and Psychological Impacts of Exercise on hypermobile Ehlers-Danlos Syndrome: A Case Study [PDF]
Hypermobile Ehlers-Danlos Syndrome (hEDS) is a subtype of a series of connective tissue disorders identified by joint hypermobility and multisystemic symptoms.
Posey, Savannah
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