Results 91 to 100 of about 1,247,077 (145)

A Caregiver's Perspective: Identifying “Zebras”—Listening to Patients is a Clinical Necessity

open access: yesJournal of Patient Experience
This caregiver perspective article shares a decades-long experience of a family navigating the health system to obtain an accurate diagnosis for their nonbinary child, ultimately identified with Hypermobile Ehlers-Danlos Syndrome (hEDS) with Median ...
Gil Bashe
doaj   +1 more source

The Complexities of Navigating the Healthcare System as an Autistic Individual with Ehlers-Danlos Syndrome: A Patient Perspective

open access: yesJournal of Patient Experience
Autistic individuals with hypermobile Ehlers-Danlos syndrome (hEDS) often face unique challenges navigating healthcare systems due to lack of clinician awareness, diagnostic delays, misdiagnoses, and systemic barriers.
Sarah Clark
doaj   +1 more source

Multidisciplinary Approach to Treating Chronic Pain in Patients with Ehlers–Danlos Syndrome: Critically Appraised Topic

open access: yesJournal of Pain Research, 2022
Kiley C Whalen, Wilson Crone Center for Physician Assistant Studies, Albany Medical College, Albany, NY, USACorrespondence: Wilson Crone, Center for Physician Assistant Studies, Albany Medical College, MC-4, 47 New Scotland Avenue, Albany, NY, 12208, USA,
Whalen KC, Crone W
doaj  

In-vivo force-length relationship of the medial gastrocnemius muscle in Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders [PDF]

open access: yes
This article was originally published as: Golden, D.W., Oliemans, J.P., Ladell, A.J.M., Walls, K.D., Bennett, E.C., Skaper, S.J., Asmussen, M.J., Manocha, R.H.K., & Fletcher, J.R. (2026).
Manocha, Ranita H.K.   +8 more
core   +1 more source

To what extent do the muscles and tendons influence metabolic cost and exercise tolerance in the hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders? [PDF]

open access: yes
This article was originally published as: Sheehan, D.S., Oliemans, J.P., Golden, D.W., Walls, K.D., Bennett, E.C., Skaper, S.J., Asmussen, M.J., Manocha, R.H.K., & Fletcher, J.R. (2025).
Manocha, Ranita H.K.   +8 more
core   +1 more source

A trial of exosome rich stem cell secretome as a potential treatment for Hypermobile Ehlers-Danlos Syndrome

open access: yesFrontiers in Medicine
IntroductionHypermobile Type Ehlers-Danlos Syndrome (hEDS) accounts for 80%–90% of all Ehlers-Danlos cases. hEDS pathophysiology is uncertain. There is no diagnostic test.
Kevin J. Flynn   +2 more
doaj   +1 more source

Ehlers Danlos Syndrome

open access: yes, 2021
Summary: • Ehlers Danlos Syndrome (EDS) o Inherited collagen disorder o Different collagen mutations produce the various types o Type I - Gravis form o Type II - Mitis form o Type III - Hypermobile form > Patient have hypermobility of their joints o Type
Andrew G. Lee, MD; Chelsea Livingston
core  

Long COVID and hypermobility spectrum disorders have shared pathophysiology

open access: yesFrontiers in Neurology
Hypermobility spectrum disorders (HSD) and hypermobile Ehlers–Danlos syndrome (hEDS) are the most common joint hypermobility conditions encountered by physicians, with hypermobile and classical EDS accounting for >90% of all cases.
Ravindra Ganesh, Bala Munipalli
doaj   +1 more source

Microvascular status and skin thickness in adults with hypermobile Ehlers-Danlos syndrome: a pilot investigation

open access: yes, 2023
Objective Hypermobile Ehlers-Danlos Syndrome (hEDS) is a hereditary connective tissue disorder characterised by joint hypermobility, chronic musculoskeletal pain, and skin abnormalities and easy bruising. Morphological and functional microvascular status
M. Cutolo   +11 more
core  

The Physical and Psychological Impacts of Exercise on hypermobile Ehlers-Danlos Syndrome: A Case Study [PDF]

open access: yes
Hypermobile Ehlers-Danlos Syndrome (hEDS) is a subtype of a series of connective tissue disorders identified by joint hypermobility and multisystemic symptoms.
Posey, Savannah
core  

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