Results 91 to 100 of about 705,477 (336)

A randomized wait-list controlled trial of a social support intervention for caregivers of patients with primary malignant brain tumor

BMC Health Services Research, 2021
Background Informal family caregivers constitute an important and increasingly demanding role in the cancer healthcare system. This is especially true for caregivers of patients with primary malignant brain tumors based on the rapid progression of ...
Maija Reblin, Dana Ketcher, Rachael McCormick, Veronica Barrios-Monroy, Steven K. Sutton, Bradley Zebrack, Kristen J. Wells, Solmaz Sahebjam, Peter Forsyth, Margaret M. Byrne   +9 more
doaj   +1 more source

Adults With Intellectual Disability Moving out of the Family Home Using the National Disability Insurance Scheme: Family Members' Planning Experiences

Australian Journal of Social Issues, EarlyView.
ABSTRACT For adults with intellectual disability and their families, future planning and moving out of the family home in Australia will increasingly occur within the context of the National Disability Insurance Scheme (NDIS). As a market‐based, individualised funding system its impact on this transition remains largely unknown. This paper reports on a
I. Belperio, R. Walker, C. Bigby, I. Wiesel, F. Rillotta, C. Hutchinson   +5 more
wiley   +1 more source

Identifying Sociodemographic Characteristics Associated With Burden Among Caregivers of the Urban Homebound

Gerontology and Geriatric Medicine, 2016
Limited research has explored whether the burden associated with caring for homebound patients varies across racial groups or by relationship status. We examined these variations for this vulnerable population.
Ania Wajnberg MD, Tacara N. Soones MD, MPH, Kristofer L. Smith MD, MPP, David Russell PhD, Joseph S. Ross MD, MHS, Alex Federman MD, MPH   +5 more
doaj   +1 more source

Overlooking Informal Dementia Caregivers' Burden

Research in Gerontological Nursing, 2016
Patients with Alzheimer's disease (AD) need early caregiver support. Caregivers often have poor health, but usually do not have time to seek medical advice for their own conditions. Patients' physicians, who are frequently the sole medical practitioner caregivers contact regularly, have an important function in recognizing family caregivers' burdens ...
Riedel, Oliver, Klotsche, Jens, Wittchen, Hans-Ulrich   +2 more
openaire   +4 more sources

Caregiver burden among informal caregivers in the largest specialized palliative care unit in Malaysia: a cross sectional study

BMC Palliative Care, 2020
Background Informal caregivers (IC) are often overshadowed by the attention required by the terminally ill. This study aims to reveal the estimated proportion of caregiver burden, psychological manifestations and factors associated with caregiver burden ...
Zati Sabrina Ahmad Zubaidi, F. Ariffin, Cindy Teoh Cy Oun, D. Katiman   +3 more
semanticscholar   +1 more source

Caregiver Reports on the Needs and Experiences of Children Impacted by Parental Incarceration: Results From an Australian Survey

Australian Journal of Social Issues, EarlyView.
ABSTRACT Children experiencing parental imprisonment are known to be among the most overlooked in our community. They often experience multiple and compounding disadvantages, with long‐term consequences, but receive no specialised assistance. Knowledge about these children and their families is lacking in Australia and is required to inform policy ...
Catherine Flynn, Lana Battaglia, Lorana Bartels, Susan Dennison, Susy Harrigan, Lee Huggins, Sofia Grage‐Moore   +6 more
wiley   +1 more source

Un análisis del perfil del cuidador y su impacto sobre la situación laboral: cuidadores principales de enfermos de Alzheimer y otras demencias en el Sur Oeste de España [PDF]

, 2015
The aim of this paper is to analyse the main demographic and socio-economic conditions of the primary caregivers of Alzheimer's and dementia sufferers, and their relationship to the employment situation of the caregiver.
González Camacho, María del Carmen, Mainar Causapé, Alfredo José, Ruiz-Adame Reina, Manuel   +2 more
core  

End-of-life priorities of older adults with terminal illness and caregivers: A qualitative consultation [PDF]

, 2019
Background As older adults approach the end‐of‐life (EOL), many are faced with complex decisions including whether to use medical advances to prolong life. Limited information exists on the priorities of older adults at the EOL.
Barr, Margo, Cardona, Magnolia, Dawson, Angela, Hanly, Laura, Harrison, Reema, Hillman, Ken, Lewis, Ebony T., McFarland, Kathryn, Psirides, Alex, Zammit, Alexandra   +9 more
core   +1 more source

Cost‐utility analysis of nusinersen–risdiplam switch in patients with spinal muscular atrophy in Croatia: A discrete event simulation model

British Journal of Clinical Pharmacology, EarlyView.
Introduction In recent years, the treatment of spinal muscular atrophy (SMA), a rare disease, has significantly progressed, improving patients' survival and overall quality of life. However, current SMA treatments are expensive, and some (nusinersen) are very inconvenient for patients.
Andrej Belančić, Ivana Stević, Elvira Meni Maria Gkrinia, Dinko Vitezić, Slobodan Janković   +4 more
wiley   +1 more source

The Experience of Informal Caregivers for Persons with Metastatic Cancer Perceptions of Support [PDF]

, 2014
Presented to the Faculty of the University of Alaska Anchorage in Partial Fulfillment of the Requirements for the Degree of MASTER OF SCIENCEPurpose/Objectives: To investigate the experience and perceptions of support of caregivers for persons with ...
Fossler, Erica
core