Results 31 to 40 of about 6,766,695 (302)

Unheard and Under‐Supported: Health‐Related Quality of Life in Children, Adolescents, and Young Adults With Sickle Cell Disease

Pediatric Blood &Cancer, EarlyView.
Abstract Background Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy affecting millions of individuals worldwide. The clinical expression and psychosocial burden of SCD vary widely across geographical, cultural, and healthcare system contexts, underscoring the need for setting‐specific approaches to assessment.
Desiré Fantasia, Giulia Reggiani, Elizabeth J. Maran, Maria Elisa Delle Fave, Ilaria Baido, Anna Chiara Frigo, Maria Paola Boaro, Raffaella Colombatti   +7 more
wiley   +1 more source

Results of the Childhood Cancer and Leukaemia Group's United Kingdom Relapsed Wilms Tumour Trial

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background The United Kingdom relapsed Wilms tumour (UKW‐R) trial aimed to improve the historically low survival rates after relapse of Wilms tumour (WT) through a prospective national risk‐stratified protocol. The trial also evaluated efficacy and toxicity of high‐dose melphalan.
Sucheta J. Vaidya, Veronica Moroz, Juliet Hale, Vesna Pavasovic, Rachel Hobson, Patricia Sartori, Daniel Saunders, Mark Powis, Gordan M. Vujanic, Stephen Baker, Kathy Pritchard‐Jones   +10 more
wiley   +1 more source

Ukrainian IT companies in the global information technology services market

Вісник Харківського національного університету імені В.Н. Каразіна: Серія Економіка
The global IT services market plays an important role in the development of Ukraine's economy: it increases GDP, contributes to job creation, attracts investment, and strengthens integration into the global economy.
O. Shuba, M. Shuba, M. Sahura
doaj   +1 more source

Exploring Preferences for a Digital Single‐Session Intervention for Adolescent Siblings of Youth With Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Adolescent siblings of children with cancer are at elevated risk for psychosocial problems. Unfortunately, various barriers such as limited family time and resources, conflicting schedules, and psychosocial staffing constraints at cancer centers hinder sibling access to support.
Christina M. Amaro, Sarah Silver, Prishi Patel, Meredith K. Reffner Collins, Kimberly S. Canter, Stephanie Fooks‐Parker, Michael Amylon, Shawna V. Hudson, Jessica L. Schleider, Melissa A. Alderfer, Katie A. Devine   +10 more
wiley   +1 more source

Rural Libraries as Providers of Life-long Learning Opportunities: An Appraisal of Information Services and Facilities in West Bengal

Libri
The purpose of this study is to examine the services and facilities provided by rural public libraries in West Bengal, India. In addition, the study aims to evaluate the perceptions of librarians regarding the implementation of Information Communication ...
Munshi Shamim Aktar, Ansari Mehtab Alam, Barsha Sayantoni   +2 more
doaj   +1 more source

Information Technology in Activities of the World’s Leading Libraries and Their Use under Modern Communications

Український журнал з бібліотекознавства та інформаційних наук, 2022
The aim of the article is to highlight the main trends in the development and implementation of information and communication technology in the library service system of the world’s leading countries.
Ірина Бородай, Людмила Татарчук, Тетяна Підгайна   +2 more
doaj   +1 more source

Implementing Health‐Related Quality of Life Assessment in Pediatric Oncology: A Feasibility Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background There is growing interest in embedding health‐related quality of life (HRQoL) assessment and patient‐reported outcome measures (PROMs) within clinical cancer care. This study evaluated the feasibility, acceptability, and usability of implementing an electronic PROM (ePROM) platform to measure HRQoL in children with cancer ...
Mikaela Doig, Sophie Jessop, Jordan R. Hansford, Hien Le, Matthew O'Connor, Peter Gorayski, Andrew Cunningham, Amanda Hutchinson, Victoria Bedford, Eva Bezak, Nayana Parange, Kelly Skelton, Timothy Price, Michala Short   +13 more
wiley   +1 more source

A Survey of Data Governance Strategies to Provide Effective Information Services in Academic Libraries

Iranian Journal of Information Processing & Management, 2021
This research aims to study the dimensions of implementation of data governance strategies in planning in order to provide information services of libraries of Islamic Azad University. The research is an analytical-survey study.
Fariba Jalili, Fariborz Doroudi, Ali Akbar Famil rouhani   +2 more
doaj  

Model-driven design of geo-information services [PDF]

, 2004
This thesis presents a method for the development of distributed geo-information systems. The method is organised around the design principles of modularity, reuse and replaceability. The method enables the modelling of both behavioural and informational
Morales Guarin, J.M., Morales Guarin, Javier Marcelino   +1 more
core   +2 more sources

World Guide to Technical Information and Documentation Services. United Nations Educational, Scientific and Cultural Organization. Paris: UNESCO, 1969. 287 pp. Hardbound, $6.00; paper, $4.00 (available in U.S.A. from Unipub. Inc., P.O. Box 433, New York City, N.Y. 10016). [PDF]

, 2017
Excerpt: This very useful reference volume is a companion to UNESCO\u27s World Guide to Science Information and Documentation Services (1965). It lists and describes the principal centers in each country which provide technical information, either to all
Wilkinson, Ronald S.
core   +3 more sources