Results 21 to 30 of about 3,287,144 (299)

Context-sensitive Dialogues

open access: yesEtikk i Praksis: Nordic Journal of Applied Ethics
This article reflects on the central themes of Vilhjálmur Árnason's work, particularly his focus on contextualized morality and dialogical ethics.
Vilhjalmur Arnason
doaj   +1 more source

Informed consent comprehension in African research settings

open access: yes, 2014
ObjectivePrevious reviews on participants' comprehension of informed consent information have focused on developed countries. Experience has shown that ethical standards developed on Western values may not be appropriate for African settings where ...
Chandramohan, Daniel   +11 more
core   +1 more source

Informed consent and HIV

open access: yesSouthern African Journal of HIV Medicine, 2001
No abstract available.
Steve Andrews
doaj   +1 more source

Improving assent in health research: a rapid systematic review

open access: yesBMC Medical Research Methodology, 2020
Background Enrolment in a research study requires the participant’s informed consent. In the case of minors, informed consent of the respective legal guardian is obtained in conjunction with informed assent of the underage p articipant.
Dominik Soll   +3 more
doaj   +1 more source

Quality of informed consent in clinical trials

open access: yesJournal of Pre-Clinical and Clinical Research, 2020
Introduction and objectives Obtaining consent prior to any medical intervention is currently a necessity, the omission of which may lead to litigation. Years of analyses have resulted in strict policies as to what should the patient be informed about and
Anna Zagaja
doaj   +1 more source

Biobanks and Informed Consent

open access: yesVoices in Bioethics, 2014
Biobanks have added complexity to the idea of informed consent, which is an important ethical component in research involving human subjects. The idea behind informed consent is that each potential participant needs to voluntarily determine whether or ...
Gabriella Foe
doaj   +1 more source

False Hopes, Informed Consent

open access: yesVoices in Bioethics, 2013
In America, with our closely held values of optimism and perseverance, we are very often loath to confront death and dying; cancer patients are told to fight, to hold on to a positive attitude, to nurture faith and hope.
Jennifer Cable
doaj   +1 more source

An integrated conceptual framework for evaluating and improving ‘understanding’ in informed consent

open access: yesTrials, 2017
Background The development of understandable informed consent (IC) documents has proven to be one of the most important challenges in research with humans as well as in healthcare settings.
Sabine Bossert, Daniel Strech
doaj   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu   +8 more
wiley   +1 more source

Clinical and Biological Features of Response in Resistant Neuroblastoma to 131I‐Metaiodobenzylguanidine Radiotherapy in the Anti‐GD2 Immunotherapy Era

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background 131I‐metaiodobenzylguanidine (131I‐MIBG) radiotherapy is a key treatment for relapsed and refractory (R/R) neuroblastoma (NB). Patients with R/R disease treated in the modern era are increasingly exposed to anti‐GD2 immunotherapy, which exerts selective pressure and may modify both tumor cell state and microenvironment.
Benjamin J. Lerman   +7 more
wiley   +1 more source

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