Results 31 to 40 of about 4,891,122 (284)

False Hopes, Informed Consent

Voices in Bioethics, 2013
In America, with our closely held values of optimism and perseverance, we are very often loath to confront death and dying; cancer patients are told to fight, to hold on to a positive attitude, to nurture faith and hope.
Jennifer Cable
doaj   +1 more source

An integrated conceptual framework for evaluating and improving ‘understanding’ in informed consent

Trials, 2017
Background The development of understandable informed consent (IC) documents has proven to be one of the most important challenges in research with humans as well as in healthcare settings.
Sabine Bossert, Daniel Strech
doaj   +1 more source

Why and When Are Evidence‐Based Interventions Adopted in Paediatric Supportive Care? A Qualitative Exploration of the Determinants of Photobiomodulation Implementation

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Oral mucositis is a common and debilitating side effect of childhood cancer and stem cell transplant treatments. It affects the quality of life of children and young people (CYP) and places a strain on services. Photobiomodulation is recommended for oral mucositis prevention in international guidance but is poorly implemented in UK ...
Claudia Heggie, Kara A. Gray‐Burrows, Peter F. Day, Bob Phillips, Carl A. Thompson   +4 more
wiley   +1 more source

Reviving Informed Consent: Using Risk Perception in Clinical Trials [PDF]

, 2003
The current doctrine of informed consent falls far short of its potential to serve as a valuable safeguard for human research subjects. Instead of providing a channel of communication between physician and subject, informed consent is a lifeless entity ...
Ziker, Dana
core   +1 more source

Dexamethasone for Chemotherapy‐Induced Nausea and Vomiting Prevention in Pediatric Patients: International Consensus

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background An international Delphi panel of experts developed consensus statements to delineate the circumstances where the risks of dexamethasone as an antiemetic do and do not outweigh its benefits. Procedure Experts in supportive care of pediatric patients were invited to participate.
Negar Shavandi, Paula D. Robinson, Shana Jacobs, L. Lee Dupuis, the International Pediatric Dexamethasone Panel, Sameer Bakhshi, Tiene Bauters, Eva Brack, Simone Cesaro, Claire Fosbrook, Jason Freedman, Tamara MacDonald, Eloise Neumann, Venkatraman Radhakrishnan, Rod Rassekh, Florian Slimano, Johnathan Soggee, Joel Thompson, Marianne van de Wetering, Milena Villarroel, Jasper Wong   +20 more
wiley   +1 more source

Cluster randomized trial assessing the effects of rapid ethical assessment on informed consent comprehension in a low-resource setting [PDF]

, 2016
Background Maximizing comprehension is a major challenge for informed consent processes in low-literacy and resource-limited settings. Application of rapid qualitative assessments to improve the informed consent process is increasingly considered useful.
A Addissie, A Mandava, A McDonald, A Nishimura, A Paris, Adamu Addissie, Bobbie Farsides, C Junghans, C Lavelle-Jones, C Penn, C Weijer, C Weijer, C Woodsong, D Minnies, E Cohn, F Tekola, Gail Davey, J Benatar, J Flory, J Sugarmann, L Buccini, L Dunn, L Paré Toe, L Tamariz, M Chang, M Enama, M Patel, Melanie Newport, N Ejiogu, P Ndebele, P Tindana, PA Marshall, R Kiguba, R Sudore, S Blanton, S Bull, S Galea, S Joffe, S Kneipp, S Sanchez, Serebe Abay, SJ Bull, Yeweyenhareg Feleke, Z Hill   +43 more
core   +2 more sources

Real‐World Pediatric Blinatumomab Administration: Access to Outpatient Care Delivery and Impact of a Hospital‐Dispensed Model

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Blinatumomab has been shown to be highly effective for patients with pediatric B‐ALL and has recently become standard of care therapy. Due to its past use in the clinical trial setting, there is limited information available about real‐world administration.
Katelyn Oranges, Kelly A. Duffy, Sara McDonough, Evelyn Kurpiewski, R. Jennifer Randall, Allison Barz Leahy, Haley M. Newman, Joyce P. Lee, Stephen P. Hunger, Anne F. Reilly, David T. Teachey, Susan R. Rheingold, Daniel J. Zheng   +12 more
wiley   +1 more source

Automated informed consent

Big Data & Society
Online privacy policies or terms and conditions ideally provide users with information about how their personal data are being used. The reality is that very few users read them: they are long, often hard to understand, and ubiquitous.
Adam John Andreotta, Björn Lundgren
doaj   +1 more source

Informed consent in clinical trials

South African Journal of Bioethics and Law, 2022
Background. Informed consent (IC) is not only a regulatory but also an ethical requirement to participate in any clinical trial. It is essential to determine that research participants understand what they consent to.
G P Kovane, V C Nikoderm, O Khondowe
doaj   +1 more source

An Empirical Analysis of the Medical Informed Consent Doctrine: Search for a Standard of Disclosure [PDF]

, 1991
Informed consent and its conceptual equivalents, e.g., right-to-know, are increasingly important. The author discusses the development of the informed consent doctrine in tort cases and attempts to evaluate the consistency of its application.
Merz, Jon F.
core   +1 more source