Results 41 to 50 of about 554,536 (332)

Renewed vision on pulmonary rehabilitation service delivery for chronic obstructive pulmonary disease management beyond COVID-19

Chronic Diseases and Translational Medicine, 2021
Pulmonary rehabilitation (PR) is a cornerstone management for chronic obstructive pulmonary disease (COPD). International respiratory societies defined PR is more than “just an exercise program”; it is a comprehensive care delivered by a team of ...
Shakila Devi Perumal
doaj   +1 more source

Patient Activation in Childhood, Adolescent, and Young Adult Cancer Survivors: Current Insights and Implications for Survivorship Care—A Systematic Review From the e‐QuoL Project

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Patient activation—encompassing knowledge, confidence, and skills in managing individual's health—is a cornerstone of person‐centered care. However, its significance among childhood, adolescent, and young adult cancer survivors (CAYACS) remains unexplored. This article examines the application of the 13‐item Patient Activation Measure (
Charlotte Demoor‐Goldschmidt, Anne Maas, Gisela Michel, Amandine Bertrand, Kristen E. T. Thornton, Martine Bellanger, Anna‐Liesa Filbert, Desiree Grabow, Monica Muraca, Katharina Roser, Sara Oberti, Jelena Roganovic, Hanne Cathrine Lie   +12 more
wiley   +1 more source

Building Data-Driven Pathways From Routinely Collected Hospital Data:A Case Study on Prostate Cancer [PDF]

, 2015
Background: Routinely collected data in hospitals is complex, typically heterogeneous, and scattered across multiple Hospital Information Systems (HIS).
Adriansyah, A, Cios, KJ, Holmström, Benny, Lang, M, Luc, Kd, Mans, R, Mans, R, Pearson, SD, Safran, C   +8 more
core   +2 more sources

Unheard and Under‐Supported: Health‐Related Quality of Life in Children, Adolescents, and Young Adults With Sickle Cell Disease

Pediatric Blood &Cancer, EarlyView.
Abstract Background Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy affecting millions of individuals worldwide. The clinical expression and psychosocial burden of SCD vary widely across geographical, cultural, and healthcare system contexts, underscoring the need for setting‐specific approaches to assessment.
Desiré Fantasia, Giulia Reggiani, Elizabeth J. Maran, Maria Elisa Delle Fave, Ilaria Baido, Anna Chiara Frigo, Maria Paola Boaro, Raffaella Colombatti   +7 more
wiley   +1 more source

Clinically Actionable Hypercholesterolemia and Hypertriglyceridemia in Children with Nonalcoholic Fatty Liver Disease [PDF]

, 2018
OBJECTIVE: To determine the percentage of children with nonalcoholic fatty liver disease (NAFLD) in whom intervention for low-density lipoprotein cholesterol or triglycerides was indicated based on National Heart, Lung, and Blood Institute guidelines.
Adina Alazraki, Ajay K. Jain, Alan Wells, Albert Hernandez, Alex Towbin, Ali Mencin, Alice Sternberg, Ann Klipsch, Ann Scheimann, April Carr, Averell Sherker, Bradley Aouizerat, Camille Langlois, Claude Sirlin, Craig Bross, Cynthia A. Behling, Cynthia Rigsby, Daniel Podberesky, David E. Kleiner, Debra King, Diana Lopez-Graham, Edward C. Doo, Elena Reynoso, Elizabeth M. Brunt, Emily Ragozzino, Emily Rothbaum Perito, Erin Hallinan, Evelyn Hsu, Gerald Behr, Girish Subbarao, Hannah Awai, James Tonascia, Janet Freebersyser, Janis Durelle, Jay H. Hoofnagle, Jay H. Lefkowitch, Jean P. Molleston, Jeanne M. Clark, Jeffrey B. Schwimmer, Jennifer Collins, Jesse Courtier, Jessica Cruz Munos, Jinping Lai, Joan Siegner, Joel E. Lavine, Jonathan A. Africa, Jose Derdoy, Joy Ito, Kara Cooper, Karen Murray, Katherine Yates, Kathleen Lake, Kathryn E. Harlow, Kathryn Fowler, Kevin P. May, Kim Cecil, Kimberlee Bernstein, Kimberly Kafka, Kimberly P. Newton, Kristin Bramlage, Kristina Wriston, Kumar Sandrasegaran, Laura Miriel, Laura Walker, Laura Wilson, Leanel Maldonado, Linda D. Ferrell, Lisa Sharda, Lixin Zhu, Maria Cordero, Mariana Dominguez Villarreal, Mark H. Fishbein, Mark Van Natta, Matthew Yeh, Melissa Paiz, Melissa Young, Michael Middleton, Michele Donithan, Milana Isaacson, Miriam B. Vos, Molly Bozic, Natasha Feier, Nicholas Raviele, Oscar W. Cummings, Pat Osmack, Patricia H. Belt, Patricia R. Robuck, Patricia Ugalde-Nicalo, Patrika Tsai, Peter F. Whitington, Philip Rosenthal, Rajesh Krisnamurthy, Randolph Otto, Rebecca Cleeton, Rebecca Torrance, Rohit Kohli, Rory Mahabir, Ryan Gill, Ryan Himes, Saeed Mohammad, Sarah Barlow, Sarah Barlow, Saul Karpen, Sherry Brown, Simon Horslen, Sonja Williams, Stavra A. Xanthakos, Stephanie DeVore, Stephanie H. Abrams, Susan S. Baker, Susan Stewart, Susan Torretta, Theresa Cattoor   +112 more
core   +2 more sources

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

A holistic approach is needed for women with an inflammatory arthritis in the different phases around pregnancy; the results of the CAPRI study

Frontiers in Global Women's Health
IntroductionWomen with inflammatory arthritis (IA) face significant challenges throughout preconception, pregnancy, and postpartum phases, including concerns about disease management and medication safety.
A. J. van Steensel – Boon, H. M. Wintjes, E. Röder, H. T. W. Smeele, L. J. C. Kranenburg - van Koppen, R. J. E. M. Dolhain, L. F. Perez-Garcia   +6 more
doaj   +1 more source

Implementing Health‐Related Quality of Life Assessment in Pediatric Oncology: A Feasibility Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background There is growing interest in embedding health‐related quality of life (HRQoL) assessment and patient‐reported outcome measures (PROMs) within clinical cancer care. This study evaluated the feasibility, acceptability, and usability of implementing an electronic PROM (ePROM) platform to measure HRQoL in children with cancer ...
Mikaela Doig, Sophie Jessop, Jordan R. Hansford, Hien Le, Matthew O'Connor, Peter Gorayski, Andrew Cunningham, Amanda Hutchinson, Victoria Bedford, Eva Bezak, Nayana Parange, Kelly Skelton, Timothy Price, Michala Short   +13 more
wiley   +1 more source

Parent Quality of Life at Two Years Following Their Child's Completion of Acute Lymphoblastic Leukemia Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Parents of children treated for acute lymphoblastic leukemia (ALL) often experience significant caregiver burden and disruption to their well‐being. While parent quality of life (QoL) during treatment is well characterized, little is known about outcomes during early survivorship.
Sara Dal Pra, Maria McCarthy, Michael Takagi, Cinzia De Luca   +3 more
wiley   +1 more source

Integrated Depression Care Pathway: Project Report [PDF]

Rea, K, Smith, GM
core   +1 more source