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Addressing the challenges of intellectual disability identification for health policy and research in Australia [PDF]

Frontiers in Psychiatry
This article discusses the important issue of the need for a stable definition of intellectual disability in order to allow comparisons by place and over time such as in the monitoring of this population’s health needs and utilization. The aim of the new
Helen Leonard, Helen Leonard, Kingsley Wong, Kingsley Wong, Peiwen Liao, Manzoor Khan, Zoe Aitken, Zoe Aitken, Jenny Bourke, Jenny Bourke, Julian N. Trollor, Jenny Downs, Jenny Downs, Mary-Ann O’Donovan, Mary-Ann O’Donovan, Anne M. Kavanagh, Anne M. Kavanagh, Preeyaporn Srasuebkul   +17 more
doaj   +2 more sources

Cancer Incidence in People With Intellectual Disability and Down Syndrome in Australia: A Cohort Study [PDF]

Cancer Medicine
Objective There is inconsistent data on cancer risk in people with intellectual disability. Our primary objective was to compare the incidence of cancer in people with and without intellectual disability.
Julian Trofimovs, Claire M. Vajdic, Preeyaporn Srasuebkul, Sallie‐Anne Pearson, Julian N. Trollor   +4 more
doaj   +2 more sources

Distributed Health Literacy Among People With Intellectual Disability, Their Supporters and Healthcare Professionals: A Scoping Review [PDF]

Health Expectations
Background Health literacy is associated with improved healthcare experiences and health outcomes and is influenced by the social context in which it occurs.
Maryann Barrington, Karen R. Fisher, Ben Harris‐Roxas, Julian N. Trollor, Catherine Spooner, Julie M. Christensen, Janelle Weise   +6 more
doaj   +2 more sources

The Genetics of Intellectual Disability [PDF]

Brain Sciences, 2023
Intellectual disability (ID) has a prevalence of ~2–3% in the general population, having a large societal impact. The underlying cause of ID is largely of genetic origin; however, identifying this genetic cause has in the past often led to long diagnostic Odysseys.
Sandra Jansen, Lisenka E. L. M. Vissers, Bert B. A. de Vries   +2 more
openaire   +3 more sources

COVID-19-related prescribing challenge in intellectual disability

BJPsych Open, 2021
Background The COVID-19 pandemic and associated restrictions are expected to affect the mental health of the population, especially people with intellectual disability and/or autism spectrum disorder, because of a variety of biological and psychosocial ...
Bushra Rauf, Hafsa Sheikh, Hassan Majid, Ashok Roy, Rani Pathania   +4 more
doaj   +1 more source

The impact of COVID-19 on people ageing with an intellectual disability in Ireland: Protocol for a follow-up survey [version 2; peer review: 2 approved]

HRB Open Research, 2021
Background:  The COVID-19 pandemic and associated lockdowns have had a dramatic impact on many people, but individuals with an intellectual disability, given the prevalence of congregate living and high levels of co-morbid conditions, may be particularly
Mary McCarron, Andrew Allen, Darren McCausland, Margaret Haigh, Retha Luus, Fathima Rosmin Bavussantakath, Fintan Sheerin, Niamh Mulryan, Eilish Burke, Eimear McGlinchey, Fidelma Flannery, Philip McCallion   +11 more
doaj   +1 more source

The impact of COVID-19 on people ageing with an intellectual disability in Ireland: Protocol for a follow-up survey [version 1; peer review: 2 approved]

HRB Open Research, 2021
Background:  The COVID-19 pandemic and associated lockdowns have had a dramatic impact on many people, but individuals with an intellectual disability, given the prevalence of congregate living and high levels of co-morbid conditions, may be particularly
Mary McCarron, Andrew Allen, Darren McCausland, Margaret Haigh, Retha Luus, Fathima Rosmin Bavussantakath, Fintan Sheerin, Niamh Mulryan, Eilish Burke, Eimear McGlinchey, Fidelma Flannery, Philip McCallion   +11 more
doaj   +1 more source

Current practice and adaptations being made for people with autism admitted to in-patient psychiatric services across the UK

BJPsych Open, 2021
Background A significant number of people with autism require in-patient psychiatric care. Although the requirement to adequately meet the needs of people with autism in these settings is enshrined in UK law and supported by national guidelines, little ...
Keir Jones, Satheesh Gangadharan, Philip Brigham, Edward Smith, Rohit Shankar   +4 more
doaj   +1 more source

Improving nocturnal event monitoring in people with intellectual disability in community using an artificial intelligence camera

Epilepsy & Behavior Reports, 2023
There is higher prevalence of epilepsy and SUDEP in people with intellectual disability (PwID) compared to general population. Accurate seizure recording particularly at night can be challenging in PwID.
Sarah Lennard, Rachel Newman, Brendan McLean, Caryn Jory, David Cox, Charlotte Young, Eve Corson, Rohit Shankar   +7 more
doaj   +1 more source

The impact of coronavirus disease 2019 (COVID-19) on older adults with an intellectual disability during the first wave of the pandemic in Ireland [version 2; peer review: 2 approved]

HRB Open Research, 2021
Background: People with intellectual disability have increased risk of exposure to and adverse outcomes from coronavirus disease 2019 (COVID-19).They also face challenges to mental health and well-being from COVID-19-related social restrictions and ...
Darren McCausland, Andrew Allen, Retha Luus, Eimear McGlinchy, Fintan Sheerin, Fidelma Flannery, Eilish Burke, Mary McCarron, Philip McCallion   +8 more
doaj   +1 more source