Results 41 to 50 of about 1,917,089 (269)

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

The design and development of a decision support package for low back pain [PDF]

, 2014
Arthritis Care & Research is published by Wiley Periodicals, Inc. on behalf of the American College of Rheumatology. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use ...
Sandhu, H, Friede, T, Tysall, C, Underwood, M., Ngunjiri, A., Ngunjiri, Anne, Griffiths, F., Tysall, Colin, Thistlethwaite, J, Tim Friede, Anne Ngunjiri, Woolvine, Mark, Friede, T., Underwood, Martin, Tysall, C., Martin Underwood, Griffiths, F, Lord, J, Jill Thistlewaite, Sally Brown, Joanne Lord, Colin Tysall, Ngunjiri, A, Sandhu, H., Frances Griffiths, Underwood, M, Patel, Shilpa, Woolvine, M., Sandhu, Harbinder, Lord, J., Harbinder Sandhu, Mark Woolvine, Lord, Joanne, Friede, Tim, Brown, S, Thistlewaite, J., Brown, S., Patel, S, Brown, Sally, Thistlewaite, Jill, Griffiths, Frances, Shilpa Patel, Woolvine, M, Patel, S.   +43 more
core   +1 more source

Awareness of Nursing Students’ Biomedical Ethics and Attitudes toward Withdrawal of Life-Sustaining Treatment [PDF]

Child Health Nursing Research, 2017
Purpose: This study was done to analyze nursing students’ attitudes to life-sustaining treatment by measuring their awareness of biomedical ethics and resulting attitude toward withdrawal of life-sustaining treatment.
Geun Myun Kim, Kyung Suk Sung, Eun Joo Kim   +2 more
doaj   +1 more source

Extracorporeal membrane oxygenation for severe acute respiratory distress syndrome in children with leukemia/lymphoma: A retrospective case series

Frontiers in Pediatrics, 2022
ObjectiveThe cancer patients with severe acute respiratory distress syndrome (ARDS) benefit from extracorporeal membrane oxygenation (ECMO) remains unanswered. We analyzed clinical characteristics and outcomes of pediatric patients with leukemia/lymphoma
Yucai Zhang, Yucai Zhang, Yucai Zhang, Yiping Zhou, Jingyi Shi, Yijun Shan, Ting Sun, Chunxia Wang, Chunxia Wang, Chunxia Wang, Jingbo Shao, Yun Cui, Yun Cui, Yun Cui   +13 more
doaj   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Appraising extracorporeal life support - current and future roles in adult intensive care

, 2017
Despite advances in conventional intensive care, patients continue to die of cardiorespiratory failure. Many of them could be bridged to recovery, longer term destination devices or thoracic organ transplantation, with the timely use of extracorporeal ...
Fraser, J, Brodie, D, MacLaren, G, Shekar, K   +3 more
core   +1 more source

End-of-life decisions : a cross-national study of treatment preference discussions and surrogate decision-maker appointments [PDF]

, 2013
Background Making treatment decisions in anticipation of possible future incapacity is an important part of patient participation in end-of-life decision-making.
Evans, N.C., Natalie Evans, Bertolissi, S., Viviane Van Casteren, Pasman H. Roeline, Van Casteren, Viviane, Miccinesi, G., Pasman, H.R., Vega Alonso, Tomás, Block, L. van den, T. Vega Alonso, Onwuteaka-Philipsen, B.D., Van den Block, Lieve, Donker, Gé, S. Bertolissi, Bertolissi, Stefano, Pasman, H Roeline, Block, L., Evans, N., Stefano Bertolissi, Pasman, H.R.W., V. Van Casteren, Van den Block Lieve, Bregje Onwuteaka-Philipsen, Luc Deliens, ?, ?, Bertolissi Stefano, O. Zurriaga, Brearley, Sarah, Donker Gé, Gé Donker, Zurriaga, Oscar, Deliens, L., Onwuteaka-Philipsen, B., Viviane, V.C., Tomás Vega Alonso, Onwuteaka-Philipsen Bregje, H.R. Pasman, Donker, G., Oscar Zurriaga, van Casteren, V., Evans Natalie, L. Van den Block, EUROIMPACT, Miccinesi, Guido, Evans, Natalie, EUROIMPACT on behalf of, Lieve Van den Block, Miccinesi Guido, H Roeline Pasman, Deliens Luc, Zurriaga Oscar, B.D. Onwuteaka-Philipsen, N. Evans, L. Deliens, Deliens, Luc, Zurriaga, O., Vega Alonso Tomás, G. Miccinesi, Casteren, V. van, Onwuteaka-Philipsen, Bregje, Guido Miccinesi, Van Casteren Viviane, G.A. Donker, Alonso, T.V., Vega Alonso, T.   +65 more
core   +1 more source

Uncovering critical transitions and molecule mechanisms in disease progressions using Gaussian graphical optimal transport

Communications Biology
Understanding disease progression is crucial for detecting critical transitions and finding trigger molecules, facilitating early diagnosis interventions. However, the high dimensionality of data and the lack of aligned samples across disease stages have
Wenbo Hua, Ruixia Cui, Heran Yang, Jingyao Zhang, Chang Liu, Jian Sun   +5 more
doaj   +1 more source

“I can’t make all this work.” End of life care provision in natural disasters: a qualitative study

BMC Palliative Care, 2023
Background Natural disasters are becoming more frequent and severe and profoundly impact the end-of-life care experience, including service provision. There is a paucity of research examining healthcare workers’ experiences in responding to care demands ...
Marguerite Kelly, Imogen Mitchell, Iain Walker, Jane Mears, Brett Scholz   +4 more
doaj   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source