Results 51 to 60 of about 6,730,594 (397)

Psychosocial Outcomes in Patients With Endocrine Tumor Syndromes: A Systematic Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction The combination of disease manifestations, the familial burden, and varying penetrance of endocrine tumor syndromes (ETSs) is unique. This review aimed to portray and summarize available data on psychosocial outcomes in patients with ETSs and explore gaps and opportunities for future research and care.
Daniël Zwerus, Floortje Strobbe, Annemarie A. Verrijn Stuart, Hanneke M. van Santen, Gerlof D. Valk, Sasja A. Schepers, Rachel S. van Leeuwaarde   +6 more
wiley   +1 more source

Family members’ perceptions of end-of-life care across diverse locations of care [PDF]

, 2013
Background: The goal of the study was to assess perceived level of satisfaction with end-of-life care, focusing on the last 48 hours of life. Methods: A previously validated instrument was used in a telephone survey with bereaved family members (n=
Gallagher, Romayne, Krawczyk, Marian
core   +2 more sources

Uncovering critical transitions and molecule mechanisms in disease progressions using Gaussian graphical optimal transport

Communications Biology
Understanding disease progression is crucial for detecting critical transitions and finding trigger molecules, facilitating early diagnosis interventions. However, the high dimensionality of data and the lack of aligned samples across disease stages have
Wenbo Hua, Ruixia Cui, Heran Yang, Jingyao Zhang, Chang Liu, Jian Sun   +5 more
doaj   +1 more source

Prognostic accuracy of oxygen debt for mortality in patients undergoing venoarterial extracorporeal membrane oxygenation therapy: a retrospective cohort study

Frontiers in Medicine
BackgroundCardiogenic shock is associated with high mortality. Prognostic scales, such as Sequential Organ Failure Assessment (SOFA), Acute Physiology and Chronic Health Evaluation II (APACHE II), and Survival After Venoarterial ECMO (SAVE), have been ...
Michel Perez-Garzon, Michel Perez-Garzon, Michel Perez-Garzon, Henry Robayo-Amortegui, Henry Robayo-Amortegui, Henry Robayo-Amortegui, Angie Ochoa-Ricardo, Alejandro Quintero-Altare, Claudia Poveda-Henao, Claudia Poveda-Henao   +9 more
doaj   +1 more source

Do nursing homes for older people have the support they need to provide end-of-life care? A mixed methods enquiry in England [PDF]

, 2011
Nursing homes are a common site of death, but older residents receive variable quality of end-of-life care. We used a mixed methods design to identify external influences on the quality of end-of-life care in nursing homes.
Jane Seymour, Arun Kumar, Katherine Froggatt   +2 more
openalex   +5 more sources

Nutritional and Behavioral Intervention for Long‐Term Childhood Acute Leukemia Survivors With Metabolic Syndrome

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Metabolic syndrome (MetS) is a common complication in survivors of childhood acute lymphoblastic and myeloid leukemia (AL), and a major risk factor for premature cardiovascular disease, type‐2‐diabetes, and metabolic dysfunction‐associated steatotic liver disease (MASLD).
Visentin Sandrine, Béliard Sophie, Renard Cécile, Caussy Cyrielle, Hamidou Zeinab, Romano David, Gacem Mélanie, Petit Arnaud, Saultier Paul, Borentain Patrick, Michel Gérard   +10 more
wiley   +1 more source

Interaction design and emotional wellbeing [PDF]

, 2012
The World Health Organisation has concluded that emotional wellbeing is fundamental to our quality of life. It enables us to experience life as meaningful and is an essential component of social cohesion, peace and stability in the living environment
Coyle, David, Lindley, Sian, Linehan, Conor, Tang, Karen P.   +3 more
core   +3 more sources

Extracorporeal Life Support Organization Registry International Report 2022: 100,000 Survivors

ASAIO journal (1992)
The Extracorporeal Life Support Organization (ELSO) maintains the world’s largest extracorporeal membrane oxygenation (ECMO) registry by volume, center participation, and international scope.
J. Tonna, Philip S. Boonstra, Graeme MacLaren, Matthew L Paden, Daniel Brodie, Marc M Anders, A. Hoskote, K. Ramanathan, Robert W. Hyslop, Jeffrey J. Fanning, P. Rycus, Christine M. Stead, N. Barrett, T. Mueller, Rene D Gómez, Poonam Malhotra Kapoor, John F. Fraser, Robert H. Bartlett, P. Alexander, Ryan P. Barbaro   +19 more
semanticscholar   +1 more source

Reinventing Palliative Care Delivery in the Era of COVID-19: How Telemedicine Can Support End of Life Care

The American journal of hospice & palliative care, 2020
Telemedicine technology has become essential to healthcare delivery in the COVID-19 era, but concerns remain regarding whether the intimacy and communication that is central to high-quality palliative care will be compromised by the use of this ...
Katherine C. Ritchey, Alice Foy, Erin McArdel, D. Gruenewald   +3 more
semanticscholar   +1 more source

The MedSupport Multilevel Intervention to Enhance Support for Pediatric Medication Adherence: Development and Feasibility Testing

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction We developed MedSupport, a multilevel medication adherence intervention designed to address root barriers to medication adherence. This study sought to explore the feasibility and acceptability of the MedSupport intervention strategies to support a future full‐scale randomized controlled trial.
Elizabeth G. Bouchard, Hital Patel, Paula C. Vincent, Justine Kahn, Kira Bona, Thai Hoa Tran, Elisa M. Rodriguez, Kristopher Attwood, Kara M. Kelly   +8 more
wiley   +1 more source