Results 1 to 10 of about 869,874 (301)

Using administrative datasets to improve linkage rates and quality of PII in the Generation Victoria cohort [PDF]

International Journal of Population Data Science
Maintaining accurate personal identifying information (PII) is a challenge for large population cohorts. Over time, identifier quality declines, reducing linkage sensitivity and increasing false matches and manual clerical review.
Sharon Goldfield, Jatender Mohal, Anthony Del Monaco, Anna Fedyukova, Adam Ismail, Philip Witowski, Adam Moss, Sharon Williams, Melissa Wake   +8 more
doaj   +2 more sources

How public and participant voices have influenced the UK Longitudinal Linkage Collaboration and its Trusted Research Environment.

International Journal of Population Data Science, 2022
Objectives UK longitudinal population studies have complex governance structures and participant safeguards. As a new Trusted Research Environment (TRE) for >20 longitudinal studies, the UK Longitudinal Linkage Collaboration (UK LLC) must ensure ...
Kirsteen Campbell, Rebecca Whitehorn, Andy Boyd, Robin Flaig, Stela McLachlan, Christie Levein, Jacqueline Oakley, Sarah Chave, Michael Gregg, Della Ogunleye   +9 more
doaj   +1 more source

The UK Longitudinal Linkage Collaboration legal & governance framework: managing ‘delegated and distributed’ data processing working with cross-sectorial data owners.

International Journal of Population Data Science, 2022
Objectives The UK Longitudinal Linkage Collaboration (UKLLC) was established to link and integrate data from many longitudinal population studies (LPS) with participants’ records from diverse governmental data owners across the UK.
Jacqui Oakley, Robin Flaig, Emma Turner, Kirsteen Campbell, Katharine Evans, Stela McLachlan, Richard Thomas, Andrew Boyd   +7 more
doaj   +1 more source

A blinded evaluation of privacy preserving record linkage with Bloom filters

BMC Medical Research Methodology, 2022
Background Privacy preserving record linkage (PPRL) methods using Bloom filters have shown promise for use in operational linkage settings. However real-world evaluations are required to confirm their suitability in practice.
Sean Randall, Helen Wichmann, Adrian Brown, James Boyd, Tom Eitelhuber, Alexandra Merchant, Anna Ferrante   +6 more
doaj   +1 more source

Population Data Centre Profile - The Western Australian Data Linkage Branch

International Journal of Population Data Science, 2020
Established in 1995, the Western Australian Data Linkage Branch (DLB) is Australia’s longest running data linkage agency. The Western Australian Data Linkage System (WADLS) employs an enduring linkage model spanning over 60 data collections supported by ...
Steve Hodges, Tom Eitelhuber, Alexandra Merchant, Janine Alan   +3 more
doaj   +1 more source

Sociodemographic differences in linkage error: an examination of four large-scale datasets

BMC Health Services Research, 2018
Background Record linkage is an important tool for epidemiologists and health planners. Record linkage studies will generally contain some level of residual record linkage error, where individual records are either incorrectly marked as belonging to the ...
Sean Randall, Adrian Brown, James Boyd, Rainer Schnell, Christian Borgs, Anna Ferrante   +5 more
doaj   +1 more source

Supporting Transition from Out of Home Care to Adulthood: Linked Data Is Central to The Compass Social Impact Bond

International Journal of Population Data Science, 2020
The COMPASS program supports young people to successfully transition from Out of Home Care to adulthood. COMPASS is a social impact bond partnership between Victorian government, not-for-profit organisations and investors.
Sharon Williams, Mark Sipthorp, Nicholas Ivkovic, Alexander Inglis   +3 more
doaj   +1 more source

Spatially Enabling The Master Linkage Map – Getting Straight To The Point

International Journal of Population Data Science, 2019
Background with rationale In recent years, rapid advancements in Geographic Information Systems (GIS) software has provided a range of users with an array of options to visually represent multiple digital data assets and for a range of purposes.
Brian Stokes, Tim Albion, Nadine Wiggins
doaj   +1 more source

Participatory Landslide Inventory (PLI): An Online Tool for the Development of a Landslide Inventory

Complexity, 2022
A landslide inventory is a detailed register of the spatial distribution, geometry, and attributes of landslides and is essential for landslide hazard analysis, risk management, regional planning, and land use management and development, especially in ...
E. N. C. Perera, A.M.C.T. Gunaratne, S.B.D. Samarasinghe   +2 more
doaj   +1 more source

Evaluation of approximate comparison methods on Bloom filters for probabilistic linkage

International Journal of Population Data Science, 2019
Introduction The need for increased privacy protection in data linkage has driven the development of privacy-preserving record linkage (PPRL) techniques.
Adrian P Brown, Sean M Randall, James H Boyd, Anna M Ferrante   +3 more
doaj   +1 more source