Results 31 to 40 of about 3,423,786 (296)

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu   +8 more
wiley   +1 more source

Linked data on the web (LDOW2008) [PDF]

open access: yesProceedings of the 17th international conference on World Wide Web, 2008
The Web is increasingly understood as a global information space consisting not just of linked documents, but also of Linked Data. More than just a vision, the resulting Web of Data has been brought into being by the maturing of the Semantic Web technology stack, and by the publication of an increasing number of datasets according to the principles of ...
Christian Bizer   +3 more
openaire   +3 more sources

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker   +11 more
wiley   +1 more source

Linked Data

open access: yesIK: tijdschrift over intellectueel kapitaal, 2011
IK: tijdschrift over intellectueel kapitaal 10 (2) p.
openaire   +2 more sources

Data Linking for the Semantic Web [PDF]

open access: yesInternational Journal on Semantic Web and Information Systems, 2011
By specifying that published datasets must link to other existing datasets, the 4th linked data principle ensures a Web of data and not just a set of unconnected data islands. The authors propose in this paper the term data linking to name the problem of finding equivalent resources on the Web of linked data.
A. Ferrara, A. Nikolov, F. Scharffe
openaire   +4 more sources

Venous Thromboembolism in Pediatric Bone Sarcoma Patients: A 10‐Year, Single‐Institution Experience Encompassing the COVID‐19 Pandemic

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Osteosarcoma (OS) and Ewing sarcoma (EWS) are the most common primary bone cancers in children, but acute thrombosis is poorly characterized in this population. Our study evaluated the rates of venous thromboembolism (VTE) and associated risk factors in pediatric patients with bone sarcomas treated over a 10‐year period encompassing
Sarah Kappa   +8 more
wiley   +1 more source

Serological Benefit of SARS‐CoV‐2 Vaccination Relative to Infection in Children With Acute Lymphoblastic Leukemia

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Children with acute lymphoblastic leukemia (ALL) are at risk of severe outcomes from SARS‐CoV‐2 (SCV2). In the post‐pandemic context, where most children have been infected with SCV2, there are limited data on whether vaccination remains beneficial in children with ALL.
Janna R. Shapiro   +11 more
wiley   +1 more source

Linked Data [PDF]

open access: yes, 2016
Linked Data opens up structured data from databases to be searched and queried via the web, and a geographic element is increasingly being used to link to those data. This book helps you understand how to organize and describe data that includes geographic content and how to publish it as Linked Data for the Semantic Web, as well as explaining the ...
Hart, Glen, Dolbear, Catherine
openaire   +3 more sources

Claudin‐6 Protein Expression in Atypical Teratoid/Rhabdoid Tumors Is Strongly Enriched in the Molecular Subgroup AT/RT‐TYR

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Claudin‐6 has emerged as a promising immunotherapeutic target, yet protein‐level data in atypical teratoid/rhabdoid tumors (AT/RTs) have been inconsistent. We analyzed 36 well‐characterized AT/RT samples and found membranous claudin‐6 protein expression in 58% of cases, with striking enrichment in the molecular subgroup AT/RT‐TYR (100%) and ...
Victoria E. Fincke   +4 more
wiley   +1 more source

Cataloguing in the open - the disintegration and distribution of the record

open access: yesJLIS.it, 2013
As part of a strategic investment in openness the Swedish National Library has released the National Bibliography and accompanying authority file as open data with a Creative Commons Zero license effectively putting it in the public domain.
Martin Malmsten
doaj   +1 more source

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