Results 111 to 120 of about 4,828,104 (248)

Barriers to accessing prescribed medical cannabis: qualitative insights from people using non-prescribed cannabis for medicinal purposes in the Netherlands

Harm Reduction Journal
Background Although medical cannabis has been legally available by prescription in the Netherlands for more than two decades, few individuals use it. Instead, most people who use cannabis for therapeutic purposes continue to obtain it through unregulated,
Lisa Strada, Nadine van Gelder, Thomas Martinelli, Alex Fraser, Bethany Hipple Walters   +4 more
doaj   +1 more source

Setting research priorities for palliative and end-of-life care: a James Lind Alliance Priority Setting Partnership Refresh

BMJ Open
Background Palliative care supports the physical, emotional, social and spiritual needs of people with serious life-limiting illness. Future research must align with the priorities of people approaching the end of their lives, and those close to them ...
Sarah Holmes, Ollie Minton, Ben Bowers, Briony F Hudson, Mary Rabbitte, Alison Penny, Melanie Taylor, Rashmi Kumar, Diana Robinson, Angela McCullagh, Jennifer Bedford, Jamilla Hussain, Annabel Dawson, Jessica Bush, Charlotte Simpson-Greene, Phillippa Ashcroft, Louisa Nicoll, Alexandra Reece, Sabine L Best   +18 more
doaj   +1 more source

Safety and Tolerability of Givinostat: Evidence From Real‐World and Clinical Practice

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective The aim of our study was to establish the prevalence of adverse events in a real‐world setting in boys living with Duchenne muscular dystrophy (DMD) treated with givinostat as part of an Expanded Access Program (EAP) in Italy. Methods The cohort included 90 ambulant boys, with age when treatment started between 6 and 23 years (mean ...
Marika Pane, Anna Capasso, Chiara Arpaia, Adele D’Amico, Emilio Albamonte, Federica Trucco, Maria Sframeli, Riccardo Masson, Francesca Magri, Luca Bello, Romina Venditti, Claudia Dosi, Michela Catteruccia, Michele Tosi, Claudio Bruno, Sonia Messina, Giacomo Comi, Elena Pegoraro, Valeria A. Sansone, Eugenio Mercuri   +19 more
wiley   +1 more source

The effectiveness, implementation, and experiences of peer support approaches for mental health: a systematic umbrella review

BMC Medicine
Background Peer support for mental health is recommended across international policy guidance and provision. Our systematic umbrella review summarises evidence on the effectiveness, implementation, and experiences of paid peer support approaches for ...
Ruth E. Cooper, Katherine R. K. Saunders, Anna Greenburgh, Prisha Shah, Rebecca Appleton, Karen Machin, Tamar Jeynes, Phoebe Barnett, Sophie M. Allan, Jessica Griffiths, Ruth Stuart, Lizzie Mitchell, Beverley Chipp, Stephen Jeffreys, Brynmor Lloyd-Evans, Alan Simpson, Sonia Johnson   +16 more
doaj   +1 more source

Peer Work and Stigma Reduction in Australian Mental Health Policy: Tackling Sanism or Reinforcing the Status Quo?

Studies in Social Justice
Peer workers are increasingly included as part of mental health policy approaches to stigma, reflecting ongoing imperatives to include lived experience within mental health policy and practice.
Aimee Sinclair, Christina Fernandes, Sue Gillieatt, Lyn Mahboub, Simon Katterl   +4 more
doaj   +1 more source

Comparative Effectiveness and Safety of Inebilizumab Versus Rituximab in AQP4‐IgG‐Positive NMOSD

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Rituximab (anti‐CD20, RTX) and inebilizumab (anti‐CD19, INE) represent B‐cell‐depleting therapies used for aquaporin‐4 antibody‐positive (AQP4‐IgG+) neuromyelitis optica spectrum disorder (NMOSD); however, direct comparative evidence remains limited.
Jie Lin, Binbin Xue, Dewei Xie, Jia Li, Juyuan Pan, Lanbing Zhu, Qiaowen Tong, Jing Lin, Ruofan Zhu, Xu Zhang, Junhui Xia, Xiang Li   +11 more
wiley   +1 more source

Medical management and differential diagnosis of restrictive eating disorders in men: a case study report with co-produced recommendations

Journal of Eating Disorders
Background Males with eating disorders (EDs) are an underrepresented population whose symptomatology and treatment needs are poorly understood, having been overlooked in clinical research to date.
James Downs, Clive Kelly
doaj   +1 more source

Evaluation of Digital Technologies for Home‐Based Assessment in People With Amyotrophic Lateral Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Digital technologies hold promise for transforming healthcare by enhancing personalized treatments and offer valuable opportunities to improve patient care. Here, we evaluated several novel, self‐administered, home‐based, digital endpoints for their association with corresponding conventional standard clinical measures (primary) in ...
Arne Mueller, Vanessa Vallejo, Mónica Povedano Panadés, Orla Hardiman, Véronique Danel‐Brunaud, Senda Ajroud‐Driss, Philippe Couratier, Jeremy Shefner, Anna Gokey, Mike DiCesare, Erin Lennox, Jens Praestgaard, Lucie Brujin, Peggy Allred, Ram Miller   +14 more
wiley   +1 more source

Engaging critically: exploring the varying roles of lived experience advisors in an implementation science study on management of opioid prescribing

Research Involvement and Engagement
Involvement of individuals with lived experience, also called “patient partners”, is a key element within implementation science, the study of how to put evidence into practice.
Emily Nicholas Angl, Celia Laur, Michael Strange, Barbara Sklar, Mina Tadrous, Noah Ivers   +5 more
doaj   +1 more source

Engaging people with lived experience of dementia in research meetings and events: insights from multiple perspectives

Frontiers in Dementia
This perspective article describes the experiences of engaging people with lived experience of dementia in research meetings and events from the perspectives of people with lived experience, researchers, trainees, audience members and others.
Ellen Snowball, Ellen Snowball, Christine Aiken, Myrna Norman, Wayne Hykaway, Zoe Dempster, Inbal Itzhak, Emily McLellan, Katherine S. McGilton, Katherine S. McGilton, Katherine S. McGilton, Jennifer Bethell, Jennifer Bethell, Jennifer Bethell   +13 more
doaj   +1 more source