Results 91 to 100 of about 1,882,484 (309)

Super‐Refractory Status Epilepticus (SRSE) in a Patient With Compound Heterozygous OPA1 Variants: Case Report and Literature Review

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Super‐Refractory Status Epilepticus (SRSE) is a rare, life‐threatening neurological emergency with unclear etiology in many cases. Mitochondrial dysfunction, often due to disease‐causing genetic variants, is increasingly recognized as a cause, with each gene producing distinct pathophysiological mechanisms.
Pouria Mohammadi, Lara Basovic, Christopher Michael McGraw   +2 more
wiley   +1 more source

Engaging critically: exploring the varying roles of lived experience advisors in an implementation science study on management of opioid prescribing

Research Involvement and Engagement
Involvement of individuals with lived experience, also called “patient partners”, is a key element within implementation science, the study of how to put evidence into practice.
Emily Nicholas Angl, Celia Laur, Michael Strange, Barbara Sklar, Mina Tadrous, Noah Ivers   +5 more
doaj   +1 more source

’The Book of Stars’: Understanding a Consumer’s Fan Relationship with a Film Actress Through a Narrative Transportation Approach [PDF]

, 2010
Although consumers have always been fascinated by the works and private lives of film stars, scant attention has been paid as to how the relationship between fans and film actors expresses itself in everyday consumer behaviour.
Whelan, Susan, Wohlfeil, Markus
core  

Writing as life performed [PDF]

, 2014
In this chapter I explore the interrelatedness of practice, rehearsal, and performance and their applicability in the domain of “life.” These relationships are complicated when, in reference to Adorno’s Minima Moralia, the content of critical-essayistic ...
Parker Dixon, Martin J.C.
core   +1 more source

Cutaneous Phosphorylated Alpha‐Synuclein in Lewy Body Dementia

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To determine the test performance of cutaneous phosphorylated alpha‐synuclein (P‐SYN) in dementia with Lewy bodies (DLB), individuals with reduced Montreal Cognitive Assessment (MoCA) and healthy controls. Methods This is the first subgroup analysis of the Synuclein‐One study, a prospective, blinded study evaluating P‐SYN detection ...
Christopher H. Gibbons, Todd Levine, Charles H. Adler, Bailey Bellaire, Ningshan Wang, Pinky Agarwal, Georgina M. Aldridge, Alexandru Barboi, Daniel Claassen, Virgilio G. H. Evidente, Douglas Galasko, Alejandra Gonzalez‐Duarte, Ramon Gil, Mark Gudesblatt, Stuart H. Isaacson, Horacio Kaufmann, Pravin Khemani, Rajeev Kumar, Guillaume Lamotte, Andy J. Liu, Nikolaus R. McFarland, Mitchell G. Miglis, Adam Reynolds, Gregory A. Sahagian, Marie‐Helene Saint‐Hilaire, Julie B. Schwartzbard, Wolfgang Singer, Michael J. Soileau, Steven Vernino, Patricio Millar Vernetti, Oleg Yerstein, Roy Freeman   +31 more
wiley   +1 more source

Medical management and differential diagnosis of restrictive eating disorders in men: a case study report with co-produced recommendations

Journal of Eating Disorders
Background Males with eating disorders (EDs) are an underrepresented population whose symptomatology and treatment needs are poorly understood, having been overlooked in clinical research to date.
James Downs, Clive Kelly
doaj   +1 more source

Setting research priorities for palliative and end-of-life care: a James Lind Alliance Priority Setting Partnership Refresh

BMJ Open
Background Palliative care supports the physical, emotional, social and spiritual needs of people with serious life-limiting illness. Future research must align with the priorities of people approaching the end of their lives, and those close to them ...
Sarah Holmes, Ollie Minton, Ben Bowers, Briony F Hudson, Mary Rabbitte, Alison Penny, Melanie Taylor, Rashmi Kumar, Diana Robinson, Angela McCullagh, Jennifer Bedford, Jamilla Hussain, Annabel Dawson, Jessica Bush, Charlotte Simpson-Greene, Phillippa Ashcroft, Louisa Nicoll, Alexandra Reece, Sabine L Best   +18 more
doaj   +1 more source

Remote Monitoring in Myasthenia Gravis: Exploring Symptom Variability

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Myasthenia gravis (MG) is a rare, autoimmune disorder characterized by fluctuating muscle weakness and potential life‐threatening crises. While continuous specialized care is essential, access barriers often delay timely interventions. To address this, we developed MyaLink, a telemedical platform for MG patients.
Maike Stein, Maximilian Mönch, Meret Herdick, Frauke Stascheit, Sarah Hoffmann, Hannah Preßler, Philipp Mergenthaler, Carla Dusemund, Paolo Doksani, Haoqi Sun, Pushpa Narayanaswami, Andreas Meisel, Lea Gerischer, Sophie Lehnerer   +13 more
wiley   +1 more source

Peer Work and Stigma Reduction in Australian Mental Health Policy: Tackling Sanism or Reinforcing the Status Quo?

Studies in Social Justice
Peer workers are increasingly included as part of mental health policy approaches to stigma, reflecting ongoing imperatives to include lived experience within mental health policy and practice.
Aimee Sinclair, Christina Fernandes, Sue Gillieatt, Lyn Mahboub, Simon Katterl   +4 more
doaj   +1 more source

Sending Our Petitions to God : Nigerian Immigrant Healthcare Worker Settlement, Gender and the Role of Religious Networks [PDF]

, 2017
This paper provides a brief overview of a study aimed at understanding the lived experiences of health care migrants from Nigeria now living in Canada and their individual perceptions regarding their migration experience. We report here on an interesting
Adekola, Sheri, Walton-Roberts, Margaret
core   +1 more source