Results 31 to 40 of about 14,331,869 (278)

Extracting homogenous data from heterogenous diseases: RaraSwed, the Swedish national rare disease quality registry

BMC Global and Public Health
In the Swedish universal healthcare system, persons living with rare diseases (PLWRD) face major challenges in receiving diagnosis and accessing care,stemming in part from heterogeneity of disease and systemic barriers to care. This contributes to health
Sanna Mansoob, Dan Hellström, Magnus Burstedt, Malin Grände, Cecilia Gunnarsson, Stephanie Juran, Lovisa Lovmar, Katarina Sandgren, Maria Johansson Soller, Anna Wedell, Cecilia Soussi Zander, Alexandra Wennberg, Marie Stenmark Askmalm   +12 more
doaj   +1 more source

RETHINKING LOCAL KNOWLEDGE: DIGITIZING LOCAL KNOWLEDGE BETWEEN EXTINCTION AND SUSTAINABILITY

Journal of Social Political Sciences
This study investigates the impact of digitalization on the preservation of local knowledge within the Ammatoa Kajang community in South Sulawesi. It specifically addresses the research questions: (1) What forms of local knowledge in the Ammatoa Kajang ...
Paisal Halim, Syamsiah Badruddin, Suci Ayu Kurniah P   +2 more
doaj   +1 more source

The challenges of One Health. Accessing and networking with different forms of knowledge and epistemologies

CABI One Health, 2023
Despite its recent growth in popularity since the COVID-19 pandemic, One Health* can be traced back to the colonial period when it was used to control the health of local communities and their animals while exploiting natural resources. At present, it is
Nicolas Lainé
doaj   +1 more source

Evidence‐Informed Multidisciplinary Consensus Guidance for the Psychosocial Care of Adolescents With High‐Risk Cancer: Recommendations From the Italian Association of Pediatric Hematology and Oncology

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Adolescents with high‐risk cancer face complex developmental, psychosocial, and ethical challenges that extend beyond disease‐directed treatment. Although international recommendations exist for communication, psychosocial care, pediatric palliative care, survivorship, and shared decision‐making, these have largely evolved within ...
Johanna M. C. Blom, Dorella Scarponi, Giulia Zucchetti, Teresa Perillo, Maria Montanaro, Elisa Marconi, Chiara Rutigliano, Paolo Colavero, Paola Quarello, Marina Bertolotti, Monica Cellini, Carlo Clerici, Maurizio Mascarin, Francesca Bomben, Andrea Ferrari, the expert workgroup   +15 more
wiley   +1 more source

Enhancing Rural Resilience in a Tea Town of China: Exploring Tea Farmers’ Knowledge Production for Tea Planting, Tea Processing and Tea Tasting

Land, 2022
Rural areas have undergone visible transformations in recent decades. It leads to some ecological problems. Enhancing rural resilience is necessary in the face of these changes. However, previous literature often ignored the roles of indigenous actors in
Xudan Lin, Hong Zhu, Duo Yin
doaj   +1 more source

The Impact of the COVID‐19 Pandemic on Childhood Cancer Survival: A Population‐Based Assessment of Survival Patterns Between 2015 and 2023 in Germany

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Numerous international studies have reported declines in new cancer diagnoses, delayed diagnoses and disruptions in cancer treatment following the implementation of COVID‐19 pandemic public health measures, raising concerns that these effects may ultimately contribute to increased cancer mortality.
Friederike Erdmann, Maike Wellbrock, Javier Louro, Arndt Borkhardt, Martin Schrappe, Claudia Trübenbach, Desiree Grabow, Cécile M. Ronckers, Joachim Schüz   +8 more
wiley   +1 more source

The Role of an African University in Community Development: A Systematic Review [PDF]

Journal of Education and Learning Technology
Many perceive universities as crucial to providing the necessary knowledge for development. It was anticipated that African universities would play a significant role in meeting the demands of the communities.
Eyitayo Francis Adanlawo, Nomusa Yolanda Nkomo-Asare   +1 more
doaj   +1 more source

Impact of Initial Treatment Setting on Survival in Relapsed Pediatric and AYA Bone Sarcomas: A Secondary Analysis of a Prospective Clinical Trial

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Outcomes in relapsed or refractory pediatric and AYA bone sarcomas remain poor, and the impact of early referral to specialized sarcoma centers on survival is unclear. Early centralization of care may improve local and systemic treatment quality, but evidence in this population is limited.
Justyna Antoniuk‐Majchrzak, Katarzyna Bilska, Tomasz Koziński, Jadwiga Węcławek‐Tompol, Dorota Sega‐Pondel, Radosław Chaber, Wanda Badowska, Katarzyna Rosłan, Hanna Koseła‐Paterczyk, Anna Raciborska   +9 more
wiley   +1 more source

Therapeutic Apheresis in Nigeria: A Multi‐Center Summary of Abstracts From the Inaugural Nigerian Society for Apheresis Scientific Meeting

Therapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Background Therapeutic apheresis (TA) is an established treatment modality for hematologic, neurologic, and immunologic disorders, yet access remains severely limited in sub‐Saharan Africa. Donor apheresis, including platelet apheresis collection from healthy donors, represents an important complementary modality supporting blood product ...
Nosa Bazuaye, Chimezie Okwuonu, Evelyn Idam, Folasade Adelekan‐Popoola, Shakirat Gold‐Olufadi, Olufunto Olufela Kalejaiye, Abdullateef Ogala, Zinnah Aloziem, Blossom Amamchukwu, Patience Elimia, Mkpoikanabasi Obot‐Obot, Henry Mbakwe, Praises Maduagwuna, Olatunji Akinrodoye, Chiamaka Anyanwu, Benjamin Anyanwu, Adedamola Akinsiku, Oluwatoyin A. Akinsiku, Muzamil O. Hassan, Fatiu A. Arogundade, Olalekan E. Ojo, Homayemem Weli, Jesupelumi Adenihun, Aderemi Adelaja, Ebun Bamgboye, Olalekan Olatise, Ade E. Faponle, Ayoola Odeyemi, Michael Muoka, Stephen Asaolu, Qudrat Busari, Blessing Dawudu, Michael Naiyeju, Rasheed A. Balogun   +33 more
wiley   +1 more source

When research relies on wildlife samples obtained from communities: a case study on local cultural contexts of beluga whale (Delphinapterus leucas) harvesting in Tuktoyaktuk, NT and Arviat, NU

Arctic Science
Each community across Inuit Nunaat has specific histories, geography, and cultural norms or practices when it comes to beluga (Delphinapterus leucas) harvesting.
E. Sudlovenick, V. Pokiak, L. Loseto
doaj   +1 more source