Results 31 to 40 of about 1,588,250 (315)

Unheard and Under‐Supported: Health‐Related Quality of Life in Children, Adolescents, and Young Adults With Sickle Cell Disease

open access: yesPediatric Blood &Cancer, EarlyView.
Abstract Background Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy affecting millions of individuals worldwide. The clinical expression and psychosocial burden of SCD vary widely across geographical, cultural, and healthcare system contexts, underscoring the need for setting‐specific approaches to assessment.
Desiré Fantasia   +7 more
wiley   +1 more source

Can Interviewer Observations of the Interview Predict Future Response?

open access: yesMethoden, Daten, Analysen, 2017
Interviewers made four observations related to future participation, respondent cooperation, enjoyment and whether the respondent found the questions difficult, for a large sample of face-to-face interviews at wave four of the UK Millennium Cohort Study (
Ian Plewis   +2 more
doaj   +1 more source

Effects of Cancer Treatment on Somatosensory and Nociceptive Processing in Children and Adolescents: A Systematic Review

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Chemotherapy‐induced peripheral neuropathy remains a major complication in pediatric cancer, with disrupted somatosensory and nociceptive processing being a key aspect. This review synthesizes empirical studies on alterations in somatosensory and nociceptive processing in children and adolescents with cancer.
Julia Schweiger   +4 more
wiley   +1 more source

Using linked Hospital Episode Statistics data to aid the handling of non-response and restore sample representativeness in the 1958 National Child Development Study.

open access: yesInternational Journal of Population Data Science, 2022
Objectives There is growing interest in whether linked administrative data have the potential to aid analyses subject to missing data in cohort studies.
Nasir Rajah   +5 more
doaj   +1 more source

Clinical Course and Impact of Breaks in Therapy for Children With Relapsed/Refractory Solid Tumors

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Pediatric relapsed or refractory (R/R) solid tumors carry a dismal prognosis, and postrelapse patient experiences are not well described. We present postrelapse outcomes, including number of R/R events and subsequent therapy regimens.
Matthew T. McEvoy   +5 more
wiley   +1 more source

Adherence to the European Society of Cardiology hypertension guidelines over 12 years of follow-up in the Irish population

open access: yesOpen Heart
Background Hypertension is a significant risk factor for cardiovascular disease, dementia and chronic kidney disease (CKD). Older adults bear the brunt of these conditions, and managing hypertension can be especially challenging in this cohort.
John William McEvoy   +6 more
doaj   +1 more source

Linking death registration and survey data: Procedures and cohort profile for The Irish Longitudinal Study on Ageing [version 1; peer review: 2 approved, 1 approved with reservations]

open access: yesHRB Open Research, 2020
Background: Research on mortality at the population level has been severely restricted by an absence of linked death registration and survey data in Ireland.
Mark Ward   +6 more
doaj   +1 more source

Parent Quality of Life at Two Years Following Their Child's Completion of Acute Lymphoblastic Leukemia Treatment

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Parents of children treated for acute lymphoblastic leukemia (ALL) often experience significant caregiver burden and disruption to their well‐being. While parent quality of life (QoL) during treatment is well characterized, little is known about outcomes during early survivorship.
Sara Dal Pra   +3 more
wiley   +1 more source

Cognitive Functioning in Vorinostat‐Treated Pediatric and Young Adult Patients Over the First 180 Days After Hematopoietic Stem Cell Transplant

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Cognitive and psychological difficulties could negatively interfere with treatment adherence and quality of life before and after hematopoietic stem cell transplant (HSCT). Methods to mitigate these changes may have positive effects on treatment success.
Kristen L. Votruba   +11 more
wiley   +1 more source

Trail Making Test performance contributes to subjective judgment of visual efficiency in older adults [PDF]

open access: yesPeerJ, 2015
Introduction. The determinant factors that influence self-reported quality of vision have yet to be fully elucidated. This study evaluated a range of contextual information, established psychophysical tests, and in particular, a series of cognitive tests
Annalisa Setti   +3 more
doaj   +2 more sources

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