The intersection of health information management and clinical registries. [PDF]
Health Inf ManagKilkenny MF, Burns C, Henderson J.
europepmc +1 more source
Management of enterprise activity with the help of modern information systems
, 2018 T.F. Shitova
openalex +1 more source
Remote Monitoring in Myasthenia Gravis: Exploring Symptom Variability
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Background Myasthenia gravis (MG) is a rare, autoimmune disorder characterized by fluctuating muscle weakness and potential life‐threatening crises. While continuous specialized care is essential, access barriers often delay timely interventions. To address this, we developed MyaLink, a telemedical platform for MG patients.
Maike Stein +13 more
wiley +1 more source
Knowledge graph-based intelligent data management and information innovation service model for university library systems. [PDF]
PLoS OneLiu F.
europepmc +1 more source
Design and Key Technology of Gardening Information Management System Based on Data Center
, 2010 Xi-Guang Wang, Wei-Hua Lin, Wen Zeng
openalex +2 more sources
Predicting Loss of Ambulation in Limb Girdle Muscular Dystrophy R9
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Background Limb girdle muscular dystrophy type R9 (LGMDR9) results from biallelic variants in FKRP. There is limited data to predict loss of ambulation (LOA) among those with LGMDR9. Methods Participants in an ongoing dystroglycanopathy natural history study (NCT00313677) with FKRP variants who had achieved ambulation and were more than 3 ...
Chandra L. Miller +6 more
wiley +1 more source
Applying an Ethical Lens to the Treatment of People With Multiple Sclerosis
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT The practice of neurology requires an understanding of clinical ethics for decision‐making. In multiple sclerosis (MS) care, there are a wide range of ethical considerations that may arise. These involve shared decision‐making around selection of a disease‐modifying therapy (DMT), risks and benefits of well‐studied medications in comparison to
Methma Udawatta, Farrah J. Mateen
wiley +1 more source
Nurses' Expectations of a Knowledge Management System in Nursing Practice: Qualitative Study. [PDF]
JMIR NursVogt M +5 more
europepmc +1 more source
An information assistant system for the prevention of tunnel vision in crisis management
, 2008 Yujia Cao
openalex +1 more source