Results 181 to 190 of about 7,334 (267)

The All of Us Research Program's Social Media Outreach to Underrepresented Populations: Mixed Methods Analysis. [PDF]

J Med Internet Res
Zhang DJ, Bentz MG, Shim JK, Lee SS.
europepmc   +1 more source

The Diagnosis That Arrived Decades Late: Living Without and Then With Myhre Syndrome

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Myhre syndrome (MIM #139210) is a rare multisystem disorder first described in 1981, characterized by short stature, neurodevelopmental delay, joint contractures, and cardiopulmonary complications. Its molecular basis, recurrent pathogenic variants in SMAD4, was not discovered until 2011. This narrative is based on a review of medical records,
Abdallah F. Elias
wiley   +1 more source

Resilience in the Face of War: a Collaborative Autoethnography of a Ukrainian Refugee Student's Journey through Europe Striving to Find Oneself. [PDF]

Acta Med Acad
Shmatkova M, Hren D, Puljak L.
europepmc   +1 more source

Understanding Arthrogryposis Multiplex Congenita (AMC) Across the Lifespan: An Integrative Review of the Adult AMC Registry's Contributions With Lived Experience Partnerships

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT This reflective essay explores how collaborative work between researchers and adults living with Arthrogryposis Multiplex Congenita (AMC) has deepened and broadened our understanding of what it means to live with this rare condition. By intentionally integrating the lived experiences of individuals with AMC into research processes, the ...
Bonita J. Sawatzky, Megan K. MacGillivray, Tracey Schalk, William Bennett Mortenson   +3 more
wiley   +1 more source

This is my way of Drinking: A Scoping Review of how Individuals Narrate Their Alcohol-Related Problems. [PDF]

Nordisk Alkohol Nark
Christiansen R, Nielsen JG, Maagaard C, Wohlmann A, Nielsen AS.   +4 more
europepmc   +1 more source

The Insistence of Blackness and the Persistence of Antiblackness in Ireland

Australian Journal of Social Issues, EarlyView.
ABSTRACT This paper positions Ireland as a critical site for examining the insistence of blackness and an antiblackness created and sustained through Irish ethnonationalist imaginaries and exclusionary processes. Drawing on connected sociologies and Irish Black Studies, this enquiry argues that antiblackness in Ireland operates as a generational force,
Philomena Mullen
wiley   +1 more source

Use of cognitive interviews to develop PrEP education for men in New York and Alabama. [PDF]

Patient Educ Couns
Brin M, Kay ES, Radix A, Belkind U, Batey DS, Ferrara S, Tanner M, Galindo C, Fontalvo S, Kenniff J, Schnall R.   +10 more
europepmc   +1 more source

‘The Other Parent’: A Critical Policy Analysis of Fatherhood Discourses in the Australian Government's Paid Parental Leave Scheme

Australian Journal of Social Issues, EarlyView.
ABSTRACT The Australian paid parental leave (PPL) government scheme aims to support working parents through financial assistance and the promotion of gender equality in caregiving responsibilities. However, the scheme's implementation has been critiqued for its gendered design, which marginalises fathers and reinforces traditional gender roles.
Lily Lewington, Bernadette Sebar, Jessica Lee   +2 more
wiley   +1 more source

Sexual dimorphism in the programming effects of prenatal manganese multi-media biomarker on temporal cognition in school-aged children. [PDF]

Sci Rep
Lane JM, Liu SH, Cory-Slechta DA, Midya V, Eggers S, Alcala C, Gil-Martínez G, Téllez Rojo MM, Wright RO.   +8 more
europepmc   +1 more source

Building Community Amidst the Institutional Whiteness of Graduate Study: Black Joy and Maroon Moves in an Academic Marronage

Australian Journal of Social Issues, EarlyView.
ABSTRACT This article reflects on the construction of a supportive community of Black Afro‐diasporic graduate students and their supervisors researching issues relating to race in the field of education in Australia. It draws on the concept of marronage—a term rooted in the fugitive act of becoming a maroon, where enslaved people enacted an escape in ...
Hellen Magoi, Casianus Gemoh, Denise Chapman, Edmund Hypolite, Simon Angok, Melanie Baak, Joel Windle   +6 more
wiley   +1 more source