Results 31 to 40 of about 742,533 (245)

The Role of “Adult‐Onset” Cancer Predisposition Genes in Pediatric Cancer: A Comprehensive Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Current literature estimates that 10% of pediatric cancers are caused by pathogenic or likely pathogenic (P/LP) germline variants in cancer predisposition genes (CPGs). Variants in CPGs thought to increase cancer risk exclusively during adulthood are referred to as “adult‐onset” CPGs (aoCPGs).
Maria Rozo, Miriam A. Bornhorst, Angela J. Waanders, Sara Zarnegar‐Lumley, Ashwin Lakshman Koppayi, Lucy A. Godley   +5 more
wiley   +1 more source

Technikfolgenabschätzung als Perspektive zur Gestaltung der Open-Access-Transformation

o-bib. Das offene Bibliotheksjournal
Der technologische Wandel des wissenschaftlichen Publizierens bringt Ambivalenzen mit sich. Das äußert sich in grundsätzlicher und spezifischer Kritik an Open Access.
Stefan Drößler, Sebastian Flaig, Jonas Scherr   +2 more
doaj   +1 more source

Health Literacy, Self‐Efficacy and Knowledge of Sickle Cell Disease Among Caregivers

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a hereditary blood disorder in which abnormal haemoglobin leads to severe anaemia, painful crises and organ failure. Caregivers’ health literacy (HL) – their ability to assess, understand and apply information, and interact with healthcare professionals – is crucial for managing children with SCD, yet ...
Melanie Bruinooge, Maite E. Houwing, Rowena L. Grohssteiner, Ferdows Atiq, Sonja A. M. C. Teuben, Mirjam P. Fransen, Marjon H. Cnossen   +6 more
wiley   +1 more source

Early Impact of Childhood Opportunity on Neurocognitive Outcomes in Sickle Cell Disease

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Neurocognitive impairment is a well‐recognized complication of sickle cell disease (SCD) that begins early in childhood and persists across development. While cerebrovascular injury contributes substantially to risk, neurocognitive deficits are also observed in children without overt or silent cerebral infarctions, suggesting ...
Julia E. LaMotte, Hannah Koch, Olivia A. Coughlin, Jillian R. Bouck, Allie Carter, Seethal A. Jacob   +5 more
wiley   +1 more source

Open-Access-Transformation komplementär zu DEAL: Forum 13+

o-bib. Das offene Bibliotheksjournal
Der Arbeitskreis Forum 13+ ist ein unabhängiges Gremium von Expertinnen und Experten aus deutschen Bibliothekskonsortien als Akteuren der überregionalen Lizenzierung, von Open-Access-Infrastrukturprojekten, Universitätsbibliotheken, des Deutschen ...
Kristine Hillenkötter, Hildegard Schäffler   +1 more
doaj   +1 more source

Ironic Medications: A Narrative‐Based Psycho‐Educational Intervention to Explore Patient–Provider Communication in Adolescents With Haematological Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Adolescents with haematological malignancies face significant emotional and relational challenges, often accompanied by difficulties in communicating their needs within the healthcare context. To address these issues, a narrative‐based psycho‐educational intervention based on the creation and prescription of Ironic Medications was ...
Marta Stoppa, Elena Pagani Bagliacca, Selena Russo, Giulia Rampoldi, Maria Grazia Strepparava, Adriana Cristina Balduzzi, Andrea Biondi, Marco Spinelli   +7 more
wiley   +1 more source

Open-Access-Transformation aus der Perspektive von Zeitschriftenherausgebenden

o-bib. Das offene Bibliotheksjournal
Die Herausgebenden von wissenschaftlichen Zeitschriften spielen eine wichtige Rolle als mögliche Treiber der Open-Access-Transformation. Sie haben die Verbindung zur wissenschaftlichen Community und die inhaltliche Verantwortung für die jeweilige ...
Juliane Finger
doaj   +1 more source

Open-Access-Transformation mit DeepGreen: Gemeinsam den (grünen) Schatz heben

o-bib. Das offene Bibliotheksjournal, 2019
Das von der DFG seit 2016 geförderte Projekt DeepGreen will die Open-Access-Transformation der deutschen Wissenschaft unterstützen, indem Artikel, sofern lizenzrechtlich erlaubt, automatisiert in den grünen Weg von Open Access überführt werden.
Julia Alexandra Goltz-Fellgiebel, Markus Putnings   +1 more
doaj   +1 more source

Aus dem DEAL-Maschinenraum — ein Gespräch mit Bernhard Mittermaier

Library Ideas, 2017
Ein Thema hält die deutsche Wissenschaft seit über einem Jahr in Atem: der DEAL mit den drei dominierenden Wissenschaftsverlagen Elsevier, Springer Nature und Wiley.
Bernhard Mittermaier
doaj   +1 more source

ASSIST: Refinement of a Benefits Navigator Intervention Among Low‐Income Pediatric Oncology Families

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background/Objectives Children with cancer living in poverty experience worse survival and quality of life. Interventions connecting low‐income families to benefits (e.g., Supplemental Nutrition Assistance Program [SNAP] improve health outcomes; yet nearly 50% of SNAP‐eligible pediatric oncology families are unenrolled.
Puja J. Umaretiya, Selena Murcia Mendez, Jennifer Kellett, Sarah Wright, Marisel Ponton, Robin T. Higashi, Rahela Aziz‐Bose, Colleen A. Kelly, Ayesha Zia, Joanne Wolfe, Sandi L. Pruitt, Kira Bona   +11 more
wiley   +1 more source