Results 41 to 50 of about 8,385,533 (317)

Health‐Related Social Needs in Children With Sickle Cell Disease Are Associated With Worse Health‐Related Quality of Life

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Children with sickle cell disease (SCD) face multiple acute and chronic medical complications that may impact their quality of life as reported by patients themselves. Health‐related social needs (HRSNs), such as food and housing insecurity, are common in people with SCD, but the association between HRSNs and patient‐reported ...
Sarah J. Marks   +5 more
wiley   +1 more source

A systematic literature review of open data quality in practice [PDF]

open access: yes, 2016
Context: The main objective of open data initiatives is to make information freely available through easily accessible mechanisms and facilitate exploitation.
RASHID, MOHAMMAD RIFAT AHMMAD   +1 more
core  

OPEN YOUR HEART -- Simon David Hirsbrunner on reasons why media scholars might be reluctant to open their research data [PDF]

open access: yes, 2019
Von Simon David Hirsbrunner In the media studies community, open science (OS) is often taken as a synonym for open access publishing. For someone like me, who investigates techno-scientific practice from an epistemological (or ‹STS›) perspective, such a ...
Open Media Studies
core   +1 more source

Pattern of unreported negative birth experiences in the maternity ward

open access: yesActa Obstetricia et Gynecologica Scandinavica
Introduction Denmark is one of the safest places for childbirth, yet some women report dissatisfaction with their maternity care. However, some negative birth experiences may remain unreported due to thresholds for complaining.
Mette Kring Clausen   +3 more
doaj   +1 more source

DATA for decision-making in viticulture in the face of climate change: Looking beyond production issues

open access: yesBIO Web of Conferences, 2023
The impacts of climate change on viticulture are increasingly being felt, requiring growers and winemakers to adopt new strategies to adapt to changing conditions.
Naigeon Nicolas   +2 more
doaj   +1 more source

Cup‐Like Nuclei Is a Hallmark of DUX4/ERG Acute Lymphoblastic Leukemia and Reveals Cytoplasmic Mitochondria Accumulation

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Cup‐like nuclei are a distinctive morphological feature observed in certain cases of acute lymphoblastic leukemia (ALL). We provide evidence that they characterize DUX4/ERG ALL independently of IKZF1 deletion and reveal marked mitochondrial accumulation in this ALL subset.
Chloé Arfeuille   +9 more
wiley   +1 more source

Artist Use of Open Data [PDF]

open access: yes, 2015
A conference panel discussing artists' use of Open Data with Hannah Redler (curator at Open Data Institute, London), Thomson & Craighead (ODI artists in residence), Julie Freeman (artist) and Jonathan Reekie (Director, Somerset House ...
Craighead, A., Thomson, J.
core  

What is open data? [PDF]

open access: yes, 2021
This chapter is focused on developing a basic understanding of data and how it permeates different aspects of society. This involves knowledge of how it is structured, the politics behind this and implications regarding transparency.
Atenas, Javiera   +3 more
core   +1 more source

Who complains? A nationwide register-based cross-sectional study of socioeconomic differences in patient complaints and complaint case outcomes in Denmark

open access: yesBMJ Open
Objective To examine socioeconomic and demographic differences in who complains about healthcare and whether these factors are associated with the outcomes of complaint cases.Design Nationwide cross-sectional study in Denmark using linked national health,
Lars Morsø   +5 more
doaj   +1 more source

Diabetes Mellitus Mediates Risk of Depression in Danish Women with Polycystic Ovary Syndrome—A National Cohort Study

open access: yesBiomedicines, 2022
Aim: To investigate the risk of depression in Danish women with PCOS compared to controls and possible mediators for depression in PCOS. National register-based study in Danish women with PCOS (PCOS Denmark, N = 25,203) and age-matched controls (N = 112 ...
Dorte Glintborg   +3 more
doaj   +1 more source

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