Results 1 to 10 of about 1,561,444 (269)

The Italian version of rheumatoid arthritis pain scale (IT-RAPS): psychometric properties on community and clinical samples

Reumatismo, 2019
This paper describes the validation process of the Italian version of the Rheumatoid Arthritis Pain Scale (ITRAPS), describing its translation and adaptation to Italian culture.
M. Tofani, M. Nobilia, G. Culicchia, G. Esposito, A. Savona, I. Tashi, A. Ventura, G. Galeoto   +7 more
doaj   +1 more source

Improving the evaluation of therapeutic interventions in multiple sclerosis: the role of new psychometric methods

Health Technology Assessment, 2009
Objectives: In this monograph we examine the added value of new psychometric methods (Rasch measurement and Item Response Theory) over traditional psychometric approaches by comparing and contrasting their psychometric evaluations of existing sets of ...
J Hobart, S Cano
doaj   +1 more source

Assessing the Validity of the Long-Term Conditions Questionnaire (LTCQ) in Women During Pregnancy and the First Year Following Birth

Patient Related Outcome Measures, 2022
Laura Kelly,1,2 Ray Fitzpatrick,1 Jennifer J Kurinczuk,3 Oliver Rivero-Arias,3 Fiona Alderdice2,3 1Health Services Research Unit, Nuffield Department of Population Health, University of Oxford, Oxford, UK; 2Harris Manchester College, University of Oxford,
Kelly L, Fitzpatrick R, Kurinczuk JJ, Rivero-Arias O, Alderdice F   +4 more
doaj  

Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy

Patient Related Outcome Measures, 2022
Jennifer Quinn,1 Kathleen A Delaney,2 Wing Yen Wong,2 Wolfgang Miesbach,3 Monika Bullinger4 1BioMarin Pharmaceuticals UK Ltd, London, UK; 2BioMarin Pharmaceutical Inc., Novato, CA, USA; 3Medical Clinic 2, Institute of Transfusion Medicine, University ...
Quinn J, Delaney KA, Wong WY, Miesbach W, Bullinger M   +4 more
doaj  

The Use of Patient Engagement to Gather Perceptions on the Cost of Infant Feeding

Patient Related Outcome Measures, 2022
Alicia Blackmore,1 Holly Etchegary,1,2 Leigh Anne Allwood-Newhook,3 Zhiwei Gao,1 Hai Van Nguyen,4 Kaylah Parsons-Mercer,5 Laurie Twells1 1Faculty of Medicine, Memorial University of Newfoundland, St. John’s, Newfoundland and Labrador, Canada; 2Scientific
Blackmore A, Etchegary H, Allwood-Newhook LA, Gao Z, Nguyen HV, Parsons-Mercer K, Twells L   +6 more
doaj  

The PCQ-Infertility Revised: A New Digital Instrument to Measure Treatment Satisfaction of Fertility Patients

Patient Related Outcome Measures, 2023
Lotte van der Kolk,1 Ellen Smit,2 Josée Bloemer,1 Lise Marit van Wijk2 1Institute for Management Research, Radboud University, Nijmegen, the Netherlands; 2Ferring B.V., Hoofddorp, the NetherlandsCorrespondence: Ellen Smit, Polarisavenue 130, Hoofddorp ...
van der Kolk L, Smit E, Bloemer J, van Wijk LM   +3 more
doaj  

Exploring Effective Communication Strategies Employed by Physicians in Delivering Bad News in Ethiopian State Hospitals

Patient Related Outcome Measures, 2023
Alebel Guangul Gessesse,1 Jemal Mohammed Haile,2 Amanuel Gebru Woldearegay3 1Department of Journalism and Communication, Dilla University, Dilla, Ethiopia; 2Departments of Journalism and Communication, Bahir Dar University, Bahir Dar, Ethiopia; 3School ...
Gessesse AG, Haile JM, Woldearegay AG
doaj  

The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises

Patient Related Outcome Measures, 2023
Andrew Campbell,1 Avery A Rizio,2 Kristen L McCausland,2 Serban Iorga,3 Glorian P Yen,3 Jincy Paulose,3 Soyon Lee3 1Children’s National Hospital, Washington, DC, USA; 2QualityMetric Incorporated LLC, Johnston, RI, USA; 3Novartis Pharmaceuticals ...
Campbell A, Rizio AA, McCausland KL, Iorga S, Yen GP, Paulose J, Lee S   +6 more
doaj  

Solid Pseudopapillary Neoplasm of the Pancreas in Children and Adolescents: Expert Recommendations

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Solid pseudopapillary neoplasm of the pancreas (SPN) is a rare low‐grade malignant exocrine pancreatic tumor, mostly discovered during the second decade of life in females, with a very good prognosis, provided microscopically complete surgical excision is achieved.
Sabine Irtan, Michael Abele, Calogero Virgone, Michaela Kuhlen, Ricardo Lopez‐Almarez, Tal Ben‐Ami, Ewa Bien, Maja Cesen, Malgorzata A. Krawczyk, Andrea Ferrari, Gianni Bisogno, Yves Reguerre, Dominik T. Schneider, Louise Galmiche, Jorg Fuchs, Sarah Braungart, Bilgehan Yalcin, Ines B. Brecht, Daniel Orbach   +18 more
wiley   +1 more source

Ovarian Sex Cord Stromal Tumors in Children and Adolescents—The European Standard Clinical Practice Recommendations

Pediatric Blood &Cancer, EarlyView.
ABSTRACT As part of the European Cooperative Study Group for Paediatric Rare Tumours initiative, we developed standard clinical practice guidelines for ovarian sex cord stromal tumors, based on comprehensive national and international cohort analyses, literature review, and a final expert consensus conference.
Dominik T. Schneider, Kris‐Ann Schultz, Nora Schnitzler, Michael Abele, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Ines B. Brecht, Maja Cesen, Andrea Ferrari, Michaela Kuhlen, Malgorzata A. Krawczyk, Ricardo Lopez‐Almaraz, Yves Reguerre, Calogero Virgone, Daniel Orbach   +15 more
wiley   +1 more source