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Mapping of Children’s Palliative Care Development Globally in 2023 [PDF]

open access: yesChildren
Background: The demand for children’s palliative care is increasingly urgent, with over 21 million children worldwide needing access, yet only 5–10% currently receiving it.
Julia Downing   +8 more
doaj   +2 more sources

Timely Palliative Care: Personalizing the Process of Referral

open access: yesCancers, 2022
Simple Summary Timely palliative care is palliative care personalized based on patients’ needs and delivered at the optimal time and setting. It involves a systematic process to identify patients with high supportive care needs and referring these ...
D. Hui, Yvonne Heung, E. Bruera
semanticscholar   +1 more source

Palliative Care Early in the Care Continuum among Patients with Serious Respiratory Illness: An Official ATS/AAHPM/HPNA/SWHPN Policy Statement

open access: yesAmerican Journal of Respiratory and Critical Care Medicine, 2022
Background Patients with serious respiratory illness and their caregivers suffer considerable burdens, and palliative care is a fundamental right for anyone who needs it.
D. Sullivan   +28 more
semanticscholar   +1 more source

Views of patients with advanced disease and their relatives on participation in palliative care research

open access: yesBMC Palliative Care, 2021
Background Patients with advanced disease may not be invited to participate in research based on the assumption that participation would be too burdensome for them.
Karolina Vlckova   +4 more
doaj   +1 more source

Nurses’ knowledge and attitudes towards palliative care and death: a learning intervention

open access: yesBMC Palliative Care, 2021
Background In many countries, nurses are ill-prepared to provide care to patients with terminal illnesses. Limited education and training affect their ability to deliver proper palliative care.
Yanping Hao   +5 more
semanticscholar   +1 more source

Examining public knowledge, attitudes and perceptions towards palliative care: a mixed method sequential study

open access: yesBMC Palliative Care, 2021
Background Palliative care is recognised as a public health issue with the need for earlier integration in the wider healthcare system. However, research indicates that it continues to be accessed late in the course of an illness, public understanding of
S. Mcilfatrick   +8 more
semanticscholar   +1 more source

Consultations’ demand for a hospital palliative care unit: how to increase appropriateness? Implementing and evaluating a multicomponent educational intervention aimed at increase palliative care complexity perception skill

open access: yesBMC Palliative Care, 2022
Background Planned, multidisciplinary teams’ discussions of cases are common in cancer care, but their impact on patients’ outcome is not always clear. Palliative care (PC) needs might emerge long before the last weeks of life.
Tanzi Silvia   +5 more
doaj   +1 more source

Specialist palliative care until the very end of life - reports of family caregivers and the multiprofessional team

open access: yesBMC Palliative Care, 2023
Background Specialist palliative care (SPC) includes care for incurably ill patients and their family caregivers at home or on a palliative care ward until the very end of life.
Anneke Ullrich   +10 more
doaj   +1 more source

An EAPC white paper on multi-disciplinary education for spiritual care in palliative care

open access: yesBMC Palliative Care, 2020
Background The EAPC White Paper addresses the issue of spiritual care education for all palliative care professionals. It is to guide health care professionals involved in teaching or training of palliative care and spiritual care; stakeholders, leaders ...
M. Best   +3 more
semanticscholar   +1 more source

Associations between informal care costs, care quality, carer rewards, burden and subsequent grief: the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study)

open access: yesBMC Medicine, 2020
Background At the end of life, formal care costs are high. Informal care (IC) costs, and their effects on outcomes, are not known. This study aimed to determine the IC costs for older adults in the last 3 months of life, and their relationships with ...
Irene J. Higginson   +9 more
doaj   +1 more source

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