Results 71 to 80 of about 512,213 (312)

Publishing Participatory Science: The Community Science Exchange

Eos
Our peer-reviewed journal and innovative editor-vetted Hub offer new ways to share research performed by, with, and for communities.
Allison Schuette, Julia Parrish, Kathryn Semmens, Kristina Vrouwenvelder, Sarah Dedej   +4 more
openaire   +1 more source

Approaching Participatory Design in "Citizen Science" [PDF]

This paper explores the use of participatory design methods in engaging older people in Citizen Science. Based on a pilot in a small Scottish town it looks at the application of designerly practices to bringing lay knowledge into professional practices ...
Macintyre, Ronald
core  

Old Wine in New Bottles? The Actual and Potential Contribution of Civil Society Organisations to Democratic Governance in Europe [PDF]

, 2007
Political science literature often claims that the participation of civil society organisations increases the democratic quality of policy-making in international governance arrangements.
Dawid Friedrich
core  

Germline TP53 Mutations Causing Diamond–Blackfan Anemia: A French Report

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Diamond–Blackfan anemia is a rare congenital erythroblastopenia typically caused by mutations in ribosomal protein genes. Recently, gain‐of‐function mutations in TP53 have been identified as a novel cause of Diamond–Blackfan anemia. We report two French patients who both harbored a heterozygous TP53 deletion (NM_000546.5: c.1077delA; p ...
Rafael Moisan, Lydie Da Costa, Ludivine David Nguyen, Heloise Chosseler, Audrey Riquet, Benedicte Bruno, Melissa Barbati   +6 more
wiley   +1 more source

Participatory Science via the Internet [PDF]

, 2013
This special session features scientists and developers building innovative interactive virtual environments that can be used for science education from kindergarten through college. The four projects presented in this session focus on different areas of science, from space physics to entomology, but they share a common educational orientation towards ...
openaire   +1 more source

‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End‐of‐Life Discussions With Adolescents and Young Adults With Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee, Holly Evans, Claire E. Wakefield, Antoinette Anazodo, Richard J. Cohn, Brittany C. McGill, Elizabeth A. Lobb, Lori Wiener, Madeleine L. Juhrmann, Ursula M. Sansom‐Daly   +9 more
wiley   +1 more source

Building equitable engagement: Strategies for enhancing diverse engagement in participatory science

Conservation Science and Practice
Co‐created participatory science offers an innovative approach to engaging diverse communities in scientific research, challenging traditional top‐down approaches to science, and fostering meaningful collaborations between scientists and volunteers ...
Kelsey Jennings, Ashley Dayer, Willandia Chaves   +2 more
doaj   +1 more source

Big data security & individual (psychological) resilience: A review of social media risks and lessons learned from Indonesia

Array
This research aims to reduce social media security risks and develop best practices to help governments address social media security risks more effectively. This research begins by reviewing the different discussions in the literature about social media
Abdillah Abdillah, Ida Widianingsih, Rd Ahmad Buchari, Heru Nurasa   +3 more
doaj   +1 more source

Participatory sensing as an enabler for self-organisation in future cellular networks [PDF]

, 2013
In this short review paper we summarise the emerging challenges in the field of participatory sensing for the self-organisation of the next generation of wireless cellular networks.
Imran, Ali, Imran, Muhammad Ali, Onireti, Oluwakayode   +2 more
core   +1 more source

Defining Roles in Pediatric Palliative Care: Perspectives From Oncology and Palliative Care Teams

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Early integration of pediatric palliative care (PPC) is associated with improved symptom management, quality of life, and healthcare utilization for children with cancer. Despite this, variation persists in how PPC is understood, operationalized, and integrated within pediatric oncology programs. In particular, ambiguity surrounding
Leeat Granek, Lori Wiener, Stephanie Veldhuijzen van Zanten, Donna Johnston, Fyeza Hasan, Adam Rapoport, Nathasha Datoo, Kimberley Widger, Sumit Gupta, Karen Fergus, Anthony K. C. Chan, Alisha Kassam, Emily McCullogh, Dave Lysecki   +13 more
wiley   +1 more source