Results 51 to 60 of about 809,710 (294)

The Role of Hematopoietic Cell Transplantation in Ataxia‐Telangiectasia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Ataxia‐telangiectasia (A‐T) is a DNA repair disorder characterized by neurodegeneration, immunodeficiency, and cancer predisposition. Hematopoietic cell transplantation (HCT) is an established therapy in related disorders such as Fanconi anemia (FA) and Nijmegen breakage syndrome (NBS), but its role in A‐T is unclear.
Laila Alkhouli, Seth Rotz, Masatoshi Takagi, Richa Sharma   +3 more
wiley   +1 more source

Increased Risk of Sarcomas in Children With Congenital Anomalies: Findings From the Genetic Overlap Between Anomalies and Cancer in Kids (GOBACK) Registry Linkage Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric sarcomas are a heterogeneous group of tumors that contribute disproportionately to cancer mortality in children. Although congenital anomalies are among the strongest known risk factors for childhood cancer, the risk of specific sarcoma subtypes among affected individuals has not yet been thoroughly evaluated. Procedure We
Russ Wolters, Ji Yun Tark, Tiffany M. Chambers, Tania A. Desrosiers, Michael E. Scheurer, Charles Shumate, Wendy N. Nembhard, Mahsa M. Yazdy, Eirini Nestoridi, Amanda E. Janitz, Jean Paul Tanner, Russell S. Kirby, Jason L. Salemi, Yao Yu, Chad D. Huff, Sharon E. Plon, Philip J. Lupo, Jeremy M. Schraw   +17 more
wiley   +1 more source

Benefits of Patient Centered Care: The Pediatric Approach

, 2020
Patient-centered care has been proven to be a very significant factor in the quality of treatment. Patients are considered to be partners with their healthcare providers and these professionals handle the patients not just from a therapeutic point of ...
Aguwa, Goodluck Chinenye
core  

Investigating organizational quality improvement systems, patient empowerment, organizational culture, professional involvement and the quality of care in European hospitals: the 'Deepening our Understanding of Quality Improvement in Europe (DUQuE)' project. [PDF]

, 2010
BACKGROUND: Hospitals in European countries apply a wide range of quality improvement strategies. Knowledge of the effectiveness of these strategies, implemented as part of an overall hospital quality improvement system, is limited.
Andrew Thompson, Klazinga, Niek, Arah Onyebuchi A, Suñol, Rosa, Arah, O.A., Groene Oliver, Klazinga Niek, Charles Bruneau, Thompson, Andrew, Cordula Wagner, Klazinga, N., Groene, O., Wagner, C., Wagner, Cordula, Suñol Rosa, Arah, Onyebuchi A.., Onyebuchi A Arah, Arah, O. A., Thompson Andrew, Rosa Suñol, Deepening our Understanding of Quality Improvement in Europe Res, Sunol, R., Arah, Onyebuchi A, ?, ?, Niek Klazinga, null null, Oliver Groene, Bruneau, Charles, Wagner Cordula, Bruneau Charles, Arah, Onyebuchi A., Groene, Oliver, Suñol Sala, Rosa, Bruneau, C., Thompson, A.   +34 more
core   +1 more source

Supporting Survivor‐Centered Care Through Digital Health Integration

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Survivors of childhood cancer face barriers to receiving guideline‐based, long‐term follow‐up care. Two digital tools, Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink), address complementary gaps by enabling tailored survivorship care plan (SCP) generation, updating, storage, and sharing.
Jordan G. Marchak, Rebecca Williamson‐Lewis, Michael O'Connor, Michael Palgon, Yu‐Ra Kim, Michael Schuckenbrock, Paula Edwards, Abraham Mendoza, Anthony Adams, Brian Arriaga‐Solis, Justin Parker, Harry Tinoco‐Giraldo, Jason King, C. Michael Fordis, Karen E. Effinger, Maria Monica Gramatges   +15 more
wiley   +1 more source

A vision for using online portals for surveillance of patient-centered communication in cancer care

, 2015
The Veterans Health Administration (VHA) is charged with providing high-quality health care, not only in terms of technical competence but also with regard to patient-centered care experiences.
Singh, Hardeep, Arora, Neeraj K, Mazor, Kathleen M., Street, Richard L, Jr   +3 more
core   +1 more source

Towards generic online multicriteria decision support in patient-centred health care. [PDF]

, 2013
OBJECTIVE: To introduce a new online generic decision support system based on multicriteria decision analysis (MCDA), implemented in practical and user-friendly software (Annalisa©). BACKGROUND: All parties in health care lack a simple and generic way to
Salkeld, Glenn, Jack Dowie, Kaltoft, Mette Kjer, Kjer Kaltoft, Mette, Dowie, Jack, Michelle Cunich, Mette Kjer Kaltoft, Cunich, Michelle, Glenn Salkeld   +8 more
core   +1 more source

Patient-centered care

, 2022
Objetivo: analisar o conceito do "cuidado centrado no paciente" à luz do método evolucionário de Rodgers. Método: trata-se de uma análise conceitual referenciada pelo Método Evolucionário de Rodgers acerca do conceito “cuidado centrado no paciente”.
Sousa, Vilma Rejane Maciel de, Brito, Raissa Jerônimo de, Candido de Oliveira Salvador, Pétala Tuani Candido de Oliveira, Duarte da Costa, Theo, Horácio Lopes, Rayssa, Andrade Alves, Kisna Yasmin   +5 more
openaire   +3 more sources

Developing a relational playbook for cardiology teams to cultivate supportive learning environments, enhance clinician well‐being, and veteran care

Learning Health Systems
Introduction Despite the Veterans Health Administration (VA) efforts to become a learning health system (LHS) and high‐reliability organization (HRO), interventions to build supportive learning environments within teams are not reliably implemented ...
Heather M. Gilmartin, Brigid Connelly, Edward Hess, Candice Mueller, Mary E. Plomondon, Stephen W. Waldo, Catherine Battaglia   +6 more
doaj   +1 more source

Patients’ perspectives of eosinophilic granulomatosis with polyangiitis within the context of a clinical trial

EULAR Rheumatology Open
: Objectives: Eosinophilic granulomatosis with polyangiitis (EGPA) is a complex, multisystem form of vasculitis. MANDARA (NCT04157348) was a phase 3 clinical trial comparing the efficacy and safety of benralizumab versus mepolizumab, in addition to ...
Peter A. Merkel, Bernhard Hellmich, Christian Pagnoux, Ulrich Specks, Michael E. Wechsler, David Badenoch, Alisa Hartsell, Vivian H. Shih, Lena Börjesson Sjö, Sofia Necander, Caroline Roberts, Jennifer Hanlon, Jennifer N. Hill, Eyra Perez, Julie Bailey, Calvin N. Ho   +15 more
doaj   +1 more source